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Bone cancer organisations

Men and women discussing bone cancer

This page gives information about organisations and websites that help and support people with bone cancer.


Using this page

The websites on cancer listed on this page are valuable sources of detailed information about cancer. They may use more technical terms, longer pages and fewer images than this website.

You can find details about general cancer support organisations. We also have information about counselling organisations in the counselling section.


Cancer Research UK information and support

Cancer Research UK
Angel Building
407 St John Street
London EC1V 4AD

Helpline freephone number: 0808 800 40 40
Admin phone number: 020 7242 0200

Cancer Research UK is the largest cancer research organisation in the world, outside the USA. We are the European leader in the development of new anti cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through our website, which includes patient information and news and resources, and through our range of health awareness leaflets.

If you have a question about cancer, and you are in the UK or Ireland, you can contact our team of specialist cancer information nurses using this form, or by telephoning freephone 0808 800 40 40.

If you would like to talk to someone affected by cancer, share experiences or find information, you can visit our Cancer Chat forum.


Support and information organisations

Macmillan Cancer Support
Head Office
89 Albert Embankment

Macmillan CancerLine: 0808 808 0000 (Mon to Fri, 9am to 9pm; information available in other languages)
Textphone: 0808 808 0121

Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run helplines providing cancer information and benefits advice. 

National Cancer Institute
NCI Public Inquiries Office
9609 Medical Center Drive
Bethesda, MD 20892-9760


The NCI is an American research organisation which also provides information about cancer and it’s treatment for people in the States.

Limbless Association
Unit 10
Waterhouse Business Centre
2 Cromer Way

Telephone: 01245 216 670
Helpline: 0800 644 0185

Encourage support groups, produce quarterly magazine and publications, provide information and advice for people of all ages who have had amputations or who suffer congenital limb loss.

Sarcoma UK
49–51 East Road
N1 6AH

Telephone: 020 7250 8271

This is a support organisation for people with bone or soft tissue sarcomas. They run a website with an email support network and produce a newsletter. There is some brief information about sarcomas on this site.

Bone Cancer Research Trust
10 Feast Field, 
LS18 4TJ

Tel: 0113 258 5934
Fax: 0113 258 7145

Aims to provide information, support and, in the longer term, counselling services for those suffering from primary bone cancer, and their families, and to promote research into the causes and treatment of primary bone cancer, in particular of osteosarcoma and Ewing’s sarcoma.


Children and young people

c/o Ward 11
Royal Orthopaedic Hospital
Bristol Road South
B31 2AP

Phone: 0121 685 4000

ROHBTS was set up in 1989 as a self help group for parents of children with bone cancer. They have now extended their support to all patients that are treated at Woodlands (ROH) as well as offering support for adults with sarcoma.

Teenage Cancer Trust
3rd floor
93 Newman Street

Phone: 020-7612 0370

A charity devoted to improving the lives of teenagers and young adults with cancer. They run a support network for young people with cancer and their friends and families. They also raise funds to build dedicated teenage cancer units in hospitals.

Macmillan Cancer Support Cancer Info for teens and young adults with cancer (formerly Teen Info on Cancer TIC)
Macmillan Cancer Support has a separate section on their website for teenagers and young adults with cancer. It offers advice and support on how to cope with cancer, and the chance to share experiences of cancer with other teenagers.

CLIC Sargent
Horatio House
77–85 Fulham Palace Road
London W6 8JA

Phone: 0300 330 0803
Online enquiry form
Sargent Cancer Care and Cancer and Leukaemia in Childhood merged in 2005 to become CLIC Sargent, a charity which provides clinical, practical, financial and emotional support for children and young people and their families, affected by cancer, from diagnosis onwards.


Disability organisations and equipment suppliers

Disabled Living Foundation
Ground Floor
Landmark House,
Hammersmith Bridge Road,
London W6 9EJ

Helpline: 0300 999 0004 (Mon to Fri, 10am to 4pm)
Phone: 020 7289 6111

The Disabled Living Foundation run a national helpline, an email and letter advisory service, and an equipment demonstration centre, providing solutions for independent living.

Disability Rights UK
Ground Floor,
CAN Mezzanine,
49-51 East Road
London N1 6AH

Phone: 020 7250 8181 (Mon to Fri, 10am to 12.30pm, 1,30pm-4pm)

National disability organisation, with an information and advice service. Previously Royal Association for Disability and Rehabilitation (RADAR). Campaigns for disabled people's rights.

Association for Children with Hand or Arm Deficiency (REACH)
Pearl Assurance House
Brook Street
PL19 0BN

Phone: 0845 130 6225

Offers contact and support for families of children with deformities or difficulty using their hand or arm. Supports research into causes and treatment of upper limb deficiency.

Autono-Med Ltd
Bowcliffe Hall
West Yorkshire
LS23 6LP

Phone: 0870 041 0150

This commercial company makes waterproof covers for dressings or casts on arms and legs. This means you can go swimming or take a bath or shower without worrying. They can also be used for PICC lines. Ask your specialist or nurse about getting one on the NHS or you can buy one direct from the company.

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Updated: 4 February 2015