Bone cancer organisations
This page gives information about organisations and websites that help and support people with bone cancer.
The websites on cancer listed on this page are valuable sources of detailed information about cancer. They may use more technical terms, longer pages and fewer images than this website.
Cancer Research UK
407 St John Street
London EC1V 4AD
Helpline freephone number: 0808 800 40 40
Admin phone number: 020 7242 0200
Cancer Research UK is the largest cancer research organisation in the world, outside the USA. We are the European leader in the development of new anti cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through our website, which includes patient information and news and resources, and through our range of health awareness leaflets.
If you have a question about cancer, and you are in the UK or Ireland, you can contact our team of specialist cancer information nurses using this form, or by telephoning freephone 0808 800 40 40.
If you would like to talk to someone affected by cancer, share experiences or find information, you can visit our Cancer Chat forum.
Macmillan Cancer Support
89 Albert Embankment
Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run helplines providing cancer information and benefits advice.
National Cancer Institute
NCI Public Inquiries Office
9609 Medical Center Drive
Bethesda, MD 20892-9760
The NCI is an American research organisation which also provides information about cancer and it’s treatment for people in the States.
Waterhouse Business Centre
2 Cromer Way
Encourage support groups, produce quarterly magazine and publications, provide information and advice for people of all ages who have had amputations or who suffer congenital limb loss.
This is a support organisation for people with bone or soft tissue sarcomas. They run a website with an email support network and produce a newsletter. There is some brief information about sarcomas on this site.
Bone Cancer Research Trust
10 Feast Field,
Aims to provide information, support and, in the longer term, counselling services for those suffering from primary bone cancer, and their families, and to promote research into the causes and treatment of primary bone cancer, in particular of osteosarcoma and Ewing’s sarcoma.
c/o Ward 11
Royal Orthopaedic Hospital
Bristol Road South
Phone: 0121 685 4000
ROHBTS was set up in 1989 as a self help group for parents of children with bone cancer. They have now extended their support to all patients that are treated at Woodlands (ROH) as well as offering support for adults with sarcoma.
Teenage Cancer Trust
93 Newman Street
A charity devoted to improving the lives of teenagers and young adults with cancer. They run a support network for young people with cancer and their friends and families. They also raise funds to build dedicated teenage cancer units in hospitals.
Macmillan Cancer Support – Cancer Info for teens and young adults with cancer (formerly Teen Info on Cancer – TIC)
Macmillan Cancer Support has a separate section on their website for teenagers and young adults with cancer. It offers advice and support on how to cope with cancer, and the chance to share experiences of cancer with other teenagers.
77–85 Fulham Palace Road
London W6 8JA
Phone: 0300 330 0803
Online enquiry form
Sargent Cancer Care and Cancer and Leukaemia in Childhood merged in 2005 to become CLIC Sargent, a charity which provides clinical, practical, financial and emotional support for children and young people and their families, affected by cancer, from diagnosis onwards.
Disabled Living Foundation
Hammersmith Bridge Road,
London W6 9EJ
The Disabled Living Foundation run a national helpline, an email and letter advisory service, and an equipment demonstration centre, providing solutions for independent living.
Disability Rights UK
49-51 East Road
London N1 6AH
National disability organisation, with an information and advice service. Previously Royal Association for Disability and Rehabilitation (RADAR). Campaigns for disabled people's rights.
Association for Children with Hand or Arm Deficiency (REACH)
Pearl Assurance House
Offers contact and support for families of children with deformities or difficulty using their hand or arm. Supports research into causes and treatment of upper limb deficiency.
This commercial company makes waterproof covers for dressings or casts on arms and legs. This means you can go swimming or take a bath or shower without worrying. They can also be used for PICC lines. Ask your specialist or nurse about getting one on the NHS or you can buy one direct from the company.
Question about cancer? Contact our information nurse team