Hello Tina. we have not spoken before but I have done all sorts of searches on this site for anyone with epiglottis cancer which I have been diagnosed with and the only one that came up was your husband.  Was very pleased to hear he got the all clear then this post appeared yesterday, I dont know what to say to support you, the pair of you must be having an awful time.  My thoughts and prayers are with you, keep us posted of his results.  My original surgery was postponed as they saw a suspicious area on my lung but after PET scan Lung team are apparently not overly concerned and want to see another scan in 3 months, so hope yours is similar and its just them being careful.  Take care

Love Mo

Hi Guys my husband was diagnosed with epiglottis cancer in nov 18, he finished treatment in Jan this year. A pet scan was arranged earlier than usual as he had a few lumps in his chest , his epglottis and nodes in neck where all free of cancer but the lumps where suspicious so a biopsy was arranged, days before this was due his heart filled with fluid needing an emergency procedure to remove 2 pints of fluid from his heart. We was then informed the fluid they removed contained the squamous cell carcinoma. So weve been told theres not much more they can do, he could have chemo to extend his life but it could make him poorly and probably wouldnt be suitable because of the now heart problems! Back to the hospital tomorrow................ x 

I am so sorry to hear that, love and thoughts are with you.  What treatment did he have for the Epiglottis, it seems to be quite rare and your story seems to have happened very quickly.  Good luck at the hospital tomorrow.

Love Mo

The pace at the minute is speeding even though i feel like im stood still just watching as it passes me by,, if that makes sense ? Treatment was 6 week of radio and 3 lots of chemo but only had 2 chemos as it was delayed at the beginng due to shadow showing on lung which was treated as an infection. I have a feeling the lungs will be mentioned tomorrow x 

hi wicks03 

I don’t have any experience in the cancer your husband has but I couldn’t read your post and say nothing. I’m so sorry you, your husband and family are having to deal with this. It is such a cruel disease. My mum went through chemo to extend her life and will shortly start this horrible treatment again, with no cure.

I wish your husband, you and your family hope and strength. 

Rebecca x