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Resources and organisations

Find out about organisations, support groups, books, videos and other resources to help you cope with lung cancer and treatment.

Cancer Research UK

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website, our news and resources, and our range of health awareness leaflets.

Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.

If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.

Lung cancer support organisations

The British Lung Foundation gives information on all types of lung conditions. It runs support groups across the country. It produces a newsletter and other publications, and raises funds for research into lung disease.

Tel: 03000 030 555 (Monday to Friday, 9am to 5pm)

Public Health England (PHE) is the main resource for advice about radon in the UK. It gives information about radon through it's website. You can order a radon risk report. And you can buy a kit to measure radon gas levels in your home.

Telephone: 01235 822 622

The Roy Castle Lung Cancer Foundation is a UK charity dedicated to defeating lung cancer. It funds research into early diagnosis and provides support to patients and their families. It also helps people to stop smoking and provides anti smoking education materials for children and young people.

People affected by lung cancer can share experiences through the foundation's network of support groups and the online discussion forum: Talk and Share.

E-mail: foundation@roycastle.org

Lung Cancer Helpline: 0333 323 7200 (9am to 5pm, Monday to Friday)

General support organisations

Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments.

Phone: 0808 808 0000 (Monday to Friday, 9am to 8pm; information is available in other languages)

Textphone: 0808 808 0121

Telephone helpline and online advice on all medical and healthcare matters.

Tel: 020 8994 9874 (6pm to 8pm)

Email: office@medicaladvisoryservice.org.uk

The National Cancer Institute has patient information about lung cancer. As it is an American website, some of the information is not relevant for a UK audience.

This site has patient information about lung cancer but some information isn't relevant for a UK audience.

The British Association for Counselling and Psychotherapy provides information about therapy and counselling. On its website you can look for qualified therapists in your area.

Telephone: 01455 883300 (open Monday to Friday, 9am to 5pm)

Email: bacp@bacp.co.uk

Gives information about the support and counselling that is available for people having difficulty with sex or relationships.

Phone: 020 8543 2707

Email: info@corst.org.uk

Offers private and confidential counselling, and psychosexual therapy to help with relationship problems.

Tel: 0300 100 1234

Relationships Scotland provides relationship counselling, family mediation, child contact centres and other family support services across all of mainland and island Scotland.

InfoLine: 0845 119 2020 (open Monday to Friday 9am to 5pm)

Email: enquiries@relationships-scotland.org.uk

Stop smoking organisations

This service offers support to stop smoking through the use of its app (Quit Kit), email, SMS and face to face guidance. You can also search for details of local support services.

England – 0300 123 1044 - lines are open Monday to Friday 9am to 8pm and Saturday and Sunday 11am to 4pm.

Northern Ireland 0800 85 85 85

Scotland 0800 84 84 84

Wales 0800 169 0169

Books about lung cancer

Karen Parles and Joan H. Schiller
Jones and Bartlett Publishers, 2009
ISBN-13 9780763760533

This book gives information about treatment options, quality of life after treatment and living with lung cancer. It is an American book so some issues covered are not relevant to a UK reader.

Vladimir Lange, M.D.
Lange Productions, 2012
ISBN: 978-0981948973

This book gives detailed information about lung cancer, treatments and the feelings and emotions people may have. It contains stories from people who have had lung cancer.

It is an American book so some information is not relevant to the UK reader.

Dr David Gilligan and Dr Robert Rintoul
Holder and Stoughton, Royal Society of Medicine series, 2007
ISBN: 9780340927861

This book covers all aspects of lung cancer. It explains exactly what lung cancer is, what causes it, and its symptoms and diagnosis. It also covers the treatments available and has myths and fact boxes, key terms, question and answer sections, and a chapter on who patients and carers might meet in the NHS.

Find out what smoking does to your body, and how you can give yourself the best chance of quitting.

Dr Terry Priestman
Sheldon Press, 2009
ISBN-13: 978-1847090805

Gives information about chemotherapy, its side effects, and how to cope with them. Also discusses the effect of chemotherapy on everyday life, including tiredness, sex life and fertility, social life, work, holidays, exercise and diet.

Dr Terry Priestman
Sheldon Press, 2007
ISBN-13: 978-0859699990

Gives information about radiotherapy, its side effects, and how to cope with them. Also discusses the effect of radiotherapy on everyday life, including social life, work, travel, exercise and diet.

Information about eating well

Jane Freeman
Sheldon Press, 2012
ISBN: 978-1-84709-141-3

Written by a cancer dietitian, this is a practical handbook for people with cancer. Filled with helpful tips and recipes.

Abby Bloch, Barbara Grant, Kathryn Hamilton and Cynthia Thomson
Publisher: American Cancer Society, 2009
ISBN: 978-0944235782

An American book but most of the information is relevant to the UK. It covers issues such as preventing weight loss and coping with dehydration, fatigue, and infection. It also discusses eating problems and digestion issues, such as swallowing problems, feeling sick and dealing with mouth sores. Focuses on survivorship and how to eat well after treatment.

Videos of people's stories

Hear what it's like to live with and beyond cancer, from people who've shared their personal stories on film.

Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more. 

Find local cancer information and support

NHS Choices helps you to find local cancer information and support.

Information and help

Dangoor sponsorship

About Cancer generously supported by Dangoor Education since 2010.