Vulval cancer organisations | Cancer Research UK
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Vulval cancer organisations

Women discussing vulval cancer

This page gives information about organisations and websites that help and support people with vulval cancer. There is information about


Using this page

The websites on cancer listed on this page are valuable sources of detailed information on cancer. They may use more technical terms, longer pages and fewer images than CancerHelp UK.

You can find details about general cancer support organisations on our general cancer organisations page. We have information about counselling organisations in the counselling section.


Cancer Research UK information and support

Cancer Research UK
Angel Building
407 St John Street

Helpline: 0808 800 40 40
Admin phone number: 020 7242 0200

Cancer Research UK is the largest cancer research organisation in the world, outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through our website, which includes patient information and news and resources, and through our range of health awareness leaflets.

If you have a question about cancer, and you are in the UK or Ireland, you can contact our team of specialist cancer information nurses using this form, or by telephoning freephone 0808 800 40 40.

If you would like to talk to someone affected by cancer, share experiences or find information, you can visit our Cancer Chat forum.


Specific women's cancer organisations and sites

The RV Club
Jane Bramley
Tel: 01977 640243

Jane is an ex-patient who has had a radical vulvectomy. She is happy to talk to women who are going to have (or have had) a vulvectomy, as well as to their friends and families.

Vulval Awareness Campaign Organisation
Support network:
Phone: 0161 747 5911

This UK organisation is run by women who've had vulval cancer. There is a support network, one to one telephone support and a website with useful information about vulval conditions.

National Cancer Institute
This is the American National Cancer Institute’s patient information site. Its section on cancer of the vulva is detailed and comprehensive.

Vulval Pain Society
PO Box 7804

An information and support service for women with vulval pain and discomfort.

Lymphoedema Support Network
St Luke's Crypt
Sydney Street
London SW3 6NH
Tel: 020 7351 0990 (10am-4pm)
Fax: 020 7349 9809

This is a national charity offering information and support to anyone affected by lymphoedema. They have over 3500 members, 66 local support groups, run a helpline and have a website. They also produce a range of information including 25 factsheets about lymphoedema and its treatment, 2 DVDs about self management techniques for lymphoedema and a quarterly newsletter.


General support organisations and sites

College of Sexual and Relationship Therapists
PO Box 13686
SW10 9HZ
Phone: 020 8543 2707

Offers counselling and psychotherapy and can give details of local counsellors.

The British Lymphology Society
British Lymphology Society
24 Kiniths Crescent
West Bromwich
B71 4BX
Phone : 01452 790178
Email :

A charitable organisation with a membership of health care professionals from various specialities, and people who have a direct interest in ensuring that people with lymphoedema have access to the care and treatment that they need. Has a directory of lymphoedema specialist practitioners.

Sexual Advice Association
Telephone 020 7486 7262

Information on sexual problems that can affect men and women. They provide lists of local specialist practitioners, as well as factsheets on problems such as erectile dysfunction (impotence).

Pelvic Radiation Disease  Association
Phone: 01372 744338

A patient led group which aims to promote understanding about pelvic radiation disease which can be a late effect of radiotherapy treatment. They offer support to patients and campaign for more research and better treatment for this condition. They mainly focus on bowel problems caused by pelvic radiotherapy.

Macmillan Cancer Support
Head Office
89 Albert Embankment

Macmillan CancerLine: 0808 808 0000 (Mon to Fri, 9am to 9pm; information available in other languages)
Textphone: 0300 330 0630

Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run helplines providing cancer information and benefits advice.

Switchboard LGBT + helpline
PO Box 7324
N1 9QS

Helpline: 0300 330 0630 (Everyday 10am-10pm)
Helpline for lesbians, gay, bisexual and transgender communities in the UK. Gives advice and information. 


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Updated: 5 July 2016