Find organisations, support groups, books, videos and other resources to help you cope with nasopharyngeal cancer and its treatment.
Cancer Research UK
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website, our news and resources, and our range of health awareness leaflets.
Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.
If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.
Head and neck cancer organisations
This UK based charity works to improve standards of mouth care. Their website has good information on cancer and caring for your mouth.
The Oral Health Foundation was called the British Dental Health Foundation until 2016.
This UK charity provides support and information for people who have any form of facial disfigurement, including disfigurement caused by cancer.
Tel: 0300 0120 275 (support and advice line)
Skin camouflage service
Changing Faces runs a skin camouflage service, where trained volunteers can teach you how to apply specialist cover creams.
Tel: 0300 0120 276
When Cancer Affects the Way You Look
You can download their booklet When Cancer Affects the Way You Look for free.
Mouth Cancer Foundation is a charity that supports people affected by head and neck cancer. Its website has information about mouth, throat and other head and neck cancers. The website also has a forum and information on local support groups.
Tel: 01924 950 950
Saving Faces is funding education and research to improve medical treatment and support for people after facial surgery.
Sometimes it can be helpful to talk to someone who has been in a similar situation. Saving Faces can put you in touch with other people who have had facial surgery.
Enquiries Tel: 020 8223 8049
Helpline Email: firstname.lastname@example.org
Helpline Tel: 07792 357972
This organisation has detailed information about camouflage cosmetics for people who need help to cover up scars and disfigurements after head and neck surgery. It also runs training courses for camouflage cosmeticians.
Tel.: 01254 703 107
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments.
Phone: 0808 808 0000 (Monday to Friday, 9am to 8pm; information is available in other languages)
Textphone: 0808 808 0121
For help with cutting down alcohol
Alcohol is one of the main contributors to mouth and oesophageal cancers. There are many organisations to help you decrease or stop drinking alcohol.
The website has lots of information if you are concerned about your alcohol intake or are affected by someone who may need help.
Phone: 0845 769 7555
Down Your Drink offers a simple test to see if you are drinking too much alcohol.
This is a national agency that can help you find resources in your area for issues with alcohol. They also work with the government to develop public policies around alcohol issues.
Phone: 020 7566 9800
Get help to stop smoking
Stopping smoking is a great challenge. Read our information about what can help you to stop.
Books from libraries, bookshops or online booksellers
Jack E. Thomas and Robert L. Keith
Thieme Medical Publishers, 2005
Has information about cancer treatments and how to manage problems with speech and swallowing. It includes exercises for improving speech and swallowing, and tips on tube feeding.
Carper E, Hu KS and Kuzin E
Jones and Bartlett Publishers, 2006
ISBN: 978 0763743079
An American book which gives both doctor's and patient's views on treatment for head and neck cancer and quality of life, and much more.
Professor Bor, Dr Eriksen and C. Stapelkamp
Sheldon Press, 2010
ISBN 978 1847090973
This book addresses the painful emotions linked with a cancer diagnosis. It covers areas such as coping with distressing thoughts, learning to relax, family relationships and coping with an advanced cancer.
Val Speechley and Maxine Rosenfield
Class Publishing, 2001
Facts about cancer and cancer treatments set out in question and answer form. Includes information on diet, exercise, sex and relationships, holidays, employment and money matters.
Jeffrey Tobias, Kay Eaton and Gary Lineker OBE
Follows the BBC TV series of the same name. Covers treatment, side effects and different types of cancer, including head and neck cancers.
Dr Terry Priestman
Sheldon Press, 2007
ISBN 978 0859699990
Gives information about radiotherapy, its side effects and how to cope with them. Also discusses the effect of radiotherapy on everyday life, including social life, work, travel, exercise and diet.
Dr Terry Priestman
Sheldon Press, 2009
ISBN 978 1847090805
Gives information about what chemotherapy is, how you have it and the side effects. A useful book for those about to start chemotherapy, and for their family members.
Dr Terry Priestman
Sheldon Press, 2009
ISBN 978 1847090485
This handbook deals frankly and sensitively with the issues of cure, follow up, treatment side effects and recurrence. It looks at the support available to people who have finished treatment.
Videos of people's stories
Hear what it's like to live with and beyond cancer, from people who've shared their personal stories on film.
Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more.
Find local cancer information and support
NHS Choices helps you to find local cancer information and support.