Our policy on patient data

Patient data has the potential to deliver huge public benefit, but it is also often highly sensitive for individuals concerned.

We work on promoting a regulatory and governance framework which enables researchers to access the lifesaving data which they need, while also ensuring that patient confidentiality is protected.

We also believe that the public should be better informed and engaged about how their data is used and why it is so important to research. We work in partnership to communicate with the public, explaining the nuances of these issues to them and allowing them to make informed decisions about their own data.


Joint Statement on the European Data Protection Regulation

January 2014

Download the PDF

Leaflet on the use of patient data in research  - ‘Your health records save lives’

Download the leaflet

Joint letter to The Times on patient data

Download the letter



Response to Research Councils UK call for evidence in Open Access review

Download the PDF

Response to Caldicott Review of Information Governance

Download the PDF

Response to consultation on strengthening the NHS Constitution

January 2013

Download the PDF

Contact us

Get in touch with our policy team to find out more information about our policy on supporting research.

Call our policy team for more information.

020 3469 8360 

Email the team

Related topics

Share this page