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Another Colposcopy Question

24 Aug 2019 13:13

Hi all, 

My 33 years old wife got her SMEAR over a month ago which indicated that she's HPV positive with abnormal cell changes.(Don't know why however there was no level of changes stated in the SMEAR results letter) 

She's referred to Colposcopy clinic where she got both LLETZ and biopsy done on same day.

Right after 2 weeks we had another letter today asking my wife to take an another visit to Colposcocpy clinic with appointment date and time without any reason stated in the letter. Actually it's the exactly same wording as in previous appointment letter. We still haven't got any biopsy results by the way.

Is it a normal procedure to pay another visit to the doctor which is not written anywhere else? Unfortunately after we got this letter my wife got extremely sad and depressed on the first day of the long weekend holiday, already thinking that she's cancer.

I just would like know if anyone is in same situation as my wife or has experienced similar procedures.

 

What would we expect on the second colposcopy appointment? Is it for discussing the biopsy results and treatments if required or just a routine check after LLETZ?

 

Thank you very much for your responses.

Another Colposcopy Question

27 Aug 2019 15:45 in response to TSEZ

Hello and thank you for posting a question. I  am sorry to learn about your wife's situation. This must be very unsettling for you both.

As you have already suggested, it is not common practice for someone to be called back to the colposcopy department after a LLETZ procedure. So I can appreciate that this unexpected event has caused your wife to have ' an understandable decline'.

I cannot tell you why this has happened, but regardless of why, I do believe that this is something that can be dealt with. I mention this because clearly your wife did not have a visible cervical cancer, when she was seen at colposcopy.  If she had, a LLETZ would not have been carried out.  So I think that a possible worst case scenario, and I must stress that it might not be this, is that she has a very curable microscopic (very early) invasive cervical cancer. This is almost 100% curative often using similar treatments to those that are used for abnormal cells, although follow up is more intensive. But I must stress that this is guess work.

Another possible explanation is that abnormal glandular cells were found.  Most abnormal cervical cells develop in the squamous cells that line the cervix. But the glandular cells higher up can also be abnormal although this is less common. This is called CGIN (Cervical Glandular Intra-epithelial Neoplasia). This sometimes requires a bit more of an extended LLETZ as these cells are higher up. So this is another reason for a possible recall. 

There could of course be another completely different reason, but I have just mentioned a couple of the possible scenarios and not necessarily in the order of suspicion. So, I don't know what will happen when she goes back to the department, but it may be a discussion.

Until you both know, this is bound to be a worry. Although it is easier said than done, try to remember whatever it is, is unlikely to be 'very bad' as nothing was seen at colposcopy.

I hope this helps a little. Do get back to us if you think it might help. If you would like to telephone the number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Kind regards,

Jean

Another Colposcopy Question

10 Sep 2019 10:51 in response to TSEZ

Hi my partner got HPV with Abnormal cervical cells  .Did she had infection in a cervix and did your partner went under general intelligence when have biospy  done .Because my partner cant have general intelligence because it will kill her .I hope reply since need aswer .I hope things went well you and your partner .

Another Colposcopy Question

10 Sep 2019 11:12 in response to CRUK Nurse Jean

Hello Jean,

 

Thank you very much for your reply. It's been highly appreciated.

 

It's being found out that my wife has 1A1 level cancer cells in her cervix after LLETZ and biopsy  so tomorrow she will be undergone a surgery to remove the cancer cells if the subject tissue area is still required more clean up.

 

We don't have a child at the moment and the great news is 6 months after the surgery we may still have a child!

 

I will keep this thread updated about the process in case it might be useful for anyone in our situation.

 

Thanks again!

Another Colposcopy Question

10 Sep 2019 11:16 in response to GrahamS

Hi Graham,

 

No, my wife didn't get any infection after LLETZ and she will be having surgery tomorrow under general anesthetic. Last week, she went to the hospital to get herself examined for general anesthetic which looks OK.

Doctors will carry out the operation under general anesthetic.

I hope my reply helps you? If you still have any question please shot it without any hesitation.

I hope everything goes well with your wife and I wish her get well soon.

 

Thanks.

 

Another Colposcopy Question

10 Sep 2019 14:10 in response to TSEZ

so when doctor  done biospy to partner she was a awake with no general intelligence ? Because reason asking because my partner cant go under general intelligence because it could kill her because of her illness dont mix general intelligence .  Any i hope you and your wife wish best tomorrow i hope she recovery and thanks reply .

Another Colposcopy Question

10 Sep 2019 14:25 in response to GrahamS

Yes, she was awake under local anesthetic while biopsy was being taken.