There are lots of organisations, support groups, books, videos and other resources to help you cope with mouth and oropharyngeal cancer and treatment.
Cancer Research UK
Cancer Research UK is the largest cancer research organisation in the world outside of the USA. We fund research on all aspects of cancer from its causes to treatment and prevention.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We also have a range of health awareness leaflets.
Cancer Chat is a forum where you can share experiences.
Helpline freephone number: 0808 800 40 40
Administration phone number: 020 7242 0200
Mouth and oropharyngeal support organisations
This UK based charity works to improve standards of mouth care. Their website has good information on cancer and caring for your mouth.
The Oral Health Foundation was called the British Dental Health Foundation until 2016.
This UK charity provides support and information for people who have any form of facial disfigurement, including disfigurement caused by cancer.
Tel: 0300 0120 275 (support and advice line)
Skin camouflage service
Changing Faces runs a skin camouflage service, where trained volunteers can teach you how to apply specialist cover creams.
Tel: 0300 0120 276
When Cancer Affects the Way You Look
You can download their booklet When Cancer Affects the Way You Look for free.
Let's Face It provides support for people with facial disfigurement including those who have, or have had, cancer.
Tel: 01843 833 724
The Mouth Cancer Foundation is a charity that supports people affected by head and neck cancer. Its website has information about mouth, throat and other head and neck cancers.
Tel: 01924 950 950
Sometimes it can be helpful to talk to someone who has been in a similar situation. Saving Faces can put you in touch with other people who have had facial surgery.
Tel: 020 3465 5755
General support organisations
This organisation has detailed information about camouflage cosmetics for people who need help cover up scars and disfigurements after head and neck surgery. It also runs training courses for camouflage cosmeticians.
The Rarer Cancers Foundation helps people with less common or rarer cancers to get in touch with each other. Family and friends can also share their experiences and give support. It also offers general advice and information.
Tel: 0800 334 5551
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer. It's helpline gives guidance on cancer and advice on benefits. It also also publishes booklets about cancer and treatments.
Phone: 0808 808 0000 (Monday to Friday, 9am to 8pm; information is available in other languages)
Textphone: 0808 808 0121
Organisations for help with cutting down on alcohol
Alcohol is one of the main risk factors for mouth and oesophageal cancers. There are many organisations to help you reduce or stop drinking alcohol.
The NHS offers information and support if you are concerned about your alcohol intake or you know someone who may need help.
Dial 111 to find out about services in your area.
Alcoholics Anonymous is a group of men and women who share their experiences and help others to recover from alcoholism.
Helpline: 0800 9177 650
Down Your Drink offers a simple test to see if you are drinking too much alcohol.
Alcohol Concern is a national agency that can help you to find resources in your area for issues with alcohol. They also work with the government to develop public policies around alcohol issues.
Tel: 020 5669 800
Samaritans offer a 24 hour service where you can talk to or webchat with someone about your feelings and issues.
Tel: 084 5790 9090
Organisations for help with stopping smoking
Cancer Research UK has information on quitting smoking.
The NHS provides information, advice and support to help you give up smoking.
ASH is a portal for tobacco policies.
This website provides information and tips on quitting.
Books about mouth and oropharyngeal cancer
Jack E. Thomas and Robert L. Keith
Thieme Medical Publishers, 2005
This book has information about cancer treatments and how to manage problems with speech and swallowing. It includes exercises for improving speech and swallowing. And tips on tube feeding.
This book has been produced by a patient Brenda Brady, and her husband, in association with the Mouth Cancer Foundation. It has tips for anyone who has difficulty chewing and swallowing food. It contains 40 pages of recipes from celebrity chefs and people who have had cancer.
Booklets and factsheets
Cancer Research UK provides leaflets about signs, symptoms and causes of mouth cancer. It also describes what you can do to reduce your risk of the disease, and what happens if it is not treated.
The following leaflets are available:
- Detecting mouth cancer and how to reduce your risk
- Mouth cancer can affect you (in English and Urdu)
- Cancer in the mouth can affect you (in English and Bengali)
You can order them online or ring our leaflet enquiry line on 020 3469 8333.
Information is available as booklets, audiotapes and CDs.
- Understanding head and neck cancers
- Healthy eating and cancer
- Day to day life with advanced cancer
- Controlling cancer pain
- Controlling symptoms of cancer
- Lost for words - how to talk to someone with cancer
- Sexuality and cancer
- Understanding chemotherapy
- Understanding radiotherapy
- Coping with hair loss
- Coping with fatigue
- Understanding cancer research trials (clinical trials)
- The emotional effects of cancer
- Talking to children when an adult has cancer
- Talking about your cancer
- Life after cancer treatment
- Clinical trials
- MRI scan
- Eating well when you have cancer
- After treatment
Videos of people's stories
Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.
Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.
Find local cancer support and information services
NHS Choices has a service that tells you about local information and support.