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Follow up for non Hodgkin lymphoma

Men and women discussing non Hodgkin's lymphoma

This page tells you about follow up after treatment for non Hodgkin lymphoma. You can find the following information

 

A quick guide to what's on this page

How often will I need check ups?

How often you need check ups depends on your type of NHL and what treatment you had. If you have just finished treatment they will be more frequent. If all is well you will go less and less often. And if you are in a long term remission then your appointments may only be once a year.

What tests will be done?

Your doctor will examine you and you will probably have blood tests at each appointment. Sometimes you will have an X-ray or scan. Your doctor will ask how you are feeling and whether you have any new symptoms. 

It is important to remember that if you are worried or notice any new symptoms between appointments let your doctor or nurse specialist know straight away. You don't have to wait until the next appointment.

Feeling worried about your check ups

Many people find their check ups quite unsettling. They can bring back all the worry about having cancer. You may find it helpful to tell someone close to you how you are feeling. Or the Lymphoma Association may be able to put you in touch with other people who have had lymphoma. It is quite common nowadays for people to have counselling after cancer treatment. To find out more about counselling, look in the coping with cancer section.
 

CR PDF Icon You can view and print the quick guides for all the pages in the Treating NHL section.

 

 

How often you will need check ups

How often you need check ups depends on your type of NHL and what treatment you had. If you have just finished treatment they will be more frequent. If all is well you will go to outpatient clinics less and less often. And if you are in a long term remission then your appointments may only be once a year.

 

What tests will be done

Your doctor will examine you and you will probably have blood tests at each appointment. Your doctor will ask how you are feeling and whether you have any new symptoms. Sometimes you will also have an X-ray or scan. 

If you develop any new symptoms you may have any of the following tests

If you are worried or notice any new symptoms between appointments, let your doctor or nurse specialist know straight away. You don't have to wait until your next appointment. They would rather know if there is something worrying you.

 

Feeling worried about your check ups

Many people find their check ups quite unsettling. If you are feeling well and getting on with your life, a hospital appointment can bring back all the worry about having cancer. You may find it helpful to tell someone close to you how you are feeling. If you can share your worries, they may not seem quite so bad.

You may prefer to talk to someone outside your circle of family and friends. You could try talking to someone at your local church or place of worship. Or you could discuss things with someone at a cancer support group who may have been through similar experiences. The Lymphoma Association may be able to put you in touch with other people who have had lymphoma.

It is quite common nowadays for people to have counselling after cancer treatment and it can be very helpful. We have information about counselling.

Look at the NHL organisations page for organisations that can put you in touch with a support group. We also have details of organisations who can help you to find sources of emotional support and counselling in your area.

If you want to find people to share experiences with online, you could use Cancer Chat, our online forum.

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Updated: 26 September 2014