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Children's cancer organisations

This page gives information about organisations and websites that help and support children with cancer and their family and friends. There is information about

 

Using this page

The websites on cancer listed on this page are valuable sources of detailed information on cancer. They may use more technical terms, longer pages and fewer images than our site. 

You can find details about general cancer support organisations on our general cancer organisations page. We have information about counselling organisations in the counselling section.

 

Cancer Research UK information and support

Cancer Research UK
Angel Building
407 St John Street
London EC1V 4AD

Admin phone number: 020 7242 0200
www.cancerresearchuk.org

Cancer Research UK is the largest cancer research organisation in the world, outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through our websites CancerHelp UK, News and resources and through our range of health awareness leaflets.

If you have a question about cancer, and you are in the UK or Ireland, you can contact our team of specialist cancer information nurses using this form, or by telephoning freephone 0808 800 40 40.

 

Organisations providing information and support 

The Children's Cancer and Leukaemia Group (CCLG)
University of Leicester
3rd Floor, Hearts of Oak House
9 Princess Road West
Leicester LE1 6TH

Phone: +44 (0) 116 249 4460
Fax: +44 (0) 116 249 4470
Website: http://www.cclg.org.uk
Email: cclg@le.ac.uk

The UK Children's Cancer Study Group have merged with the Childhood Leukaemia Working Party to form a new organisation called The Children's Cancer and Leukaemia Group (CCLG). The national professional body responsible for developing and organising children’s cancer treatment in the UK. Their main work involves coordinating national and international clinical trials. They also provide information about cancer for children and their families.

Children with Cancer and Leukaemia: Advice and Support for Parents (CCLASP)
Unit 7
North Leith Sands
Edinburgh
EH6 4ER

Tel: 0131 467 7420
Email: info@cclasp.co.uk
Website: www.cclasp.co.uk

A children’s charity based in Scotland. It is run by parents whose children have cancer. Gives information and offers a telephone helpline and fun events, plus practical support such as transport to clinics and family holidays.

CLIC Sargent
Horatio House
77–85 Fulham Palace Road
London
W6 8JA

Phone: 0300 330 0803
Email: online enquiry form
Website: www.clicsargent.org.uk

Provides information and support for young people with cancer and their families. This charity was formed from the merger of CLIC (Cancer & Leukaemia in Childhood) and Sargent Cancer Care for Children, two of the UK’s leading charities dedicated to the care and support for children with cancer and their families.

Kids Cancer Charity
62 Walter Road
Swansea
SA1 4PT

Phone: 01792 480500
Email: enquiries@kidscancercharity.org
Website: http://www.kidscancercharity.org

Telephone support and a range of other support services for children with cancer and their families. Bereavement support, befriending, and self help parent support groups. Crisis breaks via four mobile home sites in Wales, Disneyland Paris and Disney World Florida. Play therapy, holiday programmes, travel insurance.

Gaps:line
PO Box 92
Dereham
NR20 4WD

Administration number: 0845 130 3683
Support line: 0845 121 4277 Daily between 8pm and 10pm
Website: http://www.gapsline.org.uk/gaps-line/

A support line that provides an opportunity for families and carers of children with leukaemia and cancer to talk to trained volunteers who have faced the same difficulties.

Childhood Cancer Parents Alliance (Formally NACCPO)
PO Box 176
Bromley
BR2 7YN

Phone/fax: 01785 603763
Website: www.ccpa.mixudo.com

The Childhood Cancer Parents Alliance (CCPA) is made up of parent run organisations that work together to support children with cancer. They also offer support and information to the parents of children with cancer.

Camp Simcha UK
The House
12 Queens Road
London
NW4 2TH

Tel: 020 8202 9297
Email: office@campsimcha.org.uk
Website: www.campsimcha.org.uk

Offers free services to improve the lives of Jewish children with cancer. Provides family liaison officers and home support volunteers to help parents cope. Also offers exciting trips and experiences for the children, including special treats, outings, parties, family retreats and Camp Simcha USA.

Macmillan Cancer Support
Head Office
89 Albert Embankment
London
SE1 7UQ

Macmillan CancerLine: 0808 808 0000 
Email: cancerline@macmillan.org.uk
Website: www.macmillan.org.uk

Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run helplines providing cancer information and benefits advice.

Little Princess Trust
28 Castle Street
Hereford
HR1 2NW

Tel (all other enquiries): 0845 0942169
Tel (to order a wig): 0845 0944509 
Email: info@littleprincesses.org.uk
Website: www.littleprincesses.org.uk

Supply and fully fund wigs especially designed for children. Also provide personal fitting and styling to ensure the wig is as close as possible to the original hair.


Organisations providing support for families with children with any serious illness

Together for short lives (Formally ACT)
4th Floor Bridge House
48-52 Baldwin Street
Bristol BS1 1QB

Helpline: 0808 8088100
Website: http://www.togetherforshortlives.org.uk

Provides information on support services for families whose children have life-threatening or terminal conditions, regardless of the disease involved. It is involved in encouraging the development of children’s palliative care services.

Action for Sick Children
32b Buxton Road
High Lane
Stockport
Derbyshire
SK6 8BH

Tel: 0800 0744519 (freephone)
Email: enquiries@actionforsickchildren.org
Website: www.actionforsickchildren.org

A network of national groups that gives advice and information for parents with children going to hospital. Also provides counselling for parents. Leaflets and videos are available to support children going into hospital. If you can't download these from the website, contact the charity and they can send them to you.

 

Information for children and teenagers

Medikidz
25 North Row
London
W1K 6DJ

Phone: 020 3691 6232
Email: online enquiry form
Website: www.medikidz.com

Provides medical information for children. It aims to educate children about medical conditions they or their friends and family may have, through an online encyclopedia, virtual world, social network and comic books. 

Teenage Cancer Trust
3rd floor
93 Newman Street
London
W1T 3EZ

Phone: 020 7612 0370
Fax: 020 7612 0371
Email: hello@teenagecancertrust.org
Website: www.teenagecancertrust.org

UK support organisation that provides information for teenagers and their families about all types of cancer.

Macmillan Cancer Support  Cancer Info for teens and young adults with cancer (formerly Teen Info on Cancer TIC)
Website: www.macmillan.org.uk
Macmillan Cancer Support has a separate section on their website for teenagers and young adults with cancer. It offers advice and support on how to cope with cancer, and the chance to share experiences of cancer with other teenagers.

Re-Mission 2 Online games to teach children about cancer
Website: www.re-mission2.org
Provided by a charity called HopeLab, these games teach children about cancer. Research has shown that they can help children to cope with cancer and understand their treatment.

 

Information on specific childhood cancers

Leukaemia and Lymphoma Research
39 – 40 Eagle Street
London
WC1R 4TH

Phone: 020 7504 2200
Email: info@beatingbloodcancers.org.uk
Website: www.leukaemialymphomaresearch.org.uk

Sponsors research into leukaemia, lymphoma and myeloma. They also provide patient information booklets.

Leukaemia CARE
1 Birch Court
Blackpole East
Worcester
WR3 8SG

24 hour care line: 08088 010 444
Phone: 01905 755977
Website: www.leukaemiacare.org.uk
email: care@leukaemiacare.org.uk

Leukaemia CARE provides carer support services to all those whose lives are affected by leukaemia and other blood disorders. They provide financial grants. The website has a well used message board. The phone line is staffed by volunteers. There are support groups around the country, also run by volunteers.

Lymphoma Association
PO Box 386
Aylesbury
Bucks 
HP20 2GA

Helpline phone: 08088 085 555 (Mon to Thur 9am to 6pm, Friday 9am to 5pm)
email: information@lymphomas.org.uk
Website: http://www.lymphomas.org.uk

A charity providing emotional support and medical information on all aspects of Hodgkin's lymphoma and non Hodgkin's lymphoma. They produce leaflets, a newsletter, run local support groups for people with lymphoma around the country and have a 'buddy' scheme for putting patients in touch with each other by phone. Part of their website is just for young people with lymphoma. You can also use the live chat facility to chat to one of the helpline team online.

The Neuroblastoma Society
Website: www.neuroblastoma.org.uk
Society Hotline: 020 8940 4353
Email: secretary@neuroblastoma.org.uk

A charity run by parents and grandparents of children with neuroblastoma. Its aim is mainly to raise funds for research into the disease. Befriending scheme for affected families.

One Vision
Northamptonshire Association for the Blind,
Wardington Court,
Welford Road,
Northampton
Northamptonshire
NN2 8AG

Phone: 0845 108 3161
email: enquiries@one-vision.org.uk

A national support group for anyone who has lost the sight in one eye, through having cancer or for any other reason. Provide information, telephone support and booklets.

Childhood Eye Cancer Trust (CHECT)
The Royal London Hospital
Whitechapel Road
E1 1BB
London

Phone: 020 7377 5578
Fax: 020 7377 0740
Email: info@chect.org.uk
Website: www.chect.org.uk

A UK charity for families and individuals affected by retinoblastoma. Formerly called The Retinoblastoma Society. Offers support, funds research and can put you in touch with other families affected by retinoblastoma.

Royal Orthopaedic Hospital Bone Tumour Service for Children and Adults (ROHBTS)
Ward 11
The Woodlands
Royal Orthopaedic Hospital
Bristol Road South
Northfield
Birmingham
B31 2AP

Phone: 01584 856209

Provides support for patients with bone tumours and soft tissue tumours.

The Brain Tumour Charity
Hartshead House
61 - 65 Victoria Road
Farnborough
Hampshire
GU15 7PA

National Helpline: 0808 800 0004
Email: support@thebraintumourcharity.org
Website: www.thebraintumourcharity.org

Provides information, education and support for anybody affected by a brain tumour. Raises funds for research and provides a telephone befriending service. Has an online forum and support groups. 

Bone Cancer Research Trust
10 Feast Field
Horsforth
Leeds
West Yorkshire
LS18 4TJ

Tel: 0113 258 5934
Fax: 0113 258 7145
Email: info@bcrt.org.uk
Website: www.bonecancerresearch.org.uk

Promotes research into primary bone cancer. Also provides information, support and counselling services for people who have primary bone cancer, and their families.

Friends of O.S.C.A.R
5 Abingdon Road
Didcot
Oxfordshire
OX11 9BL

Tel: 01235 816310
Email: carolharrison@utdsl.com
Website: www.friendsofoscar.org.uk

A support group for children with brain or spinal tumours and their families. Also offers information about brain or spinal tumours and their treatment. Provides days out, contact with other families, small financial grants and holiday accommodation.

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Updated: 6 August 2014