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Breast Cancer

19 Jan 2020 13:55

I am new to the site .. My Mum had ovarian cancer in 1978 and sadly we lost her 8 months later at the age of 49, I was 22.   Ten years later at the young age of 32 I was diagnosed with rt sided BC. I was terrified but recovered well after partial mastectomy and radiotherapy.  Ten years later to the day at the age of 42 I was diagnosed with lft sided BC, this time treated with chemo and radiotherapy and another partial mastectomy. I thought that was the end of my cancer journey but after being informed I was Brca gene positive I was annually checked. Last year at the age of 63 I was diagnosed with rt sided BC again so a decision for FULL Mastectomy was inevitable.  I have just commenced another course of Chemo in January 2020 and just recovering from severe side effects of the Filgrastim injections, but I am a Warrior and will beat this again.. Ready for number 2 of 15 on 28th Jan ..

Looking forward to chatting to anyone who can offer any advice, tips or if I can help anyone please let me know 

Breast Cancer

21 Jan 2020 14:53 in response to Babs56

Welcome to Cancer Chat Babs although I'm really sorry you're having to go through this a third time.

We have a lot of breast cancer members here so hopefully some of them will be along soon to offer their support and advice.

In the meantime, I just wanted to let you know we're all thinking of you and wishing you all the best with your chemo.

Kind regards warrior Babs Happy 

Steph, Cancer Chat Moderator

Breast Cancer

23 Jan 2020 00:08 in response to Moderator Steph

Thank you Steph.. Its always nice to know you are never on your own going through something like this.  There is always someone worse off and If I can help and offer anyone support anytime then I will.  I have always been positive and my friends call me a Warrior as they know I am a strong willed person.  I am feeling good today and now ready for my second cycle on 28th Jan. 

Thank you for your lovely comments and I wish Everyone in this site well with whatever they are facing.

Breast Cancer

23 Jan 2020 00:20 in response to Babs56

Hi Babs, 

I've just read your post and a warrior indeed you are! There is a group of ladies on here, we are all triple negative and keep each other supported with positive vibes and support when the chips are down. But overall we are all keeping our head above water and one step at a time eh 

I struggled with the injections too, I had 4 rounds of AC every 3 weeks. It did help taking paracetamol and anti histamine before the injection, something the nurse told me as the bone pain was something else. Are u taking anything to help? 

At the moment I am on weekly treatments until the end of Feb and no more injections. Just steriods keeping me buzzing for a few days. 

I'm waiting for my BrCA gene result and then will have an opp (not sure exactly which type) and the radiotherapy. A long road but I'll get there and you are proof it won't get us down! 

Thanks for sharing, 

Hugs

Xx 

Breast Cancer

23 Jan 2020 02:14 in response to Mich8

Hi  .Thanks for your message, its great to hear from you. I have been given Morphine for the pain   Never experienced pain like it I must admit but the oramorph, brufen, paracetamol and codeine seemed to shift it . . I am prepared for it next time but have been told today by my Oncologist that I have to have a stronger dose of the filgrastim as I was neutropenic 3 days ago with a result 0.2 (very low) and was admitted to hospital for 2 nights . they need to ensure I don't have the same next week.  I know I will get the pain but I'm ready for it this time now I know how it starts and can treat it before it gets too bad  .. 

Breast Cancer

23 Jan 2020 04:27 in response to Babs56

Hi Babs

 

You are indeed a Warrior Queen and you have certainly faced & conquered many battles. I'm wondering if Babs is short for/code for Boudicca, as she was also an iconic Warrior Queen Happy 

I'm also a triple negative girl, and had my first chemo 14hrs ago, so I am very new to this, but can I join the tribe too ? I promise I am a fearless warrior Happy

 

I'm sending love hugs, prayers and positive vibes (and gin, just in case) to you and all our fellow warriors.

 

"May the odds be ever in our favour"

 

M x x x x

 

 

Breast Cancer

23 Jan 2020 06:19 in response to Babs56

Hey ladies

Sorry to hear your level were low Babs, but glad they acted quickly and keeping an eye on your. The injections do work wonders hence the pain eh! Is amazing how they drawbin from your bones marrow to increase our neutrafills. I have a cold now so hope that woke affect my treatment next week. I have my bloods done in a Monday for Wednesday treatment. 

How u feeling now with the pain? I found i was yuck for about a week to 10 days then normal again (well normalish ha ha!)

Hey Wicked angel, ah your first chemo! It's good to get the first one out of the way. How u feeling? Are you on the EC drug aka red devil? 

Hope u doing OK, I had zombie brain for 2 days. Couldn't even read just vegetated in bed or on setee! 

Yeah of course ladies, join our thread. It's called Just been diagnosed - BC Triple Negative. 

Hugs all around xx

 

Breast Cancer

23 Jan 2020 11:04 in response to Mich8

Hi . Hope you are able to have your next chemo on Wednesday . Its horrible having to put off and better to be able to get it over and done with 

Yes the Red Devil is bole and yes too I become zombiefied   Makes you feel you have the onsets of dementia, can't remember names, dates, things I'm doing etc.... I went upstairs last week 4 times before I could remember what I went up for  .Each time I came down and realised it was for my phone charger

I don't have the horrible pain but twinges in my legs now and then   Someone told me about taking anti histamine and I have piriton so will certainly try it next week.. Will let you know if it works for me 

I am sitting here contemplating on shaving my head as my hair coming out in clumps now and a real mess  . I am thinking of putting the video on and my music on full blast and just doing it - a new challenge and a new day  . . Just building up the courage 

Big hugs to you and all the best for Wednesday

xxxxx

 

Breast Cancer

23 Jan 2020 11:45 in response to WickedAngel

Lovely to hear from you Wicked angel .. I was just concentrating on your last sentence about the gin and just wondered when I would feel like drinking one again . We have a cupboard full of different gins and I just can't face alcohol at the moment . A bit like a detox but with the tox missing off as we get lots of toxic substances pumped into us. ..

Hope you are doing well and lots of hugs and good wishes to you xx

Breast Cancer

23 Jan 2020 11:49 in response to Babs56

Thanks Babs, i hope so too.  I'm buzzing with the steriods so hopefully that will keep me going and i'll get rid of it by the weekend before i crash haha!

Ha ha yup thats deff me!  And i cant seem to find words for mundane objects like fridge, windows or where to put things. 

Yeah the antihistamine and painkillers really helped me, i would take ibuprofen, paracetol with antihistamine in the morning with breakfast.  I suffered with neuropathy pain too where your body aches and you get that skin crawl feeling, hard to explain but it hurts just touching your arm lightly. That just lasted  a few days luckily. 

I wore the cold cap for 4 of my treatments, the EC.  I had a major shed still after treament number 2 and starting sporting a few bald patches.  I wore a headband and alice bands to hide them and cut my hair into a bob before treatment. On my first carbo / taxl i wasn't feeling well that morning and couldn't stomach the cold cap so havne't bothered since.  I had to shave my hair off 2 weeks ago as it was coming out in clumps.  to be honest it was quite liberating getting rid of it as the clumps every where was more distressing.  Of course i shed a tear or too when woke up the next morning and looked in the mirror, puffy eyes no eye brows or eyelashes and no hair.  I dont regret it though and glad i shaved when i did.  I've been wearing head scarves and i have a wig but dont wear too often as a bit tight for long periods of time.  so I'll say yeah, go with your instinct and do what feels right for you.  Something ive realised going through this is that there is not right or wrong, we are all going through this together but we are also all unique in our treaments and what works for us Happy

Happy Wednesday!

xx

Breast Cancer

24 Jan 2020 08:49 in response to Mich8

Hi Mich8 great to hear from you . 

I was going to try the cold cap but I had a PICC line inserted and after that straight into Chemo so I just thought 'what the hell' there was no guarantee and why put myself through more trauma of freezing ..

I did it .. Yes shaved all my locks off .. I videod it as was all on my own so when my hubby came home I sat him down with a cuppa and my video and we had a very emotional hour.  I can't believe how soothing and how much better I felt after and even went out to celebrate the next chapter in our lives

You are right the steroids do make you buzz and thanks for the tip about the anti histimines for pain, I never even thought they would be included in pain relief but I took some last night and slept much better and didn't feel half the aches I been having

I have chosen a wig and waiting for my fitting now, completely new style for me.. Hubby wanted me have blonde and although it didn't look too bad I have always been a brunette so will do that one gradual when I feel brave enough . The shave was the bravest thing I think I have ever done and now look like a hedgehog with a number 2 cut .. Ha ha xx 

Big hugs from me and thanks again for your very helpful tips 

xxxx

Breast Cancer

25 Jan 2020 15:00 in response to Babs56

Hi Babs,

Ah glad to hear the antihistamines worked, it makes a big difference esp when you lying in bed and cant move for the pain.

Good on you for going hedgehog!  I felt so much better after shaving my head, i had to do another trim this week and going all spikey and messy with gaps lol!  Of course i do still freak myself out when looking in the mirror, esp in the morning.  Cant wait to look myself again.

I have a cold and chesty cough so feel really rough.  I'm keeping an eye on my temp as went up to 37.3 last night so made me worry. I'm feeling better today just sound like a smoke 40 a day!  never smoked in my life.  My pre-assessment is on wednesday so hope it clears by then as dont want to miss out on chemo next week. 

I have one wig, i went for a crop bob.  Just before chemo i cut my hair and donated it so thought i would try something shorter.  i've worn it a couple of times just for a few hours as it takes a bit of getting used to and can be quite tight on my head.  I'm convinced i've got an odd shape head lol!  I've worn my head scarves a few times, well just normal scaves tied up. My friend bought me a book on how to tie them in 30 different ways.  I was going to practice this weekend but alas rather not, trying not to move so dont cough my lungs out.

Hope you are doing well otherwise and having a relaxing weekend.

xx

 

Breast Cancer

25 Jan 2020 19:42 in response to Mich8

Oh Dear Mich .. Sounds like you may get your treatment put back if you are so chesty as Chemo will make it worse and raise your temp..  My normal temp fund from 37.2 to 37.5 . I ended up in hospital with a temp of 38.3 which lasted a few hours .. You may need some antibiotics ASAP so I would contact them on Monday and let them know how you are feeling .. Don't leave it . You shouldn't suffer .

Yes I am a hedgehog now but I can't tell anyone how soothing and how good it feels, unless you done it you don't appreciate it do you know ..

I hope you feel better soon 

Take care  . Hugs from me xxx

Breast Cancer

3 Feb 2020 13:25 in response to Babs56

Hey Babs,

Thanks for your message, I'm feeling much better well with the chesty cough, just zombiefied today!  I went to the docs on Tuesday with hubby as he had a horrible cough too and we both had chest infections to on anti biotics for a week.  Today is the last day for taking them.  I had my pre-assessment on Wednesday and quite surprised they came back fine for my to have chemo on Friday!  The nurse said its fine as the antibiotics would of been in my system for 72 hours before chemo so doing its thing.  I really thought it would be postponed.  They did say if i felt rough not to come in but was doing much better by friday so i had taxol / carbo, yup double whammy!  Steriods kept me going this weekend but now i feel like a zombie and cotton wool for brains.  So taking it easy indoors today.  Probably did a tad too much this weekend.  so glad to be over the worst of it and now 5 more treatments left of this, cant wait!  Then onto the next step.....

How you doing today?

Hugs xx

 

 

Breast Cancer

3 Feb 2020 13:27 in response to Mich8

How you doing @WickedAngel ‍ 

Are you doing ok after your first chemo?  First is always the worst as often we are anxious! I ended up in A&E as couldn't keep anything down then they upped my anti sickness meds and thankfully all ok after that.  Tad bit of trial and error eh as they dont know how your body is going to react.

Thinkin of you 

xx