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Statistics and outlook for persistent disease and choriocarcinoma

Men and women discussing gestational trophoblastic tumours

This page is about statistics and what they can tell us about the outlook for people with persistent trophoblastic disease and choriocarcinoma. These are types of gestational trophoblastic tumour (or GTT for short). There is information about

 

A quick guide to what's on this page

Statistics and outlook for persistent disease and choriocarcinoma

Persistent trophoblastic disease (PTD) and choriocarcinoma are types of pregnancy related tumour known as gestational trophoblastic tumours (GTT). Prognosis means the likely outcome of your disease and treatment. In other words, your chances of getting better.

The statistics we present here are pulled together from a variety of different sources, including the opinions and experience of the experts who check this section of Cancer Research UK's patient information. We provide statistics because people ask us for them. But they are only intended as a general guide and cannot predict what will happen in your individual case.

With gestational trophoblastic tumours, the outlook is generally very good and most women are cured. Even so, not everyone wants to read this type of information. If you don't want to read it, you can skip this page. You can always come back to it later.

 

CR PDF Icon You can view and print the quick guides for all the pages in the treating persistent trophoblastic disease and choriocarcinoma section.

 

 

About the information on this page

On this page there is quite detailed information about the survival rates of different stages of gestational trophoblastic tumours. We have included it because people ask us for this. Not everyone who is diagnosed with a cancer wants to read this type of information, even though in the case of GTT, it is generally good news. If you are not sure whether you want to know at the moment, you might like to skip this page for now. You can always come back to it.

 

General cancer statistics

Unless you are very familiar with medical statistics, you may find it helpful to look at our section about different types of cancer statistics before reading the information below.

Please note that the statistics we present here are pulled together from a variety of different sources, including the opinions and experience of the experts who check each section of Cancer Research UK's patient information. We give statistics because people ask us for them. But they are only intended as a general guide and can't tell you what will happen in your individual case.

Remember that statistics are averages based on large numbers of patients. They cannot predict exactly what will happen to you. No two patients are exactly alike and how well treatment works also varies from one person to another. You should feel free to ask your doctor about your prognosis, but not even your doctor can tell you for sure what will happen.

Doctors often use the terms 5 year survival or 10 year survival. This does not mean you will only live 5 or 10 years. It relates to the number of people who are alive 5 or 10 years after their diagnosis. Doctors follow what happens to people for at least 5 or 10 years after treatment in any research study. This is so that they can compare the results of different treatments. So they use the term 5 year survival or 10 year survival.

 

Outlook by risk group

Chemotherapy works very well in most people with persistent trophoblastic disease and choriocarcinoma. Women needing chemotherapy for these conditions are divided into two different risk groups

Overall, 98% of women are cured. Women with low risk disease have a cure rate of 100%. With high risk disease, which is mainly women with choriocarcinoma, more than 80 to 90% are cured.

 

Risk of future GTT

Most women can go on to have a normal pregnancy after persistent trophoblastic disease or choriocarcinoma. If you have already had one molar pregnancy, you have about a 1 or 2 in 100 chance (1 to 2%) of having another one. This means that more than 98 out of every 100 women (98%) who become pregnant after a molar pregnancy will have a normal pregnancy. If you have had two or more molar pregnancies your risk of having another is higher, at about 15 to 20 out of 100 (15 to 20%).

Your specialist will want to monitor you closely if you become pregnant again. We have information about follow up in this section.

 

Reliability of statistics

Although no statistics can tell you exactly what will happen to you, the statistics for people with GTT are very reliable. This is because all women having chemotherapy are treated in one of two centres. This means that the UK has very accurate figures and can give you a very good guide about how you are likely to respond to treatment.

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Updated: 6 May 2014