Clinical trials organisations
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Cancer Research UK Information Nurses
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Freephone: 0808 800 40 40
Cancer Research UK now manages and supports CancerHelp UK and is responsible for developing and maintaining our clinical trials database. You can ring the Cancer Research UK information nurses if you want to talk about clinical trials generally, or discuss any specific trial on our database.
Cancer Research UK was formed in February 2002 from the merger of The Cancer Research Campaign and The Imperial Cancer Research Fund. It is the foremost cancer charity in the UK and the largest charitable funder of cancer research.
It funds doctors and scientists in hospitals, universities and research institutes across the UK. Cancer Research UK is the European leader in the development of new anti cancer drugs. It funds research on many aspects of the disease from its causes to treatment as well as prevention and screening.
The Drug Development Office at Cancer Research UK develops and assesses new treatments for patients with cancer.
Experimental Cancer Medicines Centre (ECMC) Network
The ECMC network aims to bring together cancer doctors, research nurses and scientists to make clinical trials of new treatments quicker and easier. There are 18 centres across the UK that are all involved with clinical trials of experimental treatments and tests.
The ECMC initiative is funded by Cancer Research UK and the Departments of Health of England, Scotland, Wales and Northern Ireland. The centres will use the money to run trials of new and experimental treatments. They will also analyse thousands of blood and tissue samples (biopsies) to help find out more about how treatments work and what happens to cancer cells.
Department of Health
Customer service phone line 0207 210 4850 (08.30 - 17.30 Mon-Fri)
Textphone 0207 210 5025
Department of Health, Social Services and Public Safety (Northern Ireland)
Phone: 028 90520500
Email: A-Z list of email contacts on DHSSPS website
The DHSSPS responsibilities include reviewing all NICE guidance published from July 2006 and deciding whether it should be implemented in Northern Ireland. Also sometimes shortened to HPSS.
The Medical Research Council is a national organisation funded by the UK Government. They work closely with the Department of Health and other organisations and fund research in all areas of health care, including cancer.
The National Institute for Health Research (NIHR) aims to improve the quality, relevance and focus of research in the NHS.
The National Cancer Research Institute was set up in 2001. It is a partnership between the government, charities and industry. The aim of the NCRI is to oversee and coordinate cancer research in the UK. The main research organisations map out what they are all already doing and plan jointly for future cancer research. This means that NCRI can identify gaps in research and monitor the progress that is being made across cancer research initiatives. They encourage collaboration between different research organisations to improve the speed and quality of cancer research in the UK.
NICE is an independent organisation responsible for providing guidance to the Government on the promotion of good health and the prevention and treatment of ill health in England and Wales. Once a drug has been licensed for use in the UK, NICE are responsible for assessing whether it should be available on the NHS. The equivalent function for Scotland is carried out by the Scottish Medicines Consortium (see below).
Scottish Medicines Consortium (SMC)
Delta House (8th floor),
50 West Nile Street,
Phone 0141 225 6989
Fax 0141 248 3839
NIHR Health Technology Assessment (HTA) programme
University of Southampton Science Park,
Phone 023 8059 5586
Fax 023 8059 5639
The Department of Health’s Research and Development programme funds the Health Technology Assessment programme. It is a national research programme that helps assess tests and treatments to see how good and how cost effective they are. The HTA funds research and clinical trials in all areas of healthcare including prevention, treatment and rehabilitation.
Health talk Online website
The cancer section of this website contains video and audio clips of people with the main types of cancer, so that you can share in their stories. There is a section about taking part in clinical trials at www.healthtalkonline.org/medical_research/clinical_trials
The EORTC was founded in 1962 to improve the standard of cancer treatment in Europe. They fund research into cancer, including the development of new drugs. They also fund and co-ordinate a large number of clinical trials across Europe.
The European Group for Blood and Marrow Transplantation (EBMT) started in 1974 in Holland. Their aim is to bring together doctors treating patients with bone marrow transplants, to share experiences and work together. They also fund research.
International Cancer Research Partnership (ICRP)
The International Cancer Research Partnership (ICRP) is a database of information about cancer research that is funded by organisations in both the UK and other countries. It was set up in 2003 to help researchers find information about current cancer research projects. Members of the public can also look at the information on the ICRP website. It is possible to search the database by type of cancer, area of research or funding organisation.
The National Cancer Institute (NCI) is an American organisation that carries out cancer research. They fund laboratory research and clinical trials for cancer patients in the US and around the world. They provide information about cancer and its treatments in English and Spanish.
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There are organisations below that are involved in research for
Bowel (colorectal) cancer
CORE is a charity that supports research into a large range of digestive disorders, including cancer. They also produce information for patients.
The Bobby Moore Fund raises money for research into bowel cancer. They aim to raise awareness of symptoms so that people are diagnosed earlier.
The Brain Tumour Charity
61-65 Victoria Road
Helpline: 0808 800 0004
The Brain Tumour Charity is the result of a merger in March 2013 of The Brain Tumour Charity (which use to be Samantha Dickson Brain Tumour Trust), Brain Tumour UK and The Joseph Foote Trust.
The Brain Tumour Charity finds research into brain tumours and offers support and information to those affected. It also raises awareness and influences policy.
Breakthrough Breast Cancer
246, High Holborn,
Phone: 08080 100 200 (Our line are open Monday to Friday, 9am-5.30pm)
A UK-wide organisation that funds research into breast cancer and campaigns for better treatments and services. They have their own research centre within the Institute of Cancer Research in Sutton, Surrey.
Breast International Group (BIG)
Institut Jules Bordet
Blvd de Waterloo 121
Phone: +32 2 541 3216
Fax: +32 2 541 3199
Breast International Group (BIG) was founded in 1996 by a group of breast cancer specialists. They share knowledge and information about research and clinical trials and aim to speed recruitment onto clinical trials. They fund and co-ordinate breast cancer trials.
Leukaemia and lymphoma
Leukaemia and Lymphoma Research raises money for research into the causes and treatment of leukaemia, myeloma and lymphoma. LRF has a patient information service and produces booklets.
This organisation, founded in Roy Castle's memory, is primarily dedicated to researching the early detection of lung cancer.
Myeloma UK (Previously the International Myeloma Foundation UK) is dedicated to funding research, providing information and supporting patients with myeloma. They produce booklets, which are available on their website, or they will send you an information pack. They can provide a list of myeloma support groups in the UK.
UK Myeloma Forum
Clinical Trials Office
Dept of Haematology
Tel 020 7955 2031
The UK Myeloma Forum (UKMF) develops and promotes clinical trials for myeloma. Their website has information about clinical trials that are taking place in the UK, and guidelines for the diagnosis and treatment of myeloma.
Prostate Cancer UK
The Counting House
53 Tooley Street
Helpline: 0800 074 8383
The Prostate Cancer Charity provides information and support for patients with prostate cancer. They have a helpline, produce leaflets and undertake research into prostate cancer.
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