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Follow up for carcinoid

Men and women discussing carcinoid cancer

This page tells you about follow up appointments for carcinoid (neuroendocrine tumours).

 

A quick guide to what's on this page

Follow up for carcinoid

After your treatment is finished, you will have regular check ups. These may include an examination by your doctor, urine and blood tests, and scans or X-rays. Your doctor will ask you how you are feeling and if you have had any symptoms.

How often will I have check ups?

At first, your check ups will be every few weeks or months. They will gradually become less frequent. If you are worried, or have a new symptom between appointments, tell your doctor or specialist nurse as soon as possible. You don’t have to wait until your next appointment.

Worrying about your appointments

Many people worry about going for their check ups. You may find it helpful to tell someone close to you about how you are feeling. It is very common for people to have counselling after their treatment. Sharing your concerns can make them seem easier to cope with.

 

CR PDF Icon You can view and print the quick guides for all the pages in the treating carcinoid section.

 

 

What happens at follow up appointments

After your treatment is finished, you will have regular check ups. These may include

You won’t have all these tests at every visit, but your doctor will examine you each time. Your doctor will ask

  • How you are feeling
  • If you have symptoms
  • If you are worried about anything

How often you have scans will depend on your individual case and your hospital guidelines.

 

How often you have check ups

This varies depending on your situation, such as the type of tumour and its stage at diagnosis. At first, your check ups will be every few weeks or months. They will gradually become less frequent. If you are worried, or have a new symptom between appointments, tell your doctor or specialist nurse as soon as possible. You don’t have to wait until your next appointment.

 

Worrying about your appointments

Many people worry about going for their check ups. If you are well and getting on with your life, having a follow up appointment can bring back all the worry about your diagnosis. You may find it helpful to tell someone close to you about how you are feeling. It is very common for people to have counselling after their treatment. Sharing your concerns can make them seem easier to cope with.

If you would like to talk to someone other than your family and friends look at our carcinoid tumour organisations list for details of people who can help. 

Read more about counselling.

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Updated: 27 June 2016