Children's cancer organisations
This page gives information about organisations and websites that help and support children with cancer and their family and friends. There is information about
The websites on cancer listed on this page are valuable sources of detailed information on cancer. They may use more technical terms, longer pages and fewer images than our site.
Cancer Research UK
407 St John Street
London EC1V 4AD
Admin phone number: 020 7242 0200
Cancer Research UK is the largest cancer research organisation in the world, outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through our websites CancerHelp UK, News and resources and through our range of health awareness leaflets.
If you have a question about cancer, and you are in the UK or Ireland, you can contact our team of specialist cancer information nurses using this form, or by telephoning freephone 0808 800 40 40.
The Children's Cancer and Leukaemia Group (CCLG)
University of Leicester
3rd Floor, Hearts of Oak House
9 Princess Road West
Leicester LE1 6TH
Phone: +44 (0) 116 249 4460
Fax: +44 (0) 116 249 4470
The UK Children's Cancer Study Group have merged with the Childhood Leukaemia Working Party to form a new organisation called The Children's Cancer and Leukaemia Group (CCLG). The national professional body responsible for developing and organising children’s cancer treatment in the UK. Their main work involves coordinating national and international clinical trials. They also provide information about cancer for children and their families.
A children’s charity run by parents whose children have cancer. Gives information and offers a telephone helpline and fun events, plus practical support such as transport to clinics and family holidays.
Provides information and support for young people with cancer and their families. This charity was formed from the merger of CLIC (Cancer & Leukaemia in Childhood) and Sargent Cancer Care for Children, two of the UK’s leading charities dedicated to the care and support for children with cancer and their families.
Telephone support and a range of other support services for children with cancer and their families. Bereavement support, befriending, and self help parent support groups. Crisis breaks via four mobile home sites in Wales, Disneyland Paris and Disney World Florida. Play therapy, holiday programmes, travel insurance.
PO Box 92
Administration number: 0845 130 3683
Support line: 0845 121 4277
A support line set up by Bryan Gunn’s Leukaemia Appeal. Provides an opportunity for families and carers of children with leukaemia and cancer to talk to trained volunteers who have faced the same difficulties.
Childhood Cancer Parents Alliance (Formally NACCPO)
PO Box 176
Phone/fax: 01785 603763
The Childhood Cancer Parents Alliance (CCPA) is made up of parent run organisations that work together to support children with cancer. They also offer support and information to the parents of children with cancer.
Camp Simcha UK
12 Queens Road
Offers free services to improve the lives of Jewish children with cancer. Provides family liaison officers and home support volunteers to help parents cope. Also offers exciting trips and experiences for the children, including special treats, outings, parties, family retreats and Camp Simcha USA.
Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run helplines providing cancer information and benefits advice.
Little Princess Trust
28 Castle Street
Supply and fully fund wigs especially designed for children. Also provide personal fitting and styling to ensure the wig is as close as possible to the original hair.
Organisations providing support for families with children with any serious illness
Together for short lives (Formally ACT)
4th Floor Bridge House
48-52 Baldwin Street
Bristol BS1 1QB
Helpline: 0845 108 2201
Provides information on support services for families whose children have life-threatening or terminal conditions, regardless of the disease involved. It is involved in encouraging the development of children’s palliative care services.
A network of national groups that gives advice and information for parents with children going to hospital. Also provides counselling for parents. Leaflets and videos are available to support children going into hospital.
10 Greycoat Place
London SW1P 1SB
Provides medical information for children. It aims to educate children about medical conditions they or their friends and family may have, through an online encyclopedia, virtual world, social network and comic books.
Teenage Cancer Trust
93 Newman Street
UK support organisation that provides information for teenagers and their families about all types of cancer.
Macmillan Cancer Support – Cancer Info for teens and young adults with cancer (formerly Teen Info on Cancer – TIC)
Macmillan Cancer Support has a separate section on their website for teenagers and young adults with cancer. It offers advice and support on how to cope with cancer, and the chance to share experiences of cancer with other teenagers.
Re-Mission 2 – Online games to teach children about cancer
Provided by a charity called HopeLab, these games teach children about cancer. Research has shown that they can help children to cope with cancer and understand their treatment.
Sponsors research into leukaemia, lymphoma and myeloma. They also provide patient information booklets.
Leukaemia CARE provides carer support services to all those whose lives are affected by leukaemia and other blood disorders. They provide financial grants. The website has a well used message board. The phone line is staffed by volunteers. There are support groups around the country, also run by volunteers.
PO Box 386
Helpline phone: 08088 085 555 (Mon to Thur 9am to 6pm, Friday 9am to 5pm)
A charity providing emotional support and medical information on all aspects of Hodgkin's lymphoma and non Hodgkin's lymphoma. They produce leaflets, a newsletter, run local support groups for people with lymphoma around the country and have a 'buddy' scheme for putting patients in touch with each other by phone. Part of their website is just for young people with lymphoma. Chat room available 24 hours a day, but with a designated chat hour (8 – 9pm) when most people are on line.
A charity run by parents and grandparents of children with neuroblastoma. Its aim is mainly to raise funds for research into the disease. Befriending scheme for affected families.
Northamptonshire Association for the Blind,
Phone: 0845 108 3161
A national support group for anyone who has lost the sight in one eye, through having cancer or for any other reason. Provide information, telephone support and booklets.
A UK charity for families and individuals affected by retinoblastoma. Formerly called The Retinoblastoma Society. Offers support, funds research and can put you in touch with other families affected by retinoblastoma.
Royal Orthopaedic Hospital Bone Tumour Service for Children and Adults (ROHBTS)
Royal Orthopaedic Hospital
Bristol Road South
Phone: 01584 856209
Provides support for patients with bone tumours and soft tissue tumours.
Provides information, education and support for anybody affected by a brain tumour. Raises funds for research and provides a telephone befriending service.
Bone Cancer Research Trust
10 Feast Field
Tel: 0113 258 5934
Fax: 0113 258 7145
Promotes research into primary bone cancer. Also provides information, support andcounselling services for people who have primary bone cancer, and their families.
A support group for children with brain or spinal tumours and their families. Also offers information about brain or spinal tumours and their treatment. Provides days out, contact with other families, small financial grants and holiday accommodation.
Question about cancer? Contact our information nurse team