Hi Gillibean and Texas girl
i am now in week 5 of treatment and second week of Chemo. The time has passed surprisingly quickly as I have a 2 hour round trip to the hospital, so that plus treatment time takes up half the day and then all I want to do is sleep once I get home.
It has been had at times and my skin is now very sore and painful. I joke that I am either walking like a penguin or reclining like a Roman goddess!
the first round of chemo was rough as I had very burned hands and feet and a mouth full of ulcers along with almost constant nausea. This time not so bad as they haven’t given me the Mitimycin. Is this usual? I just assumed I would have both drugs again.
I was determined to do this on my own as much as possible and try not to rely on family and friends but after one week of patient transport I gave up and have had a separate family member stay with me for a week at a time to ferry me to and fro and provide company. My family all live at the other end of the country so this has been quite an undertaking but, of course they all did so willingly. My husband is a sheep farmer and so this is his busiest time of year so unfortunately he needs to keep the business running and is not available to help much on a practical level from the point of view of lifts to hospital
I am very grateful for the patient transport volunteers etc but it just didn’t work for me. I didn’t know within a 2 hour period when they would collect me and I didn’t have less than a 2 hour wait after treatment for a lift home. Often it was a taxi firm and I felt guilty for costing the nhs a large taxi fare. Also the nasty chemo side effects were not helping.
I have 7 radio sessions left and an appt a week after Easter to have the Hickman line removed but I’m a bit confused as to what happens after that. Can anyone enlighten me? I am also interested to hear about your experiences of having the line removed, I had a particularly bad experience with the insertion ( after 90 mins of trying the doctor called for a consultant to do it,) so I am feeling very anxious about the removal... although I know it is not as complex as the insertion....
oh dear, I am aware that I am sounding like a right morning so and so.... please put it down to treatment fatigue. I am quite jolly really!!
thank you for your help, sharing of experience and advice
i am off to slather more manuka honey cream on my undercarriage and lie with my legs splayed so that the air can get to the sore bits before by brother ( latest taxi driver) gets up.
oh and I am really glad to hear from you bum cancer veterans that there is a life after all this!