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A study looking at how men feel about sperm banking and infertility after treatment for cancer

Please note - this trial is no longer recruiting patients. We hope to add results when they are available.

This study is looking at how men feel about being diagnosed with cancer, having treatment and being infertile after treatment.

Unfortunately some cancer treatments can cause infertility, meaning you are then unable to have children. This can be particularly difficult to cope with for younger men who haven’t started a family yet. All men in this situation should be offered the chance to bank sperm. But some men decide not to.

The research team running this trial will use questionnaires to help them find out more about

  • What men think about being diagnosed with cancer and having treatment
  • Why some men decide to bank sperm and some don’t
  • What men who banked sperm at diagnosis think about it 5 years later

Recruitment

Start 01/09/2008
End 29/03/2011

Phase

Other

Who can enter

Study 1 has finished recruiting patients, but men could take part if they

  • Were aged between 18 and 45
  • Had recently been diagnosed with cancer
  • Were due to have treatment aimed at curing your cancer
  • Were a patient at either the Hallamshire or Western Park Hospitals in Sheffield, or St James Hospital Leeds

Study 2 has also finished recruiting now, but men could take part if they

  • were a man aged between 18 and 45
  • Had successful treatment for cancer diagnosed at least 5 years ago
  • Banked sperm before they had treatment
  • Were a patient at the Hallamshire Hospital in Sheffield or at Queen’s Medical Centre in Nottingham

Please note - You cannot volunteer for this study.

Trial design

This study is split into 2 parts – Study 1 and Study 2.

Study 1 was looking at men who have recently been diagnosed with cancer, and whose treatment was likely to leave them infertile.

You fill out a questionnaire before you start treatment, and again a year later. The questionnaire asks you about

  • How you feel about your experience of being diagnosed with cancer
  • Your views on the information you were given and the care that you have had so far
  • How you feel about being a parent
  • What your general health is like

The research team would also like to look at your medical records to find out your age, diagnosis, treatment, level of fertility and whether you decided to take up the offer of sperm banking or not.

Study 2 was looking at men who had successful treatment for cancer 5 years ago, and who took up the offer of sperm banking before their treatment.

Men who have banked sperm are asked to have fertility checks regularly. This is because if their fertility has returned there is no need to continue to store their sperm. But many men don’t respond to the request, so samples continue to be stored. And some men ask that their sample continues to be stored without checking their fertility.

The researchers hope to find out why some men attend for fertility checks and some don’t.

Hospital visits

You won’t have to make any extra trips to the hospital as part of this study.

If you take part in Study 1, you can fill out the questionnaires at your routine hospital appointments.

If you take part in Study 2, the questionnaires will be sent to you to fill out and post back. Or you can take it with you when you go for your next appointment.

Side effects

As you will not have any treatments or tests as part of this study, there are no side effects.

Location of trial

CLOSED

For more information

Please note: we cannot help you to join a specific trial. Unless we state otherwise in this trial summary, you need to print this page and take it to your own doctor to discuss.

Find out how to join a trial or contact our cancer information nurses for other questions about cancer by phone (0808 800 4040), by email, or at

The Information Nurses
Cancer Research UK
Angel Building
407 St John Street
London
EC1V 4AD

Chief Investigator

Dr Chris Eiser
Dr Allan Pacey

Supported by

Cancer Research UK
National Institute for Health Research Cancer Research Network (NCRN)
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