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Bowel cancer organisations

 Men and women discussing bowel cancer

This page gives information about organisations and websites that help and support people with bowel cancer.

 

Using this page

The websites listed on this page are valuable sources of detailed information about bowel cancer. They may use more technical terms, longer pages and fewer images than we do.

We also have a page with details of general cancer support organisations. We have information about counselling organisations in the counselling section.

 

Cancer Research UK information and support

Cancer Research UK
Angel Building
407 St John Street
London EC1V 4AD

Helpline: 0808 800 40 40
Admin phone number: 020 7242 0200
www.cancerresearchuk.org

Cancer Research UK is the largest cancer research organisation in the world, outside the USA. It is the European leader in the development of new anti cancer drugs. It funds research on all aspects of the disease from its causes, to treatment and prevention.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through our website, which includes patient information and news and resources and through our range of health awareness leaflets.

If you have a question about cancer, and you are in the UK or Ireland, you can contact our team of specialist cancer information nurses using this form, or by calling freephone on 0808 800 40 40.

If you would like to talk to someone affected by cancer, share experiences or find information, you can visit our Cancer Chat forum.

 

Support and information organisations

Beating Bowel Cancer
Harlequin House
7 High Street
Teddington
TW11 8EE

Nurse advisory line: 08450 71 93 01 (Mon to Thurs, 9am to 5.30pm – Fri, 9am to 4pm)
Website: www.beatingbowelcancer.org
Email: info@beatingbowelcancer.org
Nurse Email: nurse@beatingbowelcancer.org

This organisation raises awareness of the symptoms of bowel cancer and offers support to people who are affected. You can contact them on the number above and they will be happy to send you some written information. You can also chat to other people affected by bowel cancer via their Facebook page.

The Bobby Moore Fund
Cancer Research UK
407 St John Street
London
WC1V 4AD

Phone: 020 7009 8881
Email: bmf@cancer.org.uk

Founded by Bobby Moore's wife, in partnership with Cancer Research UK, this organisation raises money for research into bowel cancer and aims to raise awareness of the symptoms so that people are diagnosed earlier. You can find out more from the Bobby Moore Fund website.

Bowel Cancer UK
Willcox House
140 – 148 Borough High Street
London
SE1 1LB

Website: www.bowelcanceruk.org.uk
Phone: 020 7940 1760
General enquiries email: admin@bowelcanceruk.org.uk

Bowel Cancer UK raise awareness of bowel cancer and campaign for better treatments and care. They provide information about bowel cancer through their website and leaflets.

Pelvic Radiation Disease  Association
PO Box 602
Epsom
KT17 9JB

Phone: 01372 744338
Email: info@prda.org.uk
Website: www.prda.org.uk

A patient led group which aims to promote understanding about pelvic radiation disease which is a late effect of radiotherapy treatment. They offer support to patients and campaign for more research and better treatment for this condition.

Disability Rights UK
12 City Forum,
250 City Road,
London EC1V 8AF

Phone: 020 7250 3222
Textphone: 020 7250 0212
Fax: 020 7247 8765
Website: www.disabilityrightsuk.org
Email: enquiries@disabilityrightsuk.org

National disability organisation. Formed in January 2012 through a merger of Disability Alliance, RADAR (Royal Association for Disability Rights) and National Centres for Independent Living. They provide a number of helplines for a variety of issues.

Macmillan Cancer Support
Head Office
89 Albert Embankment
London
SE1 7UQ

Helpline: 0808 808 0000 (Mon to Fri, 9am to 8pm – information is available in other languages)
Textphone: 0808 808 0121
Website: www.macmillan.org.uk

Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run a helpline providing cancer information and benefits advice. 

The Colostomy Association
Enterprise House
95 London Street
Reading
RG1 4QA

Tel: 0118 939 1537
Helpline: 0800 328 4257(24 hrs a day, 7 days a week)
Website: www.colostomyassociation.org.uk
Email: cass@colostomyassociation.org.uk

The UK support group for people with a colostomy. It provides information and support to anyone who has or is about to have a colostomy.

IA - The ileostomy and internal pouch support group

Peverill House
1–5 Mill Road
Ballyclare
BT39 9DR
Co. Antrim
Northern Ireland

Freephone 0800 018 4724
Fax: 028 9332 4606
Email: info@iasupport.org
Website: www.iasupport.org

Helps anyone who needs or has had an ileostomy or internal pouch. Has a network of branches throughout the UK which give advice, information leaflets, and home and hospital visiting. The website hosts forums for discussion. The organisation has a membership fee.

CORE
3 St Andrews Place
Regent Park
London
NW1 4LB

Tel: 020 7486 0341
Website: www.corecharity.org.uk
Email: info@corecharity.org.uk

CORE produce information and leaflets on common digestive diseases and illnesses, including bowel cancer.

Sexual Advice Association
Suite 301, Emblem House
London Bridge Hospital
27 Tooley Street
London
SE1 2PR

Telephone 0207 486 7262 (Mon, Wed and Friday, 9am to 5pm)
Website www.sda.uk.net
Email: info@sexualadviceassociation.co.uk

Information about sexual problems that can affect men and women. They provide lists of local specialist practitioners, as well as factsheets on problems such as erectile dysfunction (impotence).

Familial Adenomatous Polyposis Support
Phone: 0121 627 2630

A telephone support group for anyone affected by Familial Polyposis. Gives information in English, Urdu and Punjabi.

FAP Gene Support Group
Website: www.fapgene.com

This is a support group for those with the Familial Adenomatous Polyposis gene. 

 

Continence organisations

Bladder and Bowel Foundation
SATRA Innovation Park
Rockingham Road
Kettering
Northants
NN16 9JH

Phone: 01536 533255
Nurse helpline: 0845 345 0165
Email: info@bladderandbowelfoundation.org
Website: www.bladderandbowelfoundation.org

The Bladder and Bowel Foundation formed in 2008 from the former organisations Incontact and the Continence Foundation. It supports people living with bladder and bowel disorders.They have a confidential telephone helpline which is staffed by specialist continence nurses and physiotherapists. They can also give you information about stoma products. Has a 'Just can't wait' card to allow holders access to toilets in shops and pubs etc.

Medical Advisory Service
PO Box 3087
London W4 4ZP

General Medical Helpline: 020 8994 9874 (7 days a week 6pm to 8pm)
Email: info@medicaladvisoryservice.org.uk
Website: www.medicaladvisoryservice.org.uk

The Medical Advisory Service offers information and advice on medical and health care matters.

 

Suppliers of stoma appliances

Charter Healthcare Ltd
Peterborough Business Park
Peterborough
PE2 6FX

Phone: 0800 132 787
Scottish Customers Freephone: 0800 917 8639
Email: gbccare@coloplast.com
Website: www.charterhealthcare.co.uk

Delivers supplies of prescription colostomy and ileostomy equipment to people's homes.

Convatec Ltd
Harrington House
Milton Road
Ickenham
Uxbridge, UB10 8PU
Telephone for stoma care: 0800 282254 (Monday to Friday 9am to 5pm)
Email: stoma.webcare@convatec.com
Website: www.convatec.co.uk/stoma-care

Delivers supplies of prescription colostomy and ileostomy equipment. Also gives information on all areas of stoma care. Has a helpline for anyone who has a stoma.

Hollister Ltd
Rectory Court
42 Broad Street
Wokingham
Berkshire
RG40 1AB

Phone: 0800 521377 (Customer Care team)
Website: www.hollister.com/uk/ostomy/

A company that provides products for people with stomas. They have a delivery service for prescribed appliances.

Ostomy Covers by Linda
Linda Butler
2 Holmes Road
Kirton End
Boston
Lincs
PE20 1SP

Phone: 01205 723327
Email: lindabutler59@hotmail.com
Website: www.ostomycoversbylinda.co.uk

Handcrafted covers made to fit every size of ostomy bag or pouch following surgery resulting in a stoma, ie ileostomy, colostomy or urostomy. The covers come in a wide range of fabrics and are specifically tailored to fit each individual stoma bag.

Rusch UK
Stirling Road
Cressex Business Park
High Wycombe
HP12 3ST
Buckinghamshire

Phone: 01494 532761
Fax: 01494 524650

Makers and suppliers of colostomy and ileostomy appliances and equipment.

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Updated: 10 February 2014