Follow up for chronic lymphocytic leukaemia (CLL) | Cancer Research UK
Cancer Research UK on Google+ Cancer Research UK on Facebook Cancer Research UK on Twitter

Follow up for chronic lymphocytic leukaemia (CLL)

Men and women discussing chronic lymphocytic leukaemia

This page is about follow up appointments for chronic lymphocytic leukaemia (CLL). There are sections about

 

A quick guide to what's on this page

Why have check ups?

Treatments for CLL usually aim to control rather than cure it. So your doctor will arrange for you to have regular check ups during treatment and afterwards.

Tests you may have

You will have blood tests at your check ups and your doctor will want to know how you feel. You may have a physical examination as well. Sometimes your doctor may want to do a bone marrow test.

If you are worried or notice any new symptoms between check ups, tell your doctor straight away. You don't have to wait for your next appointment.

Worrying about your appointments

Many people find their check ups quite worrying, especially at first. It may be helpful to tell someone close to you how you are feeling. Many people find that counselling helps them after cancer treatment. To find out more about counselling, look in our coping with cancer section.

 

CR PDF Icon You can view and print the quick guides for all the pages in the Treating CLL section.

 

 

Why you need check ups

Treatments for CLL usually aim to control rather than cure it. So, your doctor will arrange for you to have regular check ups during treatment and afterwards.

 

How often you have check ups

How often you see your specialist will depend on whether you are having treatment and how you are feeling. If you are not having any treatment, you will only need to see the doctor every 3 to 6 months. If you are having treatment, you will need to see your doctor regularly, maybe weekly or monthly, depending on how things are going.

 

What happens at check ups

You will have blood tests at your check ups and your doctor will want to know how you are feeling. You may have a physical examination as well. Sometimes your doctor may want to do a bone marrow test. 

If everything is going well, the time between check ups will gradually get longer. If you are worried, or notice any new symptoms between appointments, let your doctor or specialist nurse know straight away. You don't have to wait until the next appointment. Your doctor or clinical nurse specialist would rather know if there is something worrying you.

 

Coping with worry

Many people find their check ups quite worrying. If you are feeling well and getting on with your life, a hospital appointment can bring back all the worry about having leukaemia. You may find it helpful to tell someone close to you how you are feeling. If you are able to share your worries, they may not seem quite so bad.

You may prefer to talk to someone outside your circle of family and friends. You could try talking to someone at a cancer support group who may have been through similar experiences. Or you could contact your local church or place of worship. Many people find it helps to have counselling after cancer treatment. To find out about counselling look in our coping with cancer section.

Some of the chronic lymphocytic leukaemia organisations can put you in touch with a support group. The general cancer organisations page also has details of organisations who can help you to find sources of emotional support and counselling in your area.

If you want to find people to share experiences with on line, you could use CancerChat, our online forum. 

Rate this page:
Submit rating

 

Rated 5 out of 5 based on 1 votes
Rate this page
Rate this page for no comments box
Please enter feedback to continue submitting
Send feedback
Question about cancer? Contact our information nurse team

No Error

Updated: 19 March 2015