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Coping with cancer organisations

Coping with cancer

This page gives information about organisations and websites which may be helpful for people who have symptoms and side effects caused by cancer or cancer treatment. There is information about

 

Using this page

The websites listed on this page are valuable sources of detailed information about cancer. They may use more technical terms, longer pages and fewer images than our website. 

You can find details about general cancer support organisations on our general cancer organisations page. We have information about counselling organisations in the counselling section.

 

Cancer Research UK information and support

Cancer Research UK
Angel Building
407 St John Street
London EC1V 4AD

Nurse freephone helpline: 0808 800 4040
Admin phone number: 020 7242 0200
Website: www.cancerresearchuk.org

Cancer Research UK is the largest cancer research organisation in the world, outside the USA. It is the European leader in the development of new anti cancer drugs. It funds research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through our website, which includes patient information and news and resources, and through our range of health awareness leaflets.

If you have a question about cancer, and you are in the UK or Ireland, you can contact our team of specialist cancer information nurses using this form, or call freephone 0808 800 40 40.

 

General support and information organisations

Medical Advisory Service
General Medical Helpline: 020 8994 9874 (7 days 6pm to 8pm)
Website: www.medicaladvisoryservice.org.uk
Email: office@medicaladvisoryservice.org.uk

The Medical Advisory Service offers information and advice on medical and health care matters.
 

NHS Choices

For general health advice and information, look on the NHS Choices website.
 

NHS 111
Phone: 111
Website: www.nhs.uk/NHSEngland

NHS 111 gives information if you need fast medical help but its not a 999 emergency.
 

NHS 24
Confidential telephone health advice and information service for people in Scotland.

NHS Helpline: 0800 22 44 88 (8am to 10pm – for details of pharmacies, GP practices and dentists in Scotland. Can also give information about illnesses, treatments and NHS services)
NHS 24 Helpline: 08454 24 24 24 (for when you are feeling ill and your doctor's surgery is closed)
Website: www.nhs24.com


Essential Aids website
This is an online shop for daily living equipment for the disabled community, older people, or those who look after people with difficulty getting around.
Website address: www.essentialaids.com
Email: contact@essentialaids.com
Phone: 01273 719889


Macmillan Cancer Support
Head Office
89 Albert Embankment
London
SE1 7UQ

Phone: 0808 808 0000 (Mon to Fri, 9am to 8pm – information available in other languages)
Textphone: 0808 808 0121
Website: www.macmillan.org.uk

Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run a helpline providing cancer information and benefits advice.

 

Specific symptoms organisations

Bladder and Bowel Foundation
SATRA Innovation Park
Rockingham Road
Kettering
Northants
NN16 9JH

Nurse helpline for medical advice: 0845 345 0165
General enquiries: 01536 533255
Email: info@bladderandbowelfoundation.org
Website: www.bladderandbowelfoundation.org

The Bladder and Bowel Foundation formed in 2008 from the former organisations Incontact and the Continence Foundation. It supports people living with bladder and bowel disorders and has a telephone helpline. The service is confidential. They can also give you information about stoma products. They have a 'Just can't wait' card which allows holders access to toilets in shops and pubs etc. They ask for a £5 donation to receive this card.


The Colostomy Association
Enterprise House
95 London Street
Reading RG1 4QA
Helpline: 0800 328 4257 (24hr helpline)
Tel: 0118 939 1537 (9am-5pm, Monday to Friday)
Email: cass@colostomyassociation.org.uk
Website: www.colostomyassociation.org.uk

A UK support group for ostomates. The Colostomy Association provides information and support for anyone with a colostomy.


The Neuropathy Trust
PO Box 26
Nantwich
Cheshire
CW5 5FP
Website: www.neurocentre.com

Provides support, educational information, and a means of communication to people affected by peripheral neuropathy and neuropathic pain, to improve their overall quality of life.


Pain Association Scotland 
Suite D, Moncrieffe Business Centre
Friarton Road
Perth
PH2 8DG
Freephone: 0800 783 6059 (Monday to Friday, 8am to 4.30pm)
Website: www.painassociation.com
Email: info@painassociation.com

A support group for anyone who suffers from chronic pain.


Action On Pain
PO Box 134
Shipdham
Norfolk
IP25 7XA
Tel: 01362 820750
PainLine 0845 6031593 (From 10am to 4pm, Monday to Friday)
Email:aopisat@btinternet.com
Website: www.action-on-pain.co.uk

Provides support, advice and help in various ways to people affected by chronic pain and those close to them.


Pain Concern
Unit 1-3 
62-66 Newcraighall Road
Fort Kinnaird
Edinburgh
EH15 3HS
Telephone: 0131 669 5951
Helpline: 0300 123 0789 (Monday to Friday, 10am to 4pm)
Website: www.painconcern.org.uk
Email: helpline@painconcern.org.uk

Offers information and support to people with pain and those who care for them. They run a helpline staffed by volunteers, and have an online forum called HealthUnlocked for members to share experiences. You can listen to podcasts which feature interviews with experts and people who are managing their pain. You can also subscribe to their magazine, Pain Matters.


PINNT (Patients on Intravenous and Nasogastric Nutritional Therapy)
PO Box 3126
Christchurch
Dorset
BH23 2XS
Website: www.pinnt.com

This organisation provides information and support for people who need artificial feeding. They also have regional support groups for PINNT members.


Lymphoedema Support Network (LSN)
St. Luke's Crypt
Sydney Street
London
SW3 6NH

Website: www.lymphoedema.org
Email: adminlsn@lymphoedema.freeserve.co.uk
Telephone: 020 7351 0990 (Administration)

A national charity offering information and support to anyone affected by lymphoedema. It has more than 3500 members, 66 local support groups, a helpline and a website. It also produces a range of information including 25 factsheets about lymphoedema and its treatment, 2 DVDs about self management techniques for lymphoedema, and a quarterly newsletter.

 

International Lymphoedema Framework
86/88 South Ealing Road
London
W5 4QB 
Email: contact@lympho.org 

A registered charity that aims to improve the lives of those with lymphoedema. They actively contribute to the improvement of the management of lymphoedema worldwide and especially in developing countries. They have a number of booklets that can be downloaded free of charge. 


British Lymphology Society (BLS)
The Garth House
Rushey Lock
Tadpole Bridge
Buckland Marsh
Nr Faringdon
Oxfordshire
SN7 8RF

Website: www.thebls.com/index.php
Email: go to the Contact us page of their website
Telephone: 01452 790178

The BLS is mainly for health professionals caring for people with lymphoedema. They aim to encourage research and produce guidelines.


MLD UK
PO Box 14491
Glenrothes
Fife, KY6 3YE
Website: www.mlduk.org.uk/
Email: admin@mlduk.org.uk
Tel/Fax: 0844 800 1988

MLD UK promotes public awareness of Manual Lymphatic Drainage (MLD) from the point of view of both the patient and potential practitioners for people with lymphoedema.

Breast Cancer Care
5 –13 Great Suffolk Street
London
SE1 0NS

Helpline: 0808 800 6000 (Monday to Friday, 9am to 5pm and Saturday, 10am to 2pm)
Phone: 0845 092 0800 (general enquiries)
Email: info@breastcancercare.org.uk
Website: www.breastcancercare.org.uk

Breast Cancer Care provides breast cancer information and support across the UK. All services are free and include a helpline, website, publications and practical and emotional support. It runs sessions about lymphoedema around the country. Each session includes Information about the prevention and management of lymphoedema. Looking at signs and symptoms, practical self-help approaches that may reduce the risk of lymphoedema, and how to manage lymphoedema if it occurs.

 

Organisations that can help with issues of sex and sexuality


Relate
Central Office: Premier House
Carolina Court
Lakeside
Doncaster
DN4 5RA
Phone: 0300 100 1234
Website: www.relate.org.uk

Offers private and confidential counselling, and psychosexual therapy to help with relationship problems.

College of Sexual and Relationship Therapists
PO Box 13686
London
SW20 9ZH
Telephone: 020 8543 2707
Website: www.cosrt.org.uk
Email: info@cosrt.org.uk

Provides information about the help and therapy available for sexual difficulties.

The Sexual Advice Association
Suite 301, Emblem House
London Bridge Hospital
27 Tooley Street
London
SE1 2PR
Telephone 020 7486 7262 (Mon, Wed and Fri, 9am to 5pm)
Website: www.sda.uk.net
Email: info@sexualadviceassociation.co.uk

Information on sexual problems. They provide lists of local specialist practitioners, as well as factsheets on problems such as erectile dysfunction (impotence).

Prostate Cancer UK
Fourth Floor
The Counting House
53 Tooley Street
London
SE1 2QN
Website: www.prostatecanceruk.org
Helpline: 0800 074 8383 (Mon to Fri, 10am to 4pm and Wed, 7pm to 9pm)

This organisation provides a telephone helpline staffed by nurses. They can give you information and advice about all aspects of prostate cancer, including erection problems.

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Updated: 3 April 2014