great to meet you the other day I m not on here much at the moment but have been thinking of you , what time are you having your pic line in on Monday? I ve been up there every day visiting text me if you want to meet up for coffee in Macmillan love Gilliebean x
have been thinking about you all and hope that you are all coping in your various stages ,I m getting stronger everyday but it does take it's toll! If anyone gets the acid reflux ,I have found purely by accident really that a protein shake works ,I take lansoprazole when I wake up and wait at least half hour ,then have a Cambridge shake ,chocolate works for me but not with laxative as they do several ! I add twice the ammount of water and blend it then sit and drink it slowly I wait at least half an hour before I have a cup of tea and then just be sensible with the eating tomatoes seemed to be setting it off so I m leaving them our for now ,I don't eat meat and I would advise not to have cheese as it's a strong flavour . I seem to be good for the rest of the day and take Gaviscon before bed. One day I did a test and didn't have the shake and it came back! Obviously the shake is not for dieting I had them in the cupboard as I use them when I am away so that I know I m getting all the necessary vitamins. I swear there is something in them that settles or lines the stomach ,I was suffering so much and tried one to see if I could keep it down as I was bringing every thing up and couldn't believe it when it worked! Maybe if you don't try that one you could try another make it has to be worth a go! Hope it works for someone else! Anyway I have some family issues just now with a sick relative so that's why I ve been quiiet unfortunately it's the dreaded cancer again! So am up the hospital most days .love to you all and best of luck to you Lynne for Tuesday call me if you need me! Love Gilliebean x
Just a quick message to say good luck, been thinking about you today. Today is the first step to recovery and beating this thing. We’re here for you! Keep us posted.
Sounds like you had a lovely last day of work and had some very thoughtful gifts. You’re obviously highly thought of.
Lots of love
thank you have butterflies the size of elephants! Just getting ready now. Will let you know how my first week goes,already have slapped on the calendula cream I was given.
well here goes....eeek!
How is everyone?
I'm feeling miserable today! Just received a curt letter from Payroll saying that my full pay ceased on the 13th April and my half pay will cease on the 13th June.
The last thing I need right now is money worries and now it means I’ll possibly be returning to work way before I am ready and well enough! Not happy!
Trouble is, I know at some point I will be having further treatment for this liver secondary, but I don’t have a clue, how long off that is, what they’ll do and how long i’ll need to recover after that!?! Just fed up.
Thats not so good last think you want to worry about. I know they’ll say oh it’s standard letters but really a wee belter t of compassion and common sense should be used. At the Maggies I go to there are benefit advisors who help you see if you are entitled to any benefits while you are unable to work - I think MacMillan offer a similiar service it is definitely worth checking out and one man I know gets a work pension but was also entitled to a benefit - can’t remember the name of it - do you have any of those services near you?
I think they make it really difficult to put people off so if you can get help I’d try.
How are you doing apart from that?
Ive had a rubbish week too - I’d b en getting wee floaters in my eye for the last few weeks and kept getting it checked and told they’d go away but on Tuesday my optician had a more detailed look and sent me straight to the eye hospital where they found two wee tears in my retina so had to get it lasered there and then!
Honestly if it’s not one thing it’s another so Iwas feeling pretty sorry for myself :-(( but then I remember that my treatment is over and I’m in remission so gave myself a shake and getting on with it lol!
you take care and see if you can get any advice
Sorry that you are fed up but try Macmillan, this gave me a booklet on benefits cancer patients can claim and I’m sure they would help you male a claim too.
I’m still on full pay at the moment so couldn’t claim anything but that’s ok with me.
hope treatment going well, I’m on day 3 and it’s okish so far I do feel queasy and have heartburn but my main problem is sleep which I think are the steroids, woke up at 2 am today but have had some naps from then to now. I supoose I’m just glad I don’t have to do anything, hubby is looking after me!
take care Lynne.xx
good job you noticed something wrong with you eye, my hubby at the end of January had an emergency op as his had become detached, all good now though he is just waiting for final follow appointment and will probably need a change in his prescription. Apparently it’s quite common for those of us who are shortsighted. Another thing to add to the list!
keep smiling Sands you will get there.
Thanks Lynne glad your hubby doing ok hopefully they got mine in time to get check up next week!
Was just feeling sorry for myself if it’s not one end getting zapped it’s the other
I found helped he sleeping hard as well wide awake during the night then could sleep all day - just you r st as much as you can take care
How is everyone getting on?
I’ve completed my first week of treamtment, was very nauseous but have coped. Sleeping has been been awful, well at night, I think that is the steroids! Taste and smell have been horrible and I’ve eaten because I’ve had to rather than want to. Everything white, white bread, white rice, porridge etc.
take care xx
Great news Lynne and Sue!
Lynne, one week down! Well done! xx
Sue, wow 3 days to go! Soon be over xx
I’ve got chemo this week, then 4 days of Radio the week after. I am feeling well in myself, my skin has not broken, wonder if it’s because I used the bidet early on, and cream up every time I use the loo (so approx 8 times a day) I have the softest skin ever haha
It does hurt to go to the toilet properly, and this is quite a few times a day. And the itchiness is still a problem but I take 2 different anti histamines a day, one in the morning and one later in the evening to help during the night.
Thank you to everyone who replied the other day when I was down about money and my pay. I’ll get some further advice and keep you posted! Hubby said we’ll cope and that he doesn’t want me to worry or get stressed about it and that I’m not going back to work til I’m well enough! Might be living on bread and water lol
take care everyone xxx
Although I’m not on here as much now I’ve been thinking about you all - how are you all doing?
Thats me starting to get ready to go back to work- I have a seasonal job at Glasgow airport and had to leave early last year when I got diagnosed as it’s shift work and couldn’t really fit in with my treatments.
Usually start in April for the summer but they gave me a later start date of June - a couple of months ago I couldn’t actually imagine going back but now I can’t wait to get my uniform and the red lippy back on!
So there really is light at the end of the tunnel - hope everyone is going ok and taking care of yourselves.
love Sands x
Awh Sue that’s amazing 96% done!
Just make sure you look after yourself over the next few weeks - I thought I’d be back to “normal” straight away but was so very tired so just take it easy.
At the Beatson you rang a bell after your last treatment - hope they do that at your hospital it’s such a fabulous feeling.
Good luck for tomorrow and let us know how you’re doing
Sue So happy for you!
im on day 7 of radiotherapy, just getting myself sorted now. I gone from going to the hospital nicely dressed to now wearing jogging bottoms! I have at least brushed my hair.
it so nice to hear that your life is getting back to normal, gives me hope as at the moment I don’t feel it will ever be normal again!
25% done already! I know you feel it’ll never end and you’ll never get back to normal - but you will - jiggly bottoms are a MUST!
you take care and be kind to yourself xx
so pleased for you now rest and take it easy xx
Hi Sue, That sounds good! Take it easy and don't rush....you'll be surprised how quickly you start to heal. One minute I was sore, sitting on my potty and dosing front and back with water because it was painful....now less than a month later I have totally healed and its been like that for nearly a fortnight. I don't even feel that tired anymore....its early days but you'll be surprised how quickly the body recovers from such grueling treatment..take care and wishing you and all the girls on this site well for the future. Love Mandy x
Awh Sue that made me laugh - I’d forgotten about the “knickerless” dats :-))
Mandys right you’ll be surprised at how quickly you heal!
i was at the Maggies today catching up with the guys I’d met on the course and we had an excercise and boxing session was great - although I’m pretty knackered now but it’s a “happy tired”
Great to hear your doing ok Mandy and sue , Lynne into your 3 rd week now end of this week you ll be half way there! And Sandra great to hear you are getting more active! Sherri you ll get there in the end and Janelucia you were brave enough to start off this thread in the beginning how are you doing?
Thinking of you all Gilliebean x
Tough few days both physically and emotionally.
Had bad diarrhoea for 4 days, skin has broken at bum, just inside my lady bits and up both sides of my groin, thrush in my mouth(again).
Tired and fed up, getting some tablets for the thrush later today, was given polymen dressing last night for my skin, told to take one Imodium for the diarrhoea, and told to alternate paras and ibuprofen for the pain.
Used the dressings last night, fiddly as you have to cut a piece and fold it and put it in between your bum cheeks then cut some for your groin that stays in place with your knickers. Not ideal but does seem to have given some relief.
The Imodium seems to have worked.... touch wood!
just need to get through the next few days
Radio number 26 today, so will be bell ringing in Thursday afternoon, Yay
hope everyone is doing ok.
I’ve lasted well before my skin breaking, I know everyone is different but moisturise as often as possible, never too much. Do it right up between your bum cheeks and your groin. Use a bidet early on and ditch toilet paper early on.
Get some men’s stretchy boxer shorts so you don’t have any knickers lines on your groin to irritate it.
Take piriton daily for any itching.
These are probably my key pointers to get through this treatment, hope you’re doing good well.
Sue, I hope recovery is going well for you?
Hugs to all the other lovely ladies on here, hope all is well.
its sound a complete nightmare. I’ve completed day 11 appear to be over the effects of the chemo, although still a bit of diarrhoea it was really bad last week, even had an accident last Tuesday at the hospital I was mortified! But the radiographers were really kind and tried to put me at ease.
My bottom is just starting to get sore, was given morphine gel today to help. I have ordered some men’s cotton boxers waiting for them to arrive. I have been moisturing every day but I haven’t used my Potty yet, although been bathing.
You are nearly there Lisa, I hope that it will be better for you soon.
Sorry to hear that you are having a rough time of it. You are in the most painful week. Thursday is just around the corner so hang in there. I wanted to tell you and Lynne that I had a really hard time with diarrhea (8 days uncontrollable). I finally got a nurse that suggested that I completely stop all food until the diarrhea stopped and to slowly introduce bland food. I only allowed myself about 1/3rd of a banana when taking pain meds. It took a couple of days and I was really hungry, but it was worth it. So that's an option should you get it again. The problem I find with Immodium is that it makes me constipated even just taking two and then it's really painful and becomes a vicious circle.
Sue, I'm so glad you are starting to feel better.
Yay, I finished my treatment on Thursday and I rang the bell! Follow up appointment in one month and he’ll book my liver scans then.
Very sore down below and I’m just not fussed on the Polymem dressings as they make the area hot which I find even more irritating, so using nothing apart from pain relief. Clatterbridge and the trust they are in don’t allow the use of creams or gels, only aquamax and the Polymem dressings!
Can anyone recommend any over the counter products?
hope everyone is doing well xxx