Brain tumour organisations
This page gives information about organisations and websites that help and support people with brain tumours. There is information about
The websites on cancer listed on this page are valuable sources of detailed information. They may use more technical terms, longer pages and fewer images than our website.
You can find details about general cancer support organisations on our general cancer organisations page.
Cancer Research UK
407 St John Street
London EC1V 4AD
Helpline freephone number: 0808 800 40 40
Admin phone number: 020 7242 0200
Cancer Research UK is the largest cancer research organisation in the world, outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through our website, which includes patient information and news and resources, and through our range of health awareness leaflets.
If you have a question about cancer, and you are in the UK or Ireland, you can contact our team of specialist cancer information nurses using this form, or by telephoning freephone 0808 800 40 40.
If you would like to talk to someone affected by cancer, share experiences or find information, you can visit our Cancer Chat forum.
Brain Tumour Action
25 Anne Street
Phone: 0131 466 3116
This organisation provides support and counselling. They are based in Scotland and run a number of support groups which meet there, and throughout the UK. There is a discussion group on their website.
The Brain Tumour Charity
61–65 Victoria Road
Support line: 0808 800 0004
The Brain Tumour Charity (originally called the Samantha Dickson Brain Tumour Trust) was set up in 1996. It is the UK’s largest dedicated brain tumour charity, funding scientific and clinical research into brain tumours. It also offers support and information to people affected, whilst raising awareness and influencing policy.
A charity that helps people affected by a brain tumour, aims to improve care and gives support during treatment. It has a support line and organises meet ups in various areas of the UK.
British Acoustic Neuroma Association
Tapton Park Innovation Centre
This association offers support and information to anybody affected by acoustic neuroma.
Brain and Spine Foundation
3.36 Canterbury Court
1–3 Brixton Road
This foundation provides information and support for people affected by neurological conditions, their relatives, and health professionals. The helpline is staffed by neuroscience health professionals. Brain and Spine also produces free booklets on a range of neurological conditions including brain and spinal tumours.
An international online support group with a message board to help you get in touch with other people affected by chordoma.
190 Bagnall Road
Offers advice and support to people affected by a brain injury.
Macmillan Cancer Support
89 Albert Embankment
Macmillan CancerLine: 0808 808 0000 (Mon to Fri, 9am to 8pm; information available in other languages)
Textphone: 0808 808 0121
Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run a helpline providing cancer information and benefits advice.
Macmillan Cancer Support – Cancer Info for teens and young adults with cancer (formerly Teen Info on Cancer – TIC)
Macmillan Cancer Support has a separate section on their website for teenagers and young adults with cancer. It offers advice and support on how to cope with cancer, and the chance to share experiences of cancer with other teenagers.
Phone: 01252 749 990
A project that aims to increase the awareness of symptoms of brain tumours in children and young people. Their website is for the public and for health professionals to help to improve the diagnosis of childhood brain tumours in the UK.
The Pituitary Foundation
86 Colston Street
Information on pituitary tumours for people diagnosed with this type of brain tumour.
A national charity providing specialist units, support, education and information for teenagers with cancer and their families. The TCT also funds research into young people's cancers. It holds annual conferences for teenagers with cancer and the health professionals who look after them.
American Brain Tumour Association
This organisation provides a lot of information on its website. Obviously, the site is American and not all the information may apply to the UK.
National Cancer Institute
This is the American National Cancer Institute's patient information on brain tumours.
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Question about cancer? Contact our information nurse team