Bone cancer organisations
This page gives information about organisations and websites that help and support people with bone cancer.
The websites on cancer listed on this page are valuable sources of detailed information about cancer. They may use more technical terms, longer pages and fewer images than this website.
You can find details about general cancer support organisations. We also have information about counselling organisations in the counselling section.
Cancer Research UK
Angel Building
407 St John Street
London EC1V 4AD
Admin phone number: 020 7242 0200
http://www.cancerresearchuk.org
Cancer Research UK is the largest cancer research organisation in the world, outside the USA. We are the European leader in the development of new anti cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through our website, which includes patient information and news and resources, and through our range of health awareness leaflets.
If you have a question about cancer, and you are in the UK or Ireland, you can contact our team of specialist cancer information nurses using this form, or by telephoning freephone 0808 800 40 40.
If you would like to talk to someone affected by cancer, share experiences or find information, you can visit our Cancer Chat forum.
Macmillan Cancer Support
Head Office
89 Albert Embankment
London
SE1 7UQ
Macmillan CancerLine: 0808 808 0000 (Mon to Fri, 9am to 9pm; information available in other languages)
Textphone: 0808 808 0121
Email: cancerline@macmillan.org.uk
Website: www.macmillan.org.uk
Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run helplines providing cancer information and benefits advice.
National Cancer Institute
NCI Public Inquiries Office
6116 Executive Boulevard
Suite 300
Bethesda, MD 20892-8322
Email: cancergovstaff@mail.nih.gov
Website: http://www.cancer.gov/
The NCI is an American research organisation which also provides information about cancer and it’s treatment for people in the States.
Limbless Association
Jubilee House
3 The Drive
Warley Hill
Brentwood
CM13 3FR
Telephone: 01277 725182
Helpline: 0845 230 0025
Fax: 01277 725 001
Website: www.limbless-association.org
Encourage support groups, produce quarterly magazine and publications, provide information and advice for people of all ages who have had amputations or who suffer congenital limb loss.
Sarcoma UK
49-51 East Road
London
N1 6AH
Telephone: 020 7250 8271
Email: info@sarcoma-uk.org
Website: www.sarcoma-uk.org
This is a support organisation for people with bone or soft tissue sarcomas. They run a website with an email support network and produce a newsletter. There is some brief information about sarcomas on this site.
Bone Cancer Research Trust
Suite 7
Gledhow Mount Mansion
Roxholme Grove
Leeds
LS7 4JJ
Tel: 0113 262 1852
Fax: 0113 262 5391
Email: info@bonecancerresearch.org.uk
Website: http://www.bonecancerresearch.org.uk
Aims to provide information, support and, in the longer term, counselling services for those suffering from primary bone cancer, and their families, and to promote research into the causes and treatment of primary bone cancer, in particular of osteosarcoma and Ewing’s sarcoma.
ROHBTS
c/o Ward 11
Royal Orthopaedic Hospital
The Woodlands
Oncology Office
Bristol Road South
Birmingham
B31 2AP
Phone: 01584 875 891 (Family support)
ROHBTS was set up in 1989 as a self help group for parents of children with bone cancer. They have now extended their support to all patients that are treated at Woodlands (ROH) as well as offering support for adults with sarcoma.
Teenage Cancer Trust
3rd floor
93 Newman Street
London
W1T 3EZ
Phone: 020-7612 0370
Email: tct@teenagecancertrust.org
Website: https://www.teenagecancertrust.org/
A charity devoted to improving the lives of teenagers and young adults with cancer. They run a support network for young people with cancer and their friends and families. They also raise funds to build dedicated teenage cancer units in hospitals.
Macmillan Cancer Support - Cancer Info for teens and young adults with cancer (formerly Teen Info on Cancer - TIC)
Website: www.macmillan.org.uk/Cancerinformation/teensandyoungadults/Infoforteensandyoungadults.aspx/Home
Macmillan Cancer Support has a separate section on their website for teenagers and young adults with cancer. It offers advice and support on how to cope with cancer, and the chance to share experiences of cancer with other teenagers.
Disabled Living Foundation
380-384 Harrow Road,
London W9 2HU
Phone: 0845 130 9177 (helpline Mon to Fri 10am - 4pm)
Phone: 020 7289 6111
Email: info@dlf.org.uk
Website: www.dlf.org.uk
The Disabled Living Foundation run a national helpline, an email and letter advisory service, and an equipment demonstration centre, providing solutions for independent living.
RADAR
12 City Forum,
250 City Road,
London EC1V 8AF
Phone: 020 7250 3222 (Mon to Thu 10am - 4pm)
Email: radar@radar.org.uk
Website: www.radar.org.uk
National disability organisation, with an information and advice service. Formed in 1979 as the Royal Association for Disability and Rehabilitation. Campaigns for disabled people's rights.
Association for Children with Hand or Arm Deficiency (REACH)
PO Box 54
Helston
Cornwall
TR13 8WD
Phone: 0845 130 6225
Email: reach@reach.org.uk
Website: www.reach.org.uk
Offers contact and support for families of children with deformities or difficulty using their hand or arm. Supports research into causes and treatment of upper limb deficiency.
Autono-Med Ltd
Bowcliffe Hall
Wetherby
West Yorkshire
LS23 6LP
Phone: 0870 041 0150
Website: www.autonomed.co.uk
This commercial company makes waterproof covers for dressings or casts on arms and legs. This means you can go swimming or take a bath or shower without worrying. They can also be used for PICC lines. Ask your specialist or nurse about getting one on the NHS or you can buy one direct from the company.







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