"I am glad that taking part in a trial might help others on their own cancer journey.”
A study looking at the social impact of cancer on people of South Asian origin
This study looked at how people of South Asian origin coped with everyday difficulties when they have cancer.
People with cancer may have to cope with a range of everyday problems. It can be difficult for doctors and nurses to know who may be having difficulties. And this makes it hard for staff to make sure people are getting the right practical help, information and support.
The researchers involved in this trial have already developed and tested a questionnaire that helps to identify difficulties people have. But so far, only a few people from the South Asian community have been involved in this.
In this study, they wanted to use the questionnaire to ask people of South Asian origin about any difficulties they had. The researchers wanted to find out if the problems they had were different to other groups of people who had cancer. They also wanted to find out peoples’ opinions of the language used in the questionnaire and how well it had been translated.
Summary of results
The study team found that the language used and the translation was acceptable to people of the South Asian community and the levels of their everyday difficulties were higher than other communities.
The researchers translated the questionnaire into Urdu, Punjabi and Hindi. They asked South Asian people who attended the cancer clinics in Bradford, Airedale and Leeds Hospitals to fill out the questionnaire.
Almost half of the 55 people in the study completed the questionnaire in English. All of them said they would welcome its use to assess any difficulties having cancer might cause them.
32 of the 55 people had a score that showed significant amount of everyday difficulties. This mainly included sexual difficulties and planning to travel or take a holiday.
The study concluded that the translation and language was acceptable to people of South Asian origin. The levels of social distress caused by their cancer were higher than the white British community.
We have based this summary on information from the team who ran the trial. The information they sent us has been reviewed by independent specialists (
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Dr Chris Bradley
NIHR Research for Patient Benefit (RfPB) Programme
National Institute for Health Research Cancer Research Network (NCRN)