Vulval cancer organisations
This page gives information about organisations and websites that help and support people with vulval cancer. There is information about
The websites on cancer listed on this page are valuable sources of detailed information on cancer. They may use more technical terms, longer pages and fewer images than CancerHelp UK.
Cancer Research UK
407 St John Street
Helpline: 0808 800 40 40
Admin phone number: 020 7242 0200
Cancer Research UK is the largest cancer research organisation in the world, outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through our website, which includes patient information and news and resources, and through our range of health awareness leaflets.
If you have a question about cancer, and you are in the UK or Ireland, you can contact our team of specialist cancer information nurses using this form, or by telephoning freephone 0808 800 40 40.
If you would like to talk to someone affected by cancer, share experiences or find information, you can visit our Cancer Chat forum.
The RV Club
Tel: 01977 640243
Jane is an ex-patient who has had a radical vulvectomy. She is happy to talk to women who are going to have (or have had) a vulvectomy, as well as to their friends and families.
Vulval Awareness Campaign Organisation
Support network: http://health.groups.yahoo.com/group/vaco-vulvacare
Phone: 0161 747 5911
This UK organisation is run by women who've had vulval cancer. There is a support network, one to one telephone support and a website with useful information about vulval conditions.
National Cancer Institute
This is the American National Cancer Institute’s patient information site. Its section on cancer of the vulva is detailed and comprehensive.
Vulval Pain Society
PO Box 7804
An information and support service for women with vulval pain and discomfort.
This is a national charity offering information and support to anyone affected by lymphoedema. They have over 3500 members, 66 local support groups, run a helpline and have a website. They also produce a range of information including 25 factsheets about lymphoedema and its treatment, 2 DVDs about self management techniques for lymphoedema and a quarterly newsletter.
Offers counselling and psychotherapy and can give details of local counsellors.
A charitable organisation with a membership of health care professionals from various specialities, and people who have a direct interest in ensuring that people with lymphoedema have access to the care and treatment that they need. Has a directory of lymphoedema specialist practitioners.
Information on sexual problems that can affect men and women. They provide lists of local specialist practitioners, as well as factsheets on problems such as erectile dysfunction (impotence).
Pelvic Radiation Disease Association
Phone: 01372 744338
A patient led group which aims to promote understanding about pelvic radiation disease which can be a late effect of radiotherapy treatment. They offer support to patients and campaign for more research and better treatment for this condition. They mainly focus on bowel problems caused by pelvic radiotherapy.
Macmillan Cancer Support
89 Albert Embankment
Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run helplines providing cancer information and benefits advice.
Switchboard LGBT + helpline
PO Box 7324
Helpline: 0300 330 0630 (Everyday 10am-10pm)
Helpline for lesbians, gay, bisexual and transgender communities in the UK. Gives advice and information.
Question about cancer? Contact our information nurse team