"I was delighted to take part in a clinical trial as it has the potential to really help others in the future.”
A study looking at differences in cancer survival between patients in similar countries (ICBP module 4)
Please note - this trial is no longer recruiting patients. We hope to add results when they are available.
This study is a survey looking for differences in the time taken to diagnose people with cancer in different countries. This study is supported by Cancer Research UK.
The International Cancer Benchmarking Partnership (ICBP) is a partnership between Australia, Canada, Denmark, England, Northern Ireland, Norway, Sweden and Wales. The aim of the partnership is to compare cancer survival rates across the countries and investigate differences.
They have found differences in survival in patients with lung, breast, bowel and ovarian cancer in the various ICBP countries. This study is seeing if this is due to differences in the time it takes to
They hope it will help them understand any delays that you may have had. This will help the NHS improve the way they look after people with cancer.
Who can enter
If you are diagnosed with cancer, your details are sent to the NHS Cancer Registration System. This system will contact your GP, asking them to forward the study details from the study team to you. If your GP agrees, they will do this. People taking part will have been diagnosed in the last 6 months with a cancer that started in either the
- Ovary or fallopian tube
- Lung or the tube taking air into your lungs (the
bronchus- not including your wind pipe)
- Large bowel (colon) or back passage (rectum)
- Would be able to complete the questionnaire within 6 months of being diagnosed
- Are at least 18 years old
You cannot enter this study if
- Your cancer is at a very early stage and has not spread into surrounding tissues (doctors say your cancer is ‘
- You have had a separate cancer in the same organ before
- You are a male with breast cancer
- You have more than one
This study will recruit at least 50 people for the pilot study and 200 people for the main study for each cancer type in each country taking part.
Everyone taking part will fill out a questionnaire asking about
Symptomsyou had before you were diagnosed
- How long it took for you to be diagnosed and treated
- Tests you had
The questionnaire should take about 20 minutes. The researchers will also ask for permission to contact your GP and hospital for more information about your diagnosis and treatment.
They may contact you if anything from your questionnaire is not clear. Or, to ask you to fill out the questionnaire again (if you are taking part in the pilot study). This is to help them test the quality of the questionnaire.
You will not need any extra hospital visits to take part in this study.
You should not have any side effects as a result of taking part in this study. But thinking about your experience of cancer may be upsetting. The researchers have carefully designed and tested the questions to try to make sure that this does not happen.
How to join a clinical trial
Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.
Prof Usha Menon
Cancer Research UK
Department of Health
International Cancer Benchmarking Partnership (ICBP)
NIHR Clinical Research Network: Cancer
The Eve Appeal
University College London (UCL)