Information about the emotional and practical sides of coping with advanced pancreatic cancer.
Advanced cancer usually means your cancer cannot be cured. But your doctor may suggest treatment to try to slow its growth and relieve symptoms.
You will need to talk to your own specialist to understand:
- what the diagnosis means for you
- what treatment is available
- how treatment may help you
You are likely to feel very uncertain and anxious about the future. You may find it impossible to think about anything other than having cancer.
Some people say a diagnosis of advanced cancer helps them appreciate ordinary everyday things much more than they did.
You will need to work out your priorities. Think about how you want to spend your time - what is important to you and what is not.
Some of your future plans may no longer be realistic but you do not have to abandon them all. You may be able to adapt some. And you may get round to doing something you have always wanted to do, but were not able to make time for.
Finding out that you have advanced cancer when you are diagnosed, or that your cancer has come back, can be devastating. You may feel shocked and confused, and find it difficult to take in anything that is being said to you.
You are likely to feel a range of powerful emotions at first. Anger, fear, and sadness may come one on top of the other, leaving you exhausted.
You may think you should be talking all this through with your partner, other family members or close friends. But you may find this really hard to do.
There is no set way of handling all this. You may need to try to put your own thoughts in order before talking to anyone else.
You may want to talk to someone straight away to help you work out how you are feeling. You should do whatever feels right for you.
You may find yourself wondering why you have cancer or if you could have prevented your illness. These questions are very common amongst people with cancer. Many people blame themselves for no real reason.
We do not know why some people get particular cancers and others who behave the same way (or worse) do not. This uncertainty can be very difficult to deal with. You may feel you have to know why you have cancer. But that may not be possible.
You can get support both emotionally and practically through your hospital, local hospice and GP practice, as well as charities and support groups.
Coping with everyday life
It is important that you feel as well as you possibly can. If you have symptoms, ask your doctor or nurse about a referral to a symptom control nurse (sometimes called a Macmillan nurse or palliative care nurse).
A specialist nurse can work with you and your doctor to help control your cancer symptoms and improve your physical well being.
Many have counselling training and can help you and your carers work through some of your emotions.
If you are having any physical difficulties in coping at home your specialist nurse or a district nurse can talk to you about ways you may cope more easily.
Your specialist nurse or GP should be able to help you get grants for heating costs, holidays and other household expenses related to your illness. They can also help you to claim benefits for yourself or for the person caring for you.
It may be helpful to see a social worker. Many hospital cancer departments have a social worker available for patients.