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Brain tumour organisations

Men and women discussing brain tumours

This page gives information about organisations and websites that help and support people with brain tumours. There is information about

 

Using this page

The websites on cancer listed on this page are valuable sources of detailed information. They may use more technical terms, longer pages and fewer images than our website. 

You can find details about general cancer support organisations on our general cancer organisations page. We have information about counselling organisations in the counselling section.

 

Cancer Research UK information and support

Cancer Research UK
Angel Building
407 St John Street
London EC1V 4AD

Helpline freephone number: 0808 800 40 40
Admin phone number: 020 7242 0200
www.cancerresearchuk.org

Cancer Research UK is the largest cancer research organisation in the world, outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through our website, which includes patient information and news and resources, and through our range of health awareness leaflets.

If you have a question about cancer, and you are in the UK or Ireland, you can contact our team of specialist cancer information nurses using this form, or by telephoning freephone 0808 800 40 40.

If you would like to talk to someone affected by cancer, share experiences or find information, you can visit our Cancer Chat forum.

 

Support and information organisations in the UK

Brain Tumour Action
25 Anne Street
Edinburgh
EH4 1PL

Tel: 0131 466 3116
Website: www.braintumouraction.org.uk

This organisation provides support and counselling. They are based in Scotland and run a number of support groups which meet there, and throughout the UK. There is a discussion group on their website.

The Brain Tumour Charity
Hartshead House
61–65 Victoria Road
Farnborough
GU14 7PA

Support line: 0808 800 0004
Website: www.thebraintumourcharity.org
Email: support@thebraintumourcharity.org

The Brain Tumour Charity (originally called the Samantha Dickson Brain Tumour Trust) was set up in 1996. It is the UK’s largest dedicated brain tumour charity, funding scientific and clinical research into brain tumours. It also offers support and information to people affected, whilst raising awareness and influencing policy.

HeadSmart
Phone: 0845 130 9733
Website: www.headsmart.org.uk
Email: info@headsmart.org.uk

British Acoustic Neuroma Association
Oak House B
Ranson Wood Business Park
Southwell Road West
Mansfield
Nottinghamshire
NG21 OHJ

Freephone: 0800 652 3143
Email: admin@bana-uk.com
Website: www.bana-uk.com

This association offers support and information to anybody affected by acoustic neuroma.

Brain and Spine Foundation
3.36 Canterbury Court
Kennington Park
1–3 Brixton Road
London 
SW9 6DE

Tel: 0808 808 1000 (Monday to Thursday, 9am to 2pm, Fridays 9am to 1pm)
Fax: 020 7793 5939
Email: helpline@brainandspine.org.uk
Website: www.brainandspine.org.uk

This foundation provides information and support for people affected by neurological conditions, their relatives, and health professionals. The helpline is staffed by neuroscience health professionals. Brain and Spine also produces free booklets on a range of neurological conditions including brain and spinal tumours.

Chordoma Support
An international online support group with a message board to help you get in touch with other people affected by chordoma.

Headway
Bradbury House
190 Bagnall Road
Old Basford
Nottingham
NG6 8SF

Helpline: 0808 800 2244 (Open Monday to Friday, 9-5pm)
Website: www.headway.org.uk
Email: helpline@headway.org.uk

Offers advice and support to people affected by a brain injury.

Macmillan Cancer Support
Head Office
89 Albert Embankment
London
SE1 7UQ

Macmillan CancerLine: 0808 808 0000 (Mon to Fri, 9am to 8pm; information available in other languages)
Textphone: 0808 808 0121
Website: www.macmillan.org.uk

Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run a helpline providing cancer information and benefits advice.

Macmillan Cancer Support  Cancer Info for teens and young adults with cancer (formerly Teen Info on Cancer TIC)
Website: www.macmillan.org.uk/Cancerinformation/teensandyoungadults/Infoforteensandyoungadults.aspx/Home
Macmillan Cancer Support has a separate section on their website for teenagers and young adults with cancer. It offers advice and support on how to cope with cancer, and the chance to share experiences of cancer with other teenagers.

The Pituitary Foundation
86 Colston Street
Bristol
BS1 5BB

Support & information helpline: 0845 450 0375 (Open Monday to Friday, 10am to 4pm)
Website: www.pituitary.org.uk
Email: helpline@pituitary.org.uk

Information on pituitary tumours for people diagnosed with this type of brain tumour.

Teenage Cancer Trust
93 Newman Street
London
W1T 3EZ
Phone: 020 7612 0370
Website: www.teenagecancertrust.org

A national charity providing specialist units, support, education and information for teenagers with cancer and their families. The TCT also funds research into young people's cancers. It holds annual conferences for teenagers with cancer and the health professionals who look after them.

 

International information and support organisations

American Brain Tumour Association
This organisation provides a lot of information on its website. Obviously, the site is American and not all the information may apply to the UK.

Chordoma Support
An international online support group with a message board to help you get in touch with other people affected by chordoma

National Cancer Institute
This is the American National Cancer Institute's patient information on brain tumours.

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Updated: 28 January 2014