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A study looking at problems with emotional or physical closeness and sexuality in women with breast cancer

Please note - this trial is no longer recruiting patients. We hope to add results when they are available.

This study is looking at issues to do with physical and emotional closeness (intimacy) and sexual problems, to try to improve services for women with breast cancer in the future.

We know from research that women with breast cancer can have problems in their day to day lives such as managing at home, social activities and family issues. One issue that affects many women with breast cancer is difficulties with intimacy and sexuality. We know that these issues are not always routinely addressed by the care team, either during or after treatment for breast cancer.

Researchers are running this study in the Leeds area and want to hear the views of women who have had problems with sexuality and intimacy. They will ask about the problems they’ve had and what kind of help and information they’ve received. They are also interested in finding out what women think about routine assessment for these areas, and about the questions they might use. This study aims to find out

  • What kind of sexual and emotional or physical closeness (intimacy) problems women have as a result of breast cancer and its treatment
  • What help and information they have had
  • Women’s views on routine assessment of sexual problems

The team hope that by doing this research they will be able to improve services for women with breast cancer in the future.

Recruitment

Start 01/12/2011
End 31/05/2012

Phase

Other

Who can enter

You may be able to enter this study if you

  • Have breast cancer
  • Have had any problem with sexuality or intimacy since being diagnosed with breast cancer
  • Are able to speak and understand English easily
  • Are at least 18 years old

Trial design

This study will recruit between 10 and 20 women.  Everyone will have an interview with a researcher. The researcher will include questions about

  • Your family situation
  • Your medical treatment
  • Any sexual problems you have had
  • What support you have had, or would like to have
  • What you think about routine assessment of sexual problems using a questionnaire, and about possible questions that may be used for this

The interview will last about an hour and with your permission, be audio recorded. The team will treat this information anonymously, so no one will be able to link the results to you.

Hospital visits

You can have your interview at either

  • A quiet room at the hospital
  • The Macmillan Robert Ogden support centre at the hospital
  • The Breast Cancer Haven support centre in Leeds
  • At home

The team will arrange the best time and place for you.

Side effects

You should not have any side effects as a result of taking part in this study. But you may find talking about sexual issues embarrassing or upsetting.  The team will tell you fully about what you will be discussing in the interview before you agree to have it. You can also stop the interview at anytime.

If the team feel you would benefit from support as a result of what you have discussed, with your permission they will speak with the cancer team caring for you. Your cancer team can then refer you for specialist support. The researchers will also give you general information about support services in the Leeds area.

You will have a female interviewer for the study, who is used to discussing sensitive issues like this.

Location of trial

CLOSED

For more information

Please note: we cannot help you to join a specific trial. Unless we state otherwise in this trial summary, you need to print this page and take it to your own doctor to discuss.

Find out how to join a trial or contact our cancer information nurses for other questions about cancer by phone (0808 800 4040), by email, or at

The Information Nurses
Cancer Research UK
Angel Building
407 St John Street
London
EC1V 4AD

Chief Investigator

Mrs Sally Taylor

Supported by

Cancer Research UK
National Institute for Health Research Cancer Research Network (NCRN)
University of Leeds
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