Where this rare cancer information comes from | Cancer Research UK
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Where this rare cancer information comes from

On this page are the major sources of information that we use to put together this section of the website.


About this page 

All our information is checked by cancer specialists and surgeons who specialise in treating cancer. The names of our specialist reviewers are at the end of this list. We also try to find patients to review all our sections. If you have had a rare cancer, live in the UK, and would like to become a patient reviewer, you can write to us by using this form.



Cancer Research UK
CancerStats Series

US National Cancer Institute

Rare Cancers Europe

International Rare Cancers Initiative



Principles and practice of oncology (9th edition)
De Vita, V.T., Hellman, S. and Rosenberg S.A.
Lippincott, Williams and Wilkins, 2011

Cancer and its management (6th edition)
Tobias J and Hochhauser D
Wiley-Blackwell, 2010

AJCC Cancer Staging Manual (7th edition)
American Joint Committee on cancer
Springer, 2010


UK guidelines

Referral Guidelines for Suspected Cancer
The National Institute for Health and Care Excellence (NICE), June 2015

Scottish Referral Guidelines for Suspected Cancer: A quick reference guide
The Scottish Government, March 2009


Articles and reviews

Rare cancers are not so rare: the rare cancer burden in Europe, Gatta G. et al.
European Journal of Cancer. 2011. Oct 25. 47: 2493- 2511


Specialist reviewers

Our reviewer for the main section is Nilima Parry-Jones, Consultant haematologist.

Information about specific types of rare cancer is reviewed by specialists for that particular cancer type.  



Dee McLean – MeDee Art, Medical Illustration

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Updated: 27 February 2014