Soft tissue sarcoma organisations
This page gives information about organisations and websites that help and support people with soft tissue sarcomas. There is information about
The websites on cancer listed on this page are valuable sources of detailed information on cancer. They may use more technical terms, longer pages and fewer images than our site.
Cancer Research UK
407 St John Street
Helpline: 0808 800 40 40
Admin phone number: 020 7242 0200
Cancer Research UK is the largest cancer research organisation in the world, outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through our website, which includes patient information and news and resources, and through our range of health awareness leaflets.
If you have a question about cancer, and you are in the UK or Ireland, you can contact our team of specialist cancer information nurses using this form, or by telephoning freephone 0808 800 40 40.
If you would like to talk to someone affected by cancer, share experiences or find information, you can visit our Cancer Chat forum.
This organisation was started by a UK man who had a soft tissue sarcoma. The website has useful contacts for support and a list of links to other quality websites with information about sarcomas. There is also a newsletter published on the site and access to an email support forum. You have to register to use this, but it is free.
GIST support UK
GIST Support UK is a network of people with GIST and their relatives. Everyone involved has experience of GIST (gastro intestinal stromal tumours – a type of sarcoma). The website has brief information about GIST and its treatment and a list of links. The organisation runs phone and email support networks and and forum and it has two meetings a year.
Website address: www.gistsupportuk.com
The Squire Centre
33–37, University Street,
Provides help, support and information for people who have any form of facial disfigurement including disfigurement caused by cancer.
Disabled Living Foundation
Hammersmith Bridge Road
Information and advice on all aspects of disability.
Lets Face It
72 Victoria Avenue
Westgate on Sea
Provides support to people with facial disfigurement, including people that have or had cancer on their face.
Waterhouse Business Centre
2 Cromer Way
Phone: 01245 216 670 or 01245 216 671 or 01245 216 672
Helpline: 0800 644 0185
Runs support groups, publications, information and advice for people of all ages who have had amputations. They run a helpline and drop in centre. The centre is open on Mondays, Wednesdays and Fridays from 9am to 2pm. They ask that you phone to arrange an appointment.
Disability Rights UK
49-51 East Road,
London N1 6AH
National disability organisation. Has an information and advice service, and campaigns for disabled people's rights.
This commercial company makes waterproof covers for dressings or casts on arms and legs. This means you can go swimming or take a bath or shower without worrying. The cover can also be used for an arm with a PICC line. Ask your specialist or nurse about getting one on the NHS or you can buy one direct from the company. There are full details and a price list on their website.
Macmillan Cancer Support
89 Albert Embankment
Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run helplines providing cancer information and benefits advice.
Macmillan Cancer Support – Cancer Info for teens and young adults with cancer (formerly Teen Info on Cancer – TIC)
Macmillan Cancer Support has a separate section on their website for teenagers and young adults with cancer. It offers advice and support on how to cope with cancer, and the chance to share experiences of cancer with other teenagers.
A national charity providing specialist units, support, education and information for teenagers with cancer and their families. The TCT also funds research into young people's cancers. It holds annual conferences for teenagers with cancer and the health professionals who look after them.
US National Cancer Institute website
The link below takes you to the American National Cancer Institute's patient information about soft tissue sarcoma. It is detailed and comprehensive but there are no images
Website: National Cancer Institute
Rated 5 out of 5 based on 4 votes
Question about cancer? Contact our information nurse team