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Bowel accidents

26 Mar 2019 03:41

Hi, 

I have always had bowel issues, even as a kid. The dr said back then I had a spastic colon. In my thirties, I had a magic eye & was told I had IBS. In my early forties another magic eye & again nothing found. Two years ago my bowel habits changed. I was constantly running to the toilet. I had another magic  eye & polyps were found & removed & I was told all was ok. Now, things are much worse & have been for over a  year. I am up through the night going to the toilet & cant leave the house as I am having bowel accidents even at home, despite my stools being normal. I just cant hold onto a stool anymore. 

My dr said as my magic eye was normal, its just IBS. I have recently seen a consultant who said I need a flexible sigmoidoscopy & it will be around 2 months before I receive an appt. I have also passed blood in my stools which was dark & cant understand why he isnt doing another colonoscopy. I am so worried & so embarrassed having accidents. I have told no one. 

I am also worried about having an infection in my bladder, due to having so many bowel accidents. I have to throw my underwear away each time.

The consultant asked if I had normal delivery on my two children, which I did. I asked if he would examine me but he refused & said the sigmoidoscopy was what was needed for my symtoms. Then he asked if I had felt or found any lumps around my bottom.

I am just so worried & I have to keep making exscuses why I cant go shopping with my friends at the weekends. 

I did have an abnormal smear 15 years ago & it was a CN3. It also said it was caused by the HPV virus. The consultant at the time said as I had always had regular smears, that my smear results had been misread for many years to get to be a CN3. I am now thinking maybe they have misread my smears again & its now spread to my bowel. 

Any advice greatly appreciated.

thanks

Molly

 

Bowel accidents

26 Mar 2019 07:36 in response to Molly33

Hi Molly33. Welcome to the forum.

Before I start, please understand that we aren't doctors here, and only the nurses have any medical qualifications. And even if we were qualified, we don't have access to your notes and medical history, so we would still be severly limited in what we could say.

Nevertheless, I think we can still make some useful comments and maybe make some suggestions, always provided you remember that we're not qualified.

Reading your comprehensive post, one thing that strikes me is that you've had more than enough tests to rule out bowel cancer (beyond reasonable doubt), and you've had a positive diagnosis of IBS - but there's no indication of what treatment, if any, you've receivied for IBS.  

Please could you share with us what treatments you've tried for IBS.

Thanks

Bowel accidents

26 Mar 2019 09:11 in response to telemando
Hi Telemando, No treatment offered as I do not have constipation now or diarrhea. I just cant control my bowel movements and have daily accidents, which has only happened in the past year & why I am to have the flexible sigmoidoscopy. The blood in my stool is also s new symtom which is worrying. Thanks Molly

Bowel accidents

26 Mar 2019 09:23 in response to telemando

Hi do you take any laxative meds. My wife used to be on them for years then doc said she had stumack problems and gave her stumack tables told her to stay off laxative (she was regular with lax) now she goes any time. When she goes she can sit for 11/2 hours or 6 or more times a day her stools look OK like you it can be very orquard. Enough of my problems get your self checked out properly, good luck.

Billy 

Bowel accidents

26 Mar 2019 10:26 in response to Molly33

Hi Molly33.

I'm not a doctor, but I would bet that your problems are all being caused by uncontrolled and untreated IBS. Diarrhea and/or constipation are not always present with IBS; I've had IBS for over 40 years and for most of that time I've had neither of them.  

Passing blood is always something that needs to be checked, but after a couple of clear colonoscopies, the chance of cancer is very low indeed. More likely it's some form of tear or trauma in your gut. This isn't something that should worry you too much. I doubt the sigmoidoscopy will find anything significant, but that should be reassuring. 

What concerns me most is that you've had a clear diagnosis of IBS, and yet no one has offered you any treatment for it.  This is shocking.  I think your GP is under the misapprehension that IBS always causes constipation and/or diarrhea, and if so he/she doesn't understand the condition.  I think that maybe it's time to find a GP with a better understanding of bowel conditions.  If you're part of a large practice, it might to pay to ask the practice receptionist whether any GPs there have an interest in bowel conditions and could you see him or her.  

There are effective treatments for IBS, but they won't help you if no one actually prescribes them for you. I tried anti-spasmodics and bulking agents for many years. They helped somewhat but weren't particularly effective. I finally found relief a couple of years ago when I was put on the FODMAP protocol. It was hard work, but eventually found that two foods that I loved and was eating frequently were my main triggers.  After elimination those foods, my bowel is very much improved.  (I still miss mushrooms, though).

 

Bowel accidents

26 Mar 2019 10:49 in response to Molly33

Hi Molly,

Do you by any chance have any joint hypermobility?

Bowel accidents

26 Mar 2019 17:25 in response to Billygoat

Hi Billy,

I am not on any laxatives & havn’t been given any meds. I cant go to work or even leave the house now as my bowel is so upredictable.

Thanks

Molly

Bowel accidents

26 Mar 2019 17:42 in response to telemando

Hi Telemando,

My doctors are ****! I spoke to one on the phone just after passing blood which was mixed into my stools. He told me “the thing is how far should we investigate this”.The only reason I am having a flexible sigmoidoscopy is because I already had an appt booked with the consultant, due to having constant acid reflex & told him about my bowel issues.

I am unable to change my practice as despite there being 2 others in the area. One will only take on new patients if they are not already registered with a practice in the area. The other, the  larger practice, wont accept me as all new patients have to now be within a certain radius & I am just outside that! 

I will read up on the FODMAP.

thanks

Molly

Bowel accidents

26 Mar 2019 17:43 in response to Taff

Hi Taff,

No, I don’t have joint hypermobilty.

thanks

Molly

Bowel accidents

26 Mar 2019 18:14 in response to Molly33

It's a pain (literally) when you have no confidence in your own GP.  Maybe there's a better GP at your own practice?  

Once you're read up on FODMAP, if you're interested I suggest you don't go it alone. It would be very difficult to do it without medical backup. Maybe your GP can refer you to a dietician who can guide you through the process?  Be aware that it's not easy - but when you're desperate you'll do anything! 

Bowel accidents

26 Mar 2019 20:43 in response to telemando

Hi Telemando,

I am really interested in trying the FOBMAP & shall ring my dr & ask if I may have advice from a dietician.

Sadly, the good dr’s at the practice have long since retired. Their replacements are useless & have such an attitude. No manners whatsoever!

Thanks

 Molly

 

 

 

Bowel accidents

26 Mar 2019 21:27 in response to Molly33

The FODMAP plan (I can never remember what the letters mean) is hard work, and you need to be really good for at least three months.  You'll have to exclude whole groups of food (no gluten, no lactose, no fructose, little soya, and much much more excluded). So, most dairy is excluded, except for hard cheeses. No fruit or honey. No milk in tea or coffee, but you can get Lactofree which is ok.  No butter, but olive spread is ok. No wheat products, but there are some nice (well, acceptable) gluten free substitutes. You'll probably find you're scouring the free-from section of every shop you go in, and reading the ingredients list of every prepared food! 

Fortunately, it isn't permanent and after 3-4 months (once your symptoms have settled down) you can cautiously re-introduce foods until you find one which triggers your symptoms.  Then you know  what you have to miss out.  It turns out I can't eat beans nor mushrooms.  I can only take dairy in small quantities, so I've switched from milky lattés to americano or filter coffee with a small quantity of milk, or sometimes a soya latté when I want a treat. 

I hope your doctor is able to refer you, but if not it might be worth seeing a dietician privately.  It's not like you'll need to see them very often. I think I saw my dietician just four times over 6 months, with maybe a couple of emails in between.  She gave me LOTS of booklets and leaflets on the FODMAP plan which made it a little bit easier. 

Good luck. Please let us know how you get on. 

Bowel accidents

27 Mar 2019 22:21 in response to telemando

Hi Telemando,

Sorry so late in replying to you, I have a virus! I rang my dr who said there would be quite a wait on the NHS to see a dietition so I am going to go private. Things are so bad now, I will do/ try anything just for a normal day. 

I don’t eat any dairy, apart from those plain bio yogourts & I have used soya milk for decades. I do eat lots of fruit though but will happily stop if it helps me leave the house.

I avoid eating bread as somehow that makes my stomach really swell, so much so that I cant fit into my jeans after estimg it so obviously something there that dont agrre with me.

I will let you know how it all goes. Thank you for all your  help.

Molly x

 

Bowel accidents

28 Mar 2019 07:01 in response to Molly33

Hi Molly33.

At least your doctor didn't condemn the idea. It's a pity there's a long wait on the NHS but by going private you're taking control. It seems to me that there are definitely some candidate trigger foods in your diet. Let's hope this is the beginning of taking your life back.  

If you need any encouragement then I'll be here for you.  I've been through the FODMAP process and I know what it's like.  The first couple of weeks are a nightmare, but it gets better once you settle into a routine.  

This isn't strictly a cancer topic, but I suspect that your experiences will prove useful to others.  I don't think the moderators will ask us to take the discussion elsewhere.  Nevertheless, if you prefer to talk privately then feel free to send me a friend request now or any time in the future.