Where this rare cancer information comes from
On this page are the major sources of information that we use to put together this section of the website.
All our information is checked by cancer specialists and surgeons who specialise in treating cancer. The names of our specialist reviewers are at the end of this list. We also try to find patients to review all our sections. If you have had a rare cancer, live in the UK, and would like to become a patient reviewer, you can write to us by using this form.
Principles and practice of oncology (9th edition)
De Vita, V.T., Hellman, S. and Rosenberg S.A.
Lippincott, Williams and Wilkins, 2011
Cancer and its management (6th edition)
Tobias J and Hochhauser D
AJCC Cancer Staging Manual (7th edition)
American Joint Committee on cancer
Referral Guidelines for Suspected Cancer
The National Institute for Health and Care Excellence (NICE), June 2015
Scottish Referral Guidelines for Suspected Cancer: A quick reference guide
The Scottish Government, March 2009
Rare cancers are not so rare: the rare cancer burden in Europe, Gatta G. et al.
European Journal of Cancer. 2011. Oct 25. 47: 2493- 2511
Our reviewer for the main section is Nilima Parry-Jones, Consultant haematologist.
Information about specific types of rare cancer is reviewed by specialists for that particular cancer type.
Dee McLean – MeDee Art, Medical Illustration
Question about cancer? Contact our information nurse team