as I mentioned there is a lot of forums etc out there but this one seems most current. When I have read others with older posts from a few years ago I got really scared with the posts about the burns and side effects, however we must all remember we are all different. When speaking to my nurse/oncologist the machines etc are so much more advanced than even 5 years ago so the older posts aren’t always as relevant- which gave me piece of mind.
i must admit I did shed a tear when the first chemo drug went in knowing there is no going back and it was now real and starting. However apart from the one night of being sick - before new meds I haven’t had a problem with the chemo and coped with the bottle well. I got the strange taste in my mouth but no ulcers etc.We only have it for 4 days so it does go quickly.
As for the radiotherapy I do get my appt sheet and scribble them out after each session. I’m going for number 13 today. I do have a little bit of a sore bum but nothing too bad. After having surgery in November my bum is used to discomfort. When I initially read forums about having piles removed I was very concerned but I seemed to cope better than others so trying to have positive mental attitude that I will get through this!!
Where are you having your treatment?
I’m at Clatterbridge
its going well thank you! Day 8 today! Nothing much to report really. The radio is painless..just laying down and being zapped. It only takes a few minutes but I guess the more I have the signs of side effects may start to show. The 1hour prior to treatment and waiting to go in add to the visit which takes up a big chunk of the day. Have you any dates yet? I finish radio on 28th March and then see consultant 6 th May to see how it all went. Due to the size of my cancer I am concerned it will still be there at the end of my treatment and so not sure if surgery will be the next step...unless I am just being pessimistic. I have met some wonderful people just sat waiting for treatment and it makes you realise you aren’t the only one going through it and they are all as shocked as you are....nobody is except from this it’s really luck of the draw. Being positive and busy helps. I am still working half of the day....driving myself and going to rely on family towards the end should I require it. Let me know when you have news starting. Wishing you all the best..do keep in touch. Best wishes. Mandy x
My treatment is going well so far, only had sickness for one night and not really got any side effects of radiotherapy yet apart from my bum is a little sore but think it’s quite sensitive after op to remove piles. Not feeling particularly tired or nauseous either. As I understand it from asking in hospital things can start to get worse end of week 4 into week 5. Just trying to take it one day at a time. Hope things go as smoothly as possible for you.
The picc line is nothing to worry about, I have had no issues with it. Even when they put it in it doesn’t really hurt as you have injections to numb the site. You have to have it flushed once a week but they do that at hospital. I can sleep properly without it causing any issues.
i hope all goes well for you, the waiting does make everything much harder. Once everything starts time goes quickly and just keep ticking those days off!!
I don' have dates yet. I rang my nurse on Monday she contacted the hospital and the delay was because they were waiting for the results of the endoscopy, which showed nothing amiss at all.
I think your great carrying on with work and driving yourself and everything. I think you always make good friends in situations like these when your all in the same boat.
Look after yourself and keep us updated.
Same as you really, as a say a sore bum but I have found a gel that helps, it’s called StrataXRT, it’s quite pricey but when I use it, it sort of leaves a protective film on my skin that helps me be more comfortable and certainly helps with going to the loo. I just keep ticking the days off. I have my 2nd chemo bottle on Monday until Friday and then the picc line can be removed. Finding time going quite quickly but can’t wait until it’s all over!! Very impressed you are still driving yourself and working, hats off to you. Best wishes xx
yes they checked out the gel, the radiographers and my nurse and consultant. It helps me with the stinging around the bum. The skin really stings when it touches together but it gives me a little protection.
We all need to stay positive and remember we can do this xxxx
I had to ask for topical ointments. There is a prescription lotion that helps the skin heal. There is also a thick ointment that looks like vaseline (A & D ointment). You can't put the ointment on before treatment (I think it might cause the skin to burn more), but it really helped otherwise. It creates a barrier and makes it a lot less painful to go to the bathroom.
I'm sorry you have to delay the chemo, but they should be able to get you back to where you need to be real quick.
Take Care, Sheri