Our policy on patient data
Patient data has the potential to deliver huge public benefit, but it is also often highly sensitive for individuals concerned.
We work on promoting a regulatory and governance framework which enables researchers to access the lifesaving data which they need, while also ensuring that patient confidentiality is protected.
We also believe that the public should be better informed and engaged about how their data is used and why it is so important to research. We work in partnership to communicate with the public, explaining the nuances of these issues to them and allowing them to make informed decisions about their own data.
Joint Statement on the European Data Protection Regulation
Leaflet on the use of patient data in research - ‘Your health records save lives’
Joint letter to The Times on patient data
Response to Research Councils UK call for evidence in Open Access review
Response to Caldicott Review of Information Governance
Response to consultation on strengthening the NHS Constitution
Get in touch with our policy team to find out more information about our policy on supporting research.
Call our policy team for more information.