“I think it’s essential that people keep signing up to these type of trials to push research forward.”
A study to find out why some people have not taken part in the NHS Bowel Screening Programme (BUCCS)
This study interviewed people in the North East of England who had not responded to their invitation to take part in the NHS Bowel Cancer Screening Programme.
Screening means looking for early signs of a particular disease in people who do not have symptoms. If you are in the age range for the Bowel Cancer Screening Programme, you receive a letter asking if you would like to take part. This comes with a booklet about the programme, and a kit to collect a very small amount of stool (faeces), which you send back in a hygienic envelope.
Researchers believe there could be 20,000 fewer deaths from bowel cancer over the next 20 years if 6 out of every 10 people (60%) took this test. But the number actually taking the test is lower than this. And we know that men, younger people, those from the Indian subcontinent and people living in less wealthy areas are less likely to take part in bowel cancer screening.
In this study, researchers talked to people who had not returned their screening kit, to try to understand why this is.
The aims of this study were to
- Find out why people didn’t take part in the bowel cancer screening programme
- Look at possible ways of increasing the number of people taking part
Summary of results
The researchers collected information on why people had not responded to their Bowel Cancer Screening Programme invitation. They found that there were a lot of reasons why this happens.
The study team invited people who had not taken part in screening to join the study. Most of these were registered with GP surgeries in low income areas. 59 people agreed to take part. Of those,
- 27 were interviewed and asked their reasons for not taking part
- 32 did not want to be interviewed, but gave written reasons why they had decided not to take part
The main reasons people gave for not yet taking part in screening were that they
- Were already seeing a doctor
- Had been tested for bowel cancer
- Had difficulties with the practicalities involved in completing and returning a kit
- Had other health issues which made returning a kit difficult
- Had experienced stressful life events or had other priorities at the time they received their kit
- Wanted to avoid further testing or bad news
- Thought screening didn’t apply to them
The researchers found that
- Not everyone they spoke to had chosen not to return a kit
- Some people had avoided or delayed making a decision and others had wanted to but had not got round to it or had not been able to
- Many people were not aware of the screening programme before they received an invitation
- Most people thought that screening was useful
- Most people had a positive attitude towards screening
- Many people wanted to take part or would think about taking part in the future
- Some people were influenced by their family and friends
- Some people thought that collecting a sample of their own faeces was distasteful and unhygienic, but this was rarely the main reason for not returning a kit
- A decision not to take part could change with time depending on personal situations and beliefs
The study team looked at all the information collected. They suggest encouraging people to take part by
- Continuing to send repeat invitations and reminders
- Having a health care professional advise them
- Making the screening test easier and more practical
The researchers concluded that there were a lot of reasons why people did not take part in the NHS Bowel Cancer Screening Programme. But in most cases it wasn’t because people had a negative attitude towards screening, or had decided not to return the kit.
We have based this summary on information from the team who ran the trial. The information they sent us has been reviewed by independent specialists (
How to join a clinical trial
Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.
Professor G Rubin
NHS Bowel Cancer Screening Programme
NIHR Clinical Research Network: Cancer
NIHR Research for Patient Benefit (RfPB) Programme
Primary Care Research Networks
South Tyneside Foundation Trust
University College London (UCL)
University of Edinburgh