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Alarming news: NHS trusts may be blacklisting NICE-approved drugs as they¿re too expensive

25 Nov 2011 10:50

Cancer drugs approved by the National Institute for Health and Clinical Excellence (NICE) have been banned by some UK health trusts because they are too expensive, according to an investigation by GP newspaper.

Click here to read all about it

We say further investigation is needed...what do you say?

Re: Alarming news: NHS trusts may be blacklisting NICE-approved drugs as they¿re too expensive

26 Nov 2011 14:39 in response to Moderator Sarah

I think this is absolutely shocking and should not be legal. 

My mother has recently been diagnosed with Lung Cancer which is inoperable but treatable with chemo and radiation.  The idea that some parts of the country might treat her with the best options but others would not on a cost basis makes me extremely angry.  My family are conscientious tax payers - we do not grudge tax - we believe in the ideas it funds like a Health Service free at the point of contact.

I have never appreciated this so much since my mum was diagnosed a few weeks ago and I reflected on how stressful it must be in America having to check if your treatment will be paid for by your Insurance, that is if you have any - millions don't.  The Cancer itself is so overwhelming individuals and families should not have to worry about getting the best treatment.  It should be a given.

New cancer treatments save and extend the lives of people who make huge contributions to society, like my mum the carer. That is what an NHS is all about, is it not?  Saving lives and looking after its citizens.

These decisions should not be left to NHS trusts.  Its a bit like leaving the bankers to regulate themselves.  And what a mess that left us in.

Thank you, Cancer Research for being here, and keeping  a watchful eye on issues like these.  I never fully appreciated the work you do until now.  My mum will be entering one of the trials of Chemoradiation you are funding.

You really make a difference.

J

Re: Alarming news: NHS trusts may be blacklisting NICE-approved drugs as they¿re too expensive

26 Nov 2011 23:25 in response to Moderator Sarah

Yes it is shocking and I'm very sorry for anyone who is affected by these decisions.  Of course it should be investigated further but it is not entirely surprising - NHS resources are always being rationed for lack of funding  - there have been cases in the courts haven't there where the decisions of NHS trusts to withold life saving treatment on the grounds it is too expensive have been upheld.  Why else do we have a shortage of scanners and have to wait so long to see consultants. The postcode lottery is surely a result of decentralisation and is likely to get far worse if the privatisation of the NHS is pushed through by this government .  No profit making company will pay more then they have to for drugs - unless they know they can claim it back with profit from the taxpayer of course.

Jan

Re: Alarming news: NHS trusts may be blacklisting NICE-approved drugs as they¿re too expensive

28 Nov 2011 13:29 in response to J33

HI janojan and J33

Thank you both for your views on cancer drug blacklisting and also J33 for your kind words about Cancer Research UK. We hope your mum benefits from the chemoradiation trial. You can read more on lung cancer here on our patient information website Cancer Help UK. This link takes you to our page on clinical trials.

Best wishes

Jane

Re: Alarming news: NHS trusts may be blacklisting NICE-approved drugs as they¿re too expensive

4 Jan 2012 23:17 in response to janojan

Befoer I was diagnosed Mum and I were thinking of moving back down south my local hospital there is Colchester. I am about to start Avastin at Wansbeck and thought i would enquire about transfering my treatment, well it seems that I will have to stay here as they do not prescribe it down there n0or do any of the other local hospitals ,I am waiting to see if thy would do so if im already on it, but im not holding my breath so  it looks like im oop here to stay although I must say the people are lovely and I cann0ott fault the Wansbeck hospital either

Re: Alarming news: NHS trusts may be blacklisting NICE-approved drugs as they¿re too expensive

4 Jan 2012 23:51 in response to Moderator Sarah

It is the government at the bottom of this there is no doubt, yet we can support half asleep politicians to have second homes, have they taken a 20% cut in their expenses, like the pensioners heating allowances, NO!

London can spend over a million pounds in 15minutes sending fireworks into the air on New Year, but cancer patients drugs are too expensive. This government is a joke!

Who I wonder will be funding a similar display for the Queens Diamond Jubilee, the same government no doubt. cougar69