A study looking at the experiences of people with T cell lymphoma of the skin

Please note - this trial is no longer recruiting patients. We hope to add results when they are available.

Cancer type:

Low grade lymphoma
Lymphoma
Non-Hodgkin lymphoma

Status:

Closed

Phase:

Other

This study is looking at how people with T cell lymphoma of the skin are cared for.

Researchers know that people can be treated for T cell lymphoma of the skin for many years. They want to find out how people’s experience of treatment and care changes over the years. They also want to find out about the experiences of those who care for people with T cell lymphoma of the skin.

The aim of this study is to find out about the care and support needs of people with T cell lymphoma of the skin. And also the needs of their carers.

Researchers hope this information will help doctors and nurses to give better care and support in the future.

Who can enter

You may be able to enter this trial if you  

  • Are attending St John's skin unit (Institute of Dermatology) at Guy's and St Thomas' Hospital in London  
  • Have T cell lymphoma of the skin or are caring for someone who has
  • Are aged at least 18 years old

You cannot enter this trial if you cannot easily speak and understand English.

Trial design

This is an interview study. You will be asked about

  • How you were cared for
  • How you would prefer care to be given in the future

The interview will take between 30 to 60 minutes.

Hospital visits

If you are interested in taking part a researcher will contact you in the hospital clinic or by post. If you agree they will arrange an interview at a place convenient to you, for example, the hospital where you are being seen, or your own home.

Side effects

The team do not expect any risks or disadvantages from taking part in this study. But you may find it hard to talk about your experiences. If this happens, the researcher will offer to stop the interview and continue at another time. And they will offer you further support if you would like it.

Recruitment start:

Recruitment end:

How to join a clinical trial

Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Chief Investigator

Dr Teresa Beynon

Supported by

Dimbleby Cancer Care
National Institute for Health Research Cancer Research Network (NCRN)

Questions about cancer? Contact our information nurses

Freephone 0808 800 4040

Last review date

CRUK internal database number:

Oracle 8657

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Charlie took part in a trial to try new treatments

A picture of Charlie

“I think it’s really important that people keep signing up to these type of trials to push research forward.”

Last reviewed:

Rate this page:

No votes yet
Thank you!
We've recently made some changes to the site, tell us what you think

Share this page