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Anal squamous cell cancer

19 Apr 2018 12:49 in response to lisa1975
Hi Lisa, go and have a chat with the Macmillan people, they might be able to help. I still get my full pay but without shift allowance for 6 months and I've just received a grant off them. They help with travel and clothes expenses. But I do know they can sort out any benefits you may be entitled to. There should be a better way for people to get financial help while going thru cancer treatment, but it's sadly lacking. Sue xx

Anal squamous cell cancer

19 Apr 2018 13:00 in response to lisa1975

Hi Lisa

Sorry that you are fed up but try Macmillan, this gave me a booklet on benefits cancer patients can claim and I’m sure they would help you male a claim too. 

I’m still on full pay at the moment so couldn’t claim anything but that’s ok with me.

hope treatment going well, I’m on day 3 and it’s okish so far I do feel queasy and have heartburn but my main problem is sleep which I think are the steroids, woke up at 2 am today but have had some naps from then to now. I supoose I’m just glad I don’t have to do anything, hubby is looking after me!

take care Lynne.xx

Anal squamous cell cancer

19 Apr 2018 13:05 in response to SandsJ

Hi Sands

good job you noticed something wrong with you eye, my hubby at the end of January had an emergency op as his had become detached, all good now though he is just waiting for final follow appointment and will probably need a change in his prescription. Apparently it’s quite common for those of us who are shortsighted. Another thing to add to the list!

keep smiling Sands you will get there.

Lynne xx

Anal squamous cell cancer

19 Apr 2018 13:23 in response to Lyndylou67

Thanks Lynne glad your hubby doing ok hopefully they got mine in time to get check up next week!

Was just feeling sorry for myself if it’s not one end getting zapped it’s the other

I found helped he sleeping hard as well wide awake during the night then could sleep all day - just you r st as much as you can take care

Sands xx

Anal squamous cell cancer

19 Apr 2018 23:08 in response to lisa1975
Hi Lisa, I am in the same boat as you, my sick pay will run out while I’m off sick and I will have no income of my own. The McMillan ladies are great at Clatterbridge, they helped me and they even filled in my forms for me, it was a huge help. I got a grant from them and they applied for PIP for me. I have had my face to face interview for that and am waiting to hear the outcome of my award. I will get something but don’t know how much yet, and the award is for a year and importantly this payment can continue even when you are doing reduced hours etc on returning to work. I researched loads as I thought it was so unfair I get no other help...as I only work a few hours per week I don’t even qualify for SSP!!! So will be left in trouble. Apparently under the old system I would automatically qualify for ESA however that has finished in my area and been replaced by universal credit which I don’t qualify for as my husband works . Find the whole system VERY unfair. All I can say is try not to worry, we have enough on our plates but Clatterbridge McMillan will help you. All the best to everyone Xxxxx

Anal squamous cell cancer

20 Apr 2018 10:34 in response to L27
Oh and I forgot to add make sure you apply for your medical exemption certificate, it entitles you to free prescriptions for 5 years, as I was hospitalized I ended up needing all sorts of things which would have cost hundreds of pounds xx

Anal squamous cell cancer

22 Apr 2018 05:08 in response to L27

Hi Girls

How is everyone getting on?

I’ve completed my first week of treamtment, was very nauseous but have coped.  Sleeping has been been awful, well at night, I think that is the steroids! Taste and smell have been horrible and I’ve eaten because I’ve had to rather than want to. Everything white, white bread, white rice, porridge etc.

take care xx

Anal squamous cell cancer

22 Apr 2018 10:49 in response to Lyndylou67
Hi Lynne, First of all well done for completing your first week. Keep ticking off those days. The horrible tastes will soon subside and your mouth will feel like your own again. Best wishes xxx

Anal squamous cell cancer

22 Apr 2018 11:22 in response to Lyndylou67
Hiya Lynne, at least your on your way now. I had the bad mouth thing too. No appetite, no taste, furry mouth and gums and ulcers, sexing time around it's not as bad. I've only got 3 radiotherapy sessions left now, but I'm not doing too well today. It's the pooing that causes most trouble. Can't wait to get it finished and maybe feel as tho I'm winning. I take medication for acid reflux and I've found the chemo makes that twice as bad, that's what caused the problems this morning. I still think of you all every day, hoping your all coping ok. Sue xx

Anal squamous cell cancer

22 Apr 2018 11:49 in response to Suzym

Great news Lynne and Sue!

Lynne, one week down! Well done! xx

Sue, wow 3 days to go! Soon be over xx

I’ve got chemo this week, then 4 days of Radio the week after.  I am feeling well in myself, my skin has not broken, wonder if it’s because I used the bidet early on, and cream up every time I use the loo (so approx 8 times a day) I have the softest skin ever haha

It does hurt to go to the toilet properly, and this is quite a few times a day. And the itchiness is still a problem but I take 2 different  anti histamines a day, one in the morning and one later in the evening to help during the night.

Thank you to everyone who replied the other day when I was down about money and my pay. I’ll get some further advice and keep you posted! Hubby said we’ll cope and that he doesn’t want me to worry or get stressed about it and that I’m not going back to work til I’m well enough!  Might be living on bread and water lol

take care everyone xxx

Lisa xx

Anal squamous cell cancer

24 Apr 2018 17:13 in response to lisa1975

Hi girls

Although I’m not on here as much now I’ve been thinking about you all - how are you all doing?

Thats me starting to get ready to go back to work- I have a seasonal job at Glasgow airport and had to leave early last year when I got diagnosed as it’s shift work and couldn’t really fit in with my treatments. 

Usually start in April for the summer but they gave me a later start  date of June - a couple of months ago I couldn’t actually imagine going back but now I can’t wait to get my uniform and the red lippy back on!

So there really is light at the end of the tunnel - hope everyone is going ok and taking care of yourselves.

love Sands x

 

Anal squamous cell cancer

24 Apr 2018 18:01 in response to SandsJ
Hiya Sands, Lovely to hear your going back to work, I moan about my job but I do miss my work mates so much, it's the last day of my treatment tomorrow...soooo excited! Sue xx

Anal squamous cell cancer

24 Apr 2018 19:38 in response to Suzym

Awh Sue that’s amazing 96% done!

Just make sure you look after yourself over the next few weeks - I thought I’d be back to “normal” straight away but was so very tired so just take it easy.

At the Beatson you rang a bell after your last treatment - hope they do that at your hospital it’s such a fabulous feeling.

Good luck for tomorrow and let us know how you’re doing

Sxx

Anal squamous cell cancer

24 Apr 2018 19:47 in response to SandsJ
Hiya sands, Thanks for your message, yes we have a bell and in the chemo dept. So I will ring it in the morning. I will look after myself, I've got all my cream and loads of morphine gel, and today I was given a fridge full of protein shakes too because my appetite is non existent at the moment, once the chemo gets out of my system it will come back. Can't believe I've nearly finished, looking back the time has flown. I will keep in touch. Sue xx

Anal squamous cell cancer

25 Apr 2018 08:41 in response to Suzym
Hi Sue, I’m so happy for you that your treatment is nearly over, no more daily visits to hospital really makes a huge difference. Get yourself prepared with tissues for ringing the bells, I found it very emotional especially the radiotherapy one, it was so heart warming that everybody in earshot stops and claps to celebrate with you and wish you well. Well done for getting nearly at the end. Take care and best wishes xxxx