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What to ask your doctor about living with soft tissue sarcoma

Men and woman discussing soft tissue sarcomas

Some questions you might ask your doctor

  • How will my treatment affect me?
  • I live alone - how will I manage when I come out of hospital?
  • Is it possible to get a stay in a convalescent home or hotel?
  • How do I get to see the social worker here?
  • Is there anything I shouldn’t do after limb sparing surgery?
  • What should I do if I am concerned about my arm / leg?
  • If I need an amputation, when will I get a limb prosthesis?
  • Will I have to pay for a prosthesis?
  • Who will help me get used to the prosthesis?
  • Do I need any special rehabilitation?
  • How often will I need a new prosthesis?
  • What problems should I look out for with my prosthesis?
  • Will I ever get back to normal, or will I have some long term effects?
  • Will I be able to go back to work?
  • Where can I get help with claiming benefits and grants?
  • What practical help is available?
  • Where can I get help dealing with my feelings?
  • Can you refer me for counselling?
  • Do I have to pay for counselling?
  • Could you refer me to a specialist nurse?
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