What difference does patient involvement make?
By working together with people affected by cancer, we’re increasing our understanding of cancer, keeping research grounded in the needs of patients and ensuring that all our work has a clear and significant benefit for patients.
We are already seeing the difference that people affected by cancer are making by taking part in involvement activities. They’ve been involved in developing a range of projects and campaigns in a number of fields from clinical and population research to the development of our cancer policy and patient information.
Pat is passionate about early prevention and detection. As one of our new patient sounding board members, she tells us what getting involved has been like so far.
Alongside other patient representatives, Debby helped us review plans for patient involvement in funding applications this September.
Paul's motivation for being involved
Paul first got involved in our work after being treated for testicular cancer (primary and secondary) during 2011-12. Read about his experience and why he feels it’s so important for patients to be involved.
How Sue got involved
We’re coordinating an audit looking at the contact people have with the NHS prior to being diagnosed with cancer. Sue, one of the patient representatives on the project’s steering group, tells us about her role and how she got involved.
What involvement means to Terry
Terry is a member of our Grand Challenge Patient Panel. He tells us what it means to him be able to shape our work and how he feels patient contributions can make a difference.
Debbie has used her professional skills as well as her experience of cancer to help influence our work through her role as a sounding board member. She tells us why, as a cancer patient, she feels patient involvement is so important.
Jim's first experience of getting involved
Jim atteneded a workshop run by CRUK and Macmillan Cancer Support this May. He tells us about why he got involved and how he found his first experience of getting involved to help shape our work.
How Mike got involved
Mike attended one of the Cancer Taskforce patient workshops in Newcastle. Since then, he's drawn on his experience to shape some exciting pieces of work at Cancer Research UK. He shares his experience being involved in the Cancer Taskforce, why it was important to him and how he feels his voice made a difference.