A study looking at factors affecting where people with blood cancers are cared for at the end of life

Please note - this trial is no longer recruiting patients. We hope to add results when they are available.

Cancer type:

Acute leukaemia
Blood cancers
Chronic leukaemia
Hodgkin lymphoma
Leukaemia
Lymphoma
Myeloma
Non-Hodgkin lymphoma

Status:

Closed

Phase:

Other

This study is looking at the factors that affect where people with blood cancers are cared for at the end of life. It is open to people with leukaemia, lymphoma and myeloma.

Being able to choose where you are cared for and die is a sign of quality end of life care. Most people would prefer to be cared for and die at home. Studies show that people with blood cancers are more likely to die in hospital than people with other cancers. The researchers want to find out why.

The researchers want to gather information from people with blood cancers, their relatives and carers, and their doctors and nurses. They hope that this information can help to change things so that people with blood cancers are able to be cared for and die in the place they prefer.

Please note you may not benefit from taking part in this study but the information could help people in the future.

Who can enter

You may be able to enter this study if you live in the Yorkshire and Humberside region and you have one of the following

And

  • Your disease has come back (relapsed)
  • You have had all possible treatments for your disease
  • You are terminally ill

Trial design

The researchers want to interview 15 patients and 15 relatives or carers. The interview will take about an hour. They will ask about

  • Where you would prefer to be cared for at the end of life
  • Your reasons for this
  • If your preference has changed over time
  • If you have had opportunities to talk about this with your doctor, nurse, relatives and carers

You can have a relative or carer present during the interview. They are welcome to take part.  With your permission the interview will be tape recorded and written down at a later date. This is so the researchers can analyse what you have said and compare it with what others have said. The researchers will keep what you say anonymous, so no one will be able to link it to you.

The researchers will also interview 60 health professionals. They will ask them about

  • Why they think most people with blood cancers die in hospital
  • Where they think people at the end of life should be cared for
  • What factors they think are used to decide where people at the end of life are cared for
  • What changes they think could be made so people at the end of life can be cared for in their preferred place

Hospital visits

The interview can take place in your home, your local hospital or any other place you feel comfortable.

Side effects

The team doesn’t expect that there will be any risks to you in taking part. But sometimes, talking about illness and feelings can be upsetting. They will give you the name of a nurse you can contact if you wish to talk further about any issues that arise during the interview.

Recruitment start:

Recruitment end:

How to join a clinical trial

Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Chief Investigator

Dr Debra Howell

Supported by

Marie Curie Cancer Care
NIHR Clinical Research Network: Cancer
University of York
Yorkshire and Humberside Haematology Network

Questions about cancer? Contact our information nurses

Freephone 0808 800 4040

Last review date

CRUK internal database number:

Oracle 9041

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Around 1 in 5 people take part in clinical trials

3 phases of trials

Around 1 in 5 people diagnosed with cancer in the UK take part in a clinical trial.

Last reviewed:

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