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Bladder cancer organisations

Men and women discussing bladder cancer

This page gives information about organisations and websites that help and support people with bladder cancer. There is information about

 

Using this page

The websites on cancer listed on this page are valuable sources of detailed information on cancer. They may use more technical terms, longer pages and fewer images than this website.

You can find details about general cancer support organisations on our general cancer organisations page. We have information about counselling organisations in the counselling section.

 

Cancer Research UK information and support

Cancer Research UK
Angel Building
407 St John Street
London EC1V 4AD

Helpline freephone number: 0808 800 40 40
Admin phone number: 020 7242 0200
http://www.cancerresearchuk.org

Cancer Research UK is the largest cancer research organisation in the world, outside the USA. We are the European leader in the development of new anti cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through our website, which includes patient information and news and resources, and through our range of health awareness leaflets.

If you have a question about cancer, and you are in the UK or Ireland, you can contact our team of specialist cancer information nurses using this form, or by calling freephone 0808 800 40 40.

If you would like to talk to someone affected by cancer, share experiences or find information, you can visit our Cancer Chat forum.

 

Support and information organisations

Fight bladder cancer
Confidential online support forum: www.fightbladdercancer.co.uk/content/our-confidential-forum

A charity founded and run by bladder cancer survivors and their families. They provide a support network and a confidential online forum where you can find out how treatments may affect you.

The Urostomy Association
Mrs. Hazel Pixley
4 Demontfort Way
Uttoxeter
Staffordshire
ST14 8XY

Tel: 01889 563191
Email: secretary.ua@classmail.co.uk
Website: www.urostomyassociation.org.uk

The Urostomy Association is a self help organisation that runs a network of groups throughout the country. They can arrange for someone who has had a urostomy to visit you before and after your surgery.

Disability Rights UK (Formerly RADAR)
12 City Forum,
250 City Road,
London EC1V 8AF

Phone: 020 7250 3222
Fax: 020 7247 8765
Website: disabilityrightsuk.org
Email: enquiries@disabilityrightsuk.org

National disability organisation. Has an information and advice service, and campaigns for disabled people's rights. Also provides a Just Can't Wait card to give access to toilets throughout the UK for people who may need to use a toilet in a hurry.

Macmillan Cancer Support
Head Office
89 Albert Embankment
London
SE1 7UQ

Macmillan CancerLine: 0808 808 0000 (Mon to Fri, 9am to 9pm. Information available in other languages)
Textphone: 0808 808 0121
Email: cancerline@macmillan.org.uk
Website: www.macmillan.org.uk

Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run helplines providing cancer information and benefits advice. 

National Cancer Institute
BG 9609 MSC 9760
9609 Medical Center Drive
Bethesda, MD 20892-9760

Website: http://www.cancer.gov/

The NCI is an American research organisation which also provides information about cancer and it’s treatment for people in the States. Their section about bladder cancer is detailed and comprehensive but there are no images.

Sexual Advice Association
Suite 301, Emblem House
London Bridge Hospital
27 Tooley Street
London
SE1 2PR

Telephone 020 7486 7262
Website www.sda.uk.net
Email: info@sexualadviceassociation.uk.net

Information on sexual problems that can affect men and women. They provide lists of local specialist practitioners, as well as factsheets on problems such as erectile dysfunction (impotence).

Pelvic Radiation Disease  Association
Phone: 01372 744338
Email: info@prda.org.uk
Website: www.prda.org.uk

A patient led group which aims to promote understanding about pelvic radiation disease which can be a late effect of radiotherapy treatment. They offer support to patients and campaign for more research and better treatment for this condition. They focus mainly on bowel problems following pelvic radiotherapy.

 

Continence organisations

Bladder & Bowel Foundation
SATRA Innovation Park
Rockingham Road
Kettering
Northants
NN16 9JH

Helpline: 0845 345 0165
Phone: 01536 533255
Email: info@bladderandbowelfoundation.org
Website: www.bladderandbowelfoundation.org

The Bladder and Bowel Foundation (B&BF) is a UK wide charity dedicated to helping people manage their continence needs as a result of both bladder and bowel control problems.  B&BF provides information and support services, including a confidential, clinical helpline, for people affected by these conditions, as well as their families, carers and healthcare professionals.

 

Suppliers of stoma appliances

Braun Medical Ltd
Thorncliffe Park
Sheffield
S35 2PW

Phone: 0114 2259000
Website: www.bbraun.co.uk


CliniMed Limited
Cavell House
Knaves Beech Way
Loudwater
High Wycombe
HP10 9QY

Phone: 0800 036 0100
Website: www.clinimed.co.uk

They have a delivery service for prescribed appliances.


Coloplast Ltd
Nene Hall
Peterborough Business Park
Cambridge
PE2 6FX

Tel: 0800 220 622
Website: www.coloplast.co.uk
Email: gbccare@coloplast.com

This company can send you a copy of a free booklet about continent urinary diversion.


ConvaTec Professional Services
Harrington House
Milton Road
Ickenham
Uxbridge
Middlesex
UB10 8PU

Phone: 0800 834 822
Website: www.convatec.co.uk
Email: stoma.webcare@convatec.com


Dansac Limited
James Hall
St Ives Business Park
Parsons Green
St. Ives
Cambridgeshire
PE27 4AA

Phone: 0800 581 117
Website: www.dansac.co.uk


Hollister Ltd
Rectory Court
42 Broad Street
Wokingham
Berkshire
RG40 1AB

Phone: 0800 521377 (Customer Care team)
Website: www.hollister.com/uk/continence

They have a delivery service for prescribed appliances.
 

Marlen Healthcare Limited
Shell Building
Malt Mill Lane
Halesowen
West Midlands
B62 8JB

Phone:0330 555 1250
Website: www.marlenhealthcare.co.uk
 

OakMed Ltd
Unit B
The I O Centre
Barn Way
Lodge Farm Industrial Estate
Northampton
NN5 7UW

Phone: 0800 592 786
Website: www.oakmed.co.uk
 

Peak Medical Ltd
Unit 4, Manor Farm Barns
Cornbury Park
Finstock
Oxfordshire
OX7 3DG

Phone: 0800 652 0424
Website: www.peakmedical.co.uk
 

Pelican Healthcare Ltd
Cardiff Business Park
Cardiff
CF14 5WF

Phone: 0800 052 7471
Website: www.pelicanhealthcare.co.uk


Salts Healthcare Ltd
Richard Street
Aston
Birmingham
B7 4AA

Phone: 0800 626 388
Website: www.salts.co.uk
 

Ostomy Covers by Linda
Linda Butler
2 Holmes Road
Kirton End
Boston
Lincs
PE20 1SP

Phone: 0800 626 388
Email: lindabutler59@hotmail.com
Website: www.ostomycoversbylinda.co.uk

Handcrafted covers made to fit every size of ostomy bag or pouch following surgery resulting in a stoma, ie ileostomy, colostomy or urostomy. The covers come in a wide range of fabrics and are specifically tailored to fit each individual stoma bag.

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Updated: 13 November 2013