"I am glad that taking part in a trial might help others on their own cancer journey.”
A study looking at the experiences of people with T cell lymphoma of the skin
Please note - this trial is no longer recruiting patients. We hope to add results when they are available.
This study is looking at how people with T cell lymphoma of the skin are cared for.
Researchers know that people can be treated for T cell lymphoma of the skin for many years. They want to find out how people’s experience of treatment and care changes over the years. They also want to find out about the experiences of those who care for people with T cell lymphoma of the skin.
The aim of this study is to find out about the care and support needs of people with T cell lymphoma of the skin. And also the needs of their carers.
Researchers hope this information will help doctors and nurses to give better care and support in the future.
Who can enter
You may be able to enter this trial if you
- Are attending St John's skin unit (Institute of Dermatology) at Guy's and St Thomas' Hospital in London
- Have T cell lymphoma of the skin or are caring for someone who has
- Are aged at least 18 years old
You cannot enter this trial if you cannot easily speak and understand English.
This is an interview study. You will be asked about
- How you were cared for
- How you would prefer care to be given in the future
The interview will take between 30 to 60 minutes.
If you are interested in taking part a researcher will contact you in the hospital clinic or by post. If you agree they will arrange an interview at a place convenient to you, for example, the hospital where you are being seen, or your own home.
The team do not expect any risks or disadvantages from taking part in this study. But you may find it hard to talk about your experiences. If this happens, the researcher will offer to stop the interview and continue at another time. And they will offer you further support if you would like it.
How to join a clinical trial
Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.
Dr Teresa Beynon
Dimbleby Cancer Care
National Institute for Health Research Cancer Research Network (NCRN)