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Follow up for soft tissue sarcoma

Men and woman discussing soft tissue sarcomas

This page is about follow up after treatment for soft tissue sarcoma.

A quick guide to what's on this page

Follow up for soft tissue sarcoma

After your treatment has finished, you will have regular check ups. You may have blood tests, X-rays and CT scans or MRI scans. You will not have all these tests at every visit to your specialist. But your doctor will examine you and ask how you are feeling and whether you have had any symptoms or are worried about anything.

Generally speaking, the routine follow up after treatment for soft tissue sarcoma is 

  • 3 to 6 monthly appointments for the first 2 to 5 years
  • Then yearly appointments

If you are worried or notice any new symptoms between appointments, you must let your doctor know as soon as possible. You don’t have to wait until the next appointment.

Many people find their check ups quite worrying. They can bring all the worry about your cancer back to you. You may find it helpful to tell someone close to you how you feel. Many people find that counselling helps after cancer treatment. To find out about counselling, look in the coping with cancer section.

 

CR PDF Icon You can view and print the quick guides for all the pages in the Treating soft tissue sarcoma section.

 

Follow up appointments after sarcoma treatment

After your treatment has finished, you will have regular check ups. These may include

You will not have all these tests at every visit to your specialist. But your specialist will examine you at each appointment. Your doctor will also ask how you feel and whether you have had any symptoms or are worried about anything. Depending on the type and grade of your soft tissue sarcoma, you may have a regular chest X-ray at your check ups. At first, your check ups will be every few months. But if all is well, they will gradually become less and less frequent. 

Generally speaking, the routine follow up after treatment for intermediate or high grade soft tissue sarcoma is 

  • 3 to 4 monthly appointments for the first 2 to 3 years
  • 6 monthly appointments up to 5 years
  • Then yearly appointments

For low grade sarcoma, the routine follow up is usually

  • 4 to 6 monthly appointments for the first 3 to 5 years
  • Then yearly appointments

You are only likely to have MRI scans or CT scans if you have symptoms that need to be checked out. Research in this area has proved to specialists that most people don't need regular CT or MRI scans unless there is a suspicion that something could be wrong.

If you are worried or notice any new symptoms between appointments, let your doctor know as soon as possible. You don’t have to wait until the next appointment.

Many people find they get very nervous before their check ups. If you are feeling well and getting on with life, a hospital appointment can bring all the worry about your cancer back to you. You may find it helpful to tell someone close to you how you feel. If you are able to share your worries, they may not seem quite so bad. Many people find it helpful to have counselling after cancer treatment. To find out about counselling, look in the coping with cancer section.

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Updated: 25 February 2015