Acute lymphoblastic leukaemia follow up | Cancer Research UK
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Acute lymphoblastic leukaemia follow up

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This page tells you about follow up appointments for acute lymphoblastic leukaemia (ALL). You can find information about

 

A quick guide to what's on this page

Acute lymphoblastic leukaemia follow up

After your treatment has finished, you will need to have regular check ups. This is because it is possible that the leukaemia could come back. And if you had intensive treatment, or are having maintenance therapy, your doctors need to keep an eye on you to make sure you don't have any complications.

How often you have check ups

Your check ups will continue for several years. You see your doctor every month while you are having maintenance treatment. A typical follow up schedule after this would be monthly for 3 months, then 2 monthly for 6 months, and then 3 monthly for up to 3 years after your treatment.

What happens during your check up

Check ups are likely to include blood tests and bone marrow tests. Your doctor will examine you and make sure you don’t have any new symptoms. They will also ask about any side effects you may have from your treatment. Let your doctor or nurse know straight away if you are worried, or notice any new symptoms between appointments. You don't have to wait until the next appointment.

Coping with worry

Many people worry about going for their check ups. You may find it helpful to tell someone close to you how you are feeling. It is common for people to have counselling after leukaemia treatment. To find out more about counselling, look in the coping with cancer section.
 

CR PDF Icon You can view and print the quick guides for all the pages in the treating ALL section.
 

 

Why you need check ups

After your treatment has finished, you will need to have regular check ups. This is because it’s possible that the leukaemia could come back. And if you had intensive treatment, or are having maintenance chemotherapy, your doctors need to keep an eye on you to make sure you don't have any complications.

 

How often you have check ups

Your check ups will continue for several years. You see your doctor every month while you are having maintenance treatment. A typical follow up schedule after this would be monthly for 3 months, then 2 monthly for 6 months, and then 3 monthly for up to 3 years after your treatment.

 

What happens during your check up

Check ups are likely to include

  • Blood tests
  • Bone marrow tests

At the very least, your doctor will examine you and take a blood test at each appointment. Your doctor will ask how you are feeling and make sure you don’t have any new symptoms. They will also ask about any side effects you may have from your treatment. You probably won't have routine scans or X-rays. But if you or your doctor are worried about any signs or symptoms, your doctor will arrange any necessary tests.

Let your doctor or nurse know straight away if you are worried, or notice any new symptoms between appointments. You don't have to wait until the next appointment. Your doctor would rather know if there is something worrying you.

Your doctor or nurse should give you some guidance about which symptoms to look out for if you are on treatment. They will tell you who to contact if you have any problems or worries.

 

Coping with worry

Many people worry about going for their check ups. If you are well and getting on with your life, it can bring back all the worry about your leukaemia. You may find it helpful to tell someone close to you how you feel. Sharing your concerns can help. It is common for people to have counselling after cancer treatment. To find out about counselling, look in the coping with cancer section.

Don’t be surprised though if you find it quite reassuring to go back for check ups. Acute leukaemia treatment is tough. You are often in hospital for months. Being away from the hospital can make you feel quite nervous at first. So it can be reassuring to go back and make sure everything is still OK.

If you would like to talk to someone outside your family and friends, look at the acute leukaemia organisations page. Some of the organisations can put you in touch with counselling services and support groups.

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Updated: 4 June 2015