"I am glad that taking part in a trial might help others on their own cancer journey.”
A study looking at information given to people having oral chemotherapy for myeloma
Please note - this trial is no longer recruiting patients. We hope to add results when they are available.
This study is looking at the information healthcare professionals give to people who take chemotherapy tablets for myeloma.
Doctors often treat myeloma with chemotherapy that you can take as tablets. This is called oral chemotherapy. Many people prefer having chemotherapy tablets because they don’t have to spend as much time in hospital or have drugs into a vein. But they need to know how to take the tablets correctly. They also need to know about possible side effects and to understand when and why they would need to contact their doctor.
The aim of this study is to learn more about how healthcare professionals give people information about having oral chemotherapy at home, and how helpful patients find this information.
The researchers hope this will show how the information could be improved and help them to produce guidelines for healthcare professionals on giving information about oral chemotherapy.
Please note – there is unlikely to be any direct benefit from taking part in this study, but the information gathered may help people in the future.
Who can enter
You can enter this trial if you
- Have been diagnosed with myeloma and are having oral chemotherapy
- Are at least 18 years old
You cannot enter this trial if you
- Are having chemotherapy into a vein as well as tablets
- Do not speak English
The researchers will ask about 30 people if they can record the discussion they have with a specialist doctor or nurse about taking chemotherapy tablets at home. These will be people who have just been diagnosed with myeloma and are going to start oral chemotherapy.
The researchers will interview about 10 people who are still having treatment or have recently finished treatment. They will make an audio recording of each interview.
They will ask about 200 people to fill in a questionnaire asking what they know about oral chemotherapy and how they feel about having this treatment. These will be people who are having oral chemotherapy for myeloma and have already had a follow up visit with their doctor.
The researchers will also interview a small number of healthcare professionals to ask them how they give patients information about oral chemotherapy.
All the information collected is
If you have an interview with a member of the study team, you can have this at the hospital, or the researcher can come to your home. They will arrange a time that is convenient for you. It will take 15 to 20 minutes to fill in the questionnaire. You can do this during a hospital appointment, or you can take it home and post it back.
There are no side effects associated with taking part in this study.
How to join a clinical trial
Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.
Dr Anne Arber
NIHR Clinical Research Network: Cancer
University of Surrey