I needed to know how I would feel after brain surgery | Cancer Research UK
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I needed to know how I would feel after brain surgery

From Pearl Bohacek

On the 24th June 2007, I had an epileptic attack and after the third, two days later, my sister called an ambulance. Within an hour of arriving at the hospital, I had a fourth attack and following a ct scan, meningioma was diagnosed.

Six weeks later the whole tumour was removed from the front left side of my skull on the hairline and my family were delighted thinking that my traumatic ordeal was over. However, 7 days later I was advised that the tumour was Grade II and close to a Grade III, which is quite aggressive and likely to return.

Following surgery 7 weeks ago, my head is still quite numb and my left eye is painful and until recently I had double vision.

Radiotherapy begins in October, five days a week for six weeks. I am told that I will lose clumps of hair which may not return, have a sore scalp, the treatment could cause another tumour and other cheerful things, which I am not taking seriously because the hospital need to warn me of all "possible" side effects.

I am telling my story because I have found it so frustrating that no medical staff told me of the pain and discomfort I should experience, or about the problem with my eye (which apparently was expected because the optics nerves are bruised and perhaps damaged during surgery).

This lack of advice seems to be very common with most people who have had meningioma and they have had to find out for themselves via the internet, meningioma organisations etc. why they are experiencing so much pain and discomfort several weeks after surgery.

I recommend that you check out the website for the Meningioma Organisation, www.meningioma.org, as I did. Ella really lifted my spirits and having had meningioma herself was able to answer all of my questions and allay my fears. I just wish I had found her several weeks ago instead of worrying and living on stress, something that one who has had meningioma should not do!

Apparently, following radiotherapy lethargy and extreme tiredness are to be expected and having been advised of this I will cope with it .... I just wish someone had told me what to expect after my tumour was removed and I hope that my story will help you.

CancerHelp UK team message - CancerHelp UK also has information about surgery for brain tumours.

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Updated: 28 September 2009