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Eye cancer organisations

This page gives information about organisations and websites that help and support people with eye cancers. There is information about


Using this page

The websites listed on this page are valuable sources of detailed information on eye cancer. They may use more technical terms, longer pages and fewer images.

You can find details about general cancer support organisations on our general cancer organisations page. We have information about counselling organisations in the counselling section.


Cancer Research UK information and support

Cancer Research UK
Angel Building
407 St John Street

Helpline: 0808 800 40 40
Admin phone number: 020 7242 0200
Main website: www.cancerresearchuk.org

Cancer Research UK is the largest cancer research organisation in the world, outside the USA. It is the European leader in the development of new anti cancer drugs. It funds research on all aspects of the disease from its causes, to treatment and prevention.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through our website, which includes patient information and, news and resources and through our range of health awareness leaflets.

If you have a question about cancer, and you are in the UK or Ireland, you can contact our team of specialist cancer information nurses using this form, or by telephoning freephone 0808 800 40 40.

If you would like to talk to someone affected by cancer, share experiences or find information, you can visit our Cancer Chat forum.


UK eye cancer organisations and sites

Childhood Eye Cancer Trust
The Royal London Hospital
Whitechapel Road
E1 1BB

Phone: 020 7377 5578 (Mon to Fri, 9am to 5pm)
Website: www.chect.org.uk
Email: info@chect.org.uk

A UK wide charity for families and people affected by retinoblastoma. They offer support and information, fund research and raise public awareness of this rare cancer.

OcuMel UK
139 Langley Road

A UK support charity for people with ocular melanoma.

Helpline: 0300 790 0512
Website: www.ocumeluk.org
Email: info@ocumeluk.org


Organisations for problems with eyesight

The British Computer Association for the Blind
The British Computer Association for the Blind has information about a self help group of visually impaired computer professionals and users.

Calibre Recorded Books
Calibre Recorded Books aim to make the pleasure of reading available to anyone who cannot read ordinary print books for whatever reason.

The Guidedogs website provides information about guide dogs, mobility and other rehabilitation services that meet the needs of blind and partially sighted people.

The NHS Artificial Eye Service
221 Bristol Avenue

Helpline: 01253 951131
Website: www.naes.nhs.uk
Email: info@naes.nhs.uk

The NHS Artificial Eye Service is part of the NHS. They supply and fit artificial eyes, as well as checking the artificial eyes for people who wear one. Their website includes information about how your artificial eye is fitted and caring for your eye afterwards. They also have a helpline.

Royal National Institute of Blind People
The RNIB is the UK’s leading charity offering information, support and advice to people with sight problems. They have detailed information to help anyone with a sight problem. Services include Braille, Talking Book and computer training, and imaginative and practical solutions to everyday challenges. They also run a national library service providing books and information services for visually impaired people.

Talking Newspaper Association UK
Talking Newspaper Association UK (TNAUK) has more than 200 national newspapers and magazines on audio cassette for visually impaired and disabled people. They offer subscribers a choice of formats including audio cassette, computer disk, email, via the TNAUK Bulletin Board, CD-ROM or through their website.

Macular Disease Society
The Macular Disease Society is a self help society for people with eye conditions called Macular Disease. They are dedicated to providing information and practical support to help people with poor vision make the most of their remaining sight.

LOOK UK supports parents and carers of children with serious sight problems. It campaigns for better services for people with sight disabilty. 

Lost Eye
Lost eye is an American website and discussion forum. It is a completely free, noncommercial website for the information and support of people who have recently lost an eye, or who may lose an eye due to surgery, injury or disease. You can get help, support and tips from people who have adjusted to losing an eye. As it is an American site some of the issues are not relevant to the UK.


Organisations giving help for facial changes

Changing Faces
The Squire Centre
33–37 University Street

Phone: 0845 4500 275
Helpline: 0300 0120 275
Skin Camouflage Service: 0300 0120 276
Website: www.changingfaces.org.uk
Email: info@changingfaces.org.uk

Provides written information and telephone support to anyone with any kind of facial disfigurement.

Let's Face It
72 Victoria Avenue
Westgate On Sea

Phone: 01843 833 724
Website: www.lets-face-it.org.uk
Email: chrisletsfaceit@aol.com

A UK national help organisation for people with facial disfigurement. It offers telephone support, a service to link up people in similar situations, dietary and medical advice, social activities, resources and a newsletter. Also gives support to people with facial palsy. Provides information on camouflage make up.

Saving Faces The Facial Surgery Research Foundation
St Bartholomew's Hospital
West Smithfield

Phone: 0203 465 5755
Website: www.savingfaces.co.uk

If you would like to talk to someone who has been in a similar situation, Saving Faces can put you in touch with other people who have had facial surgery.


Support organisations

Eye Cancer Forum UK
The Eye Cancer Forum UK website is an online community where people with ocular melanoma can get support and share their stories. 

Rarer Cancers Forum
The Rarer Cancers Forum website has several message boards so people with less common or rarer cancers can get in touch with each other. Friends and families of people with rarer cancers can also use the message boards to share their experiences, give support or get advice from people in similar situations. The website also offers general advice and information.

Macmillan Cancer Support
Head Office
89 Albert Embankment

Macmillan CancerLine: 0808 808 0000 (Mon to Fri, 9am to 8pm; information is available in other languages)
Textphone: 0808 808 0121
Website: www.macmillan.org.uk

Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run helplines providing cancer information and benefits advice.

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Updated: 6 July 2015