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Advanced cancer organisations

Coping with cancer

This page gives information about organisations and websites that help and support people with advanced cancer. There is information about

 

Using this page

The websites listed on this page are valuable sources of detailed information about advanced cancer. They may use more technical terms, longer pages and fewer images than this website. 

You can find details about general cancer support organisations on our general cancer organisations page. We have information about counselling organisations in the counselling section.

 

Cancer Research UK information and support 

Cancer Research UK
Angel Building
407 St John Street
London EC1V 4AD

Admin phone number: 020 7242 0200
http://www.cancerresearchuk.org

Cancer Research UK is the largest cancer research organisation in the world, outside the USA. We are the European leader in the development of new anti cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through our patient information website, News and resources website, and through our range of health awareness leaflets.

If you have a question about cancer, and you are in the UK or Ireland, you can contact our team of specialist cancer information nurses using this form, or by telephoning 020 7061 8355 or freephone 0808 800 40 40.

Cancer Research UK In Memory site
To celebrate the life of a loved one, you can create a personalised page in their memory. You can invite friends and family to donate in their memory to help beat cancer.

 

General support organisations

Bereaved Partners Support Group
This is a London based support group to help those who have lost loved ones to cancer. To begin with, it was set up for people who had lost their partner to cancer. But the group has now opened up to anyone who has lost someone they are close to, such as a parent, sibling or friend. They have regular support meetings in London, and an online forum. 

General queries: 07732070972
Email: erin.thompson@bereavedpartnerssupportgroup.com 
Website: www.bereavedpartnerssupportgroup.com


Citizens Advice Bureau
You can find your nearest Citizens Advice Bureau by phoning 020 7833 2181 or go to www.adviceguide.org.uk

An independent network that provides free advice about money, legal issues, housing health and social welfare issues. Often provides advice in English and other languages.


Cruse Bereavement Care
PO Box 800
Richmond
Surrey
TW9 1RG
Helpline: 0844 477 9400
Email: helpline@cruse.org.uk
Website: www.crusebereavementcare.org.uk
Website to support young people affected by bereavement: www.rd4u.org.uk

Cruse provides bereavement counselling. It offers help, support and information to anyone facing bereavement or who has been bereaved. Has a network of local branches throughout the UK.


Family Action
501–505 Kingsland Road
London
E8 4AU
Tel: 020 7254 6251
Website: www.family-action.org.uk

Has a support and counselling service for any family needing help. Also gives financial help to people in need. Referral must be by a health or social worker.


Grief encounter
Grief Encounter Project
The Lodge
17 East End Road
London
N3 3QE

Phone: 020 8371 8455, Monday to Friday, 9am to 5pm 
Email: contact@griefencounter.org.uk
Website: www.griefencounter.org.uk

Grief encounter is one of the leading providers of support services for bereaved children and their families throughout the UK. Their website has resources and information for bereaved children and teenagers.  


Macmillan Cancer Support
Head Office
89 Albert Embankment
London
SE1 7UQ

Macmillan CancerLine: 0808 808 0000 (Mon to Fri, 9am to 9pm; information available in other languages)
Textphone: 0808 808 0121
Email: cancerline@macmillan.org.uk
Website: www.macmillan.org.uk

Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run helplines providing cancer information and benefits advice.


National Association of Bereavement Services
2nd Floor
4 Pinchin Street
London E1 1SA
Tel: 020 7709 9090

Can put people in touch with their nearest local bereavement support service. Has a directory of UK bereavement services.


National Association of Funeral Directors
618 Warwick Road
Solihull
West Midlands
B91 1AA
Helpline: 0845 230 1343

Email: info@nafd.org.uk
Website: www.nafd.org.uk

Advises on arranging funerals. Gives information on the services provided by funeral directors and advises on what to do after someone has died. Has a list of funeral directors across the UK.


The Cancer Counselling Trust
The Cancer Counselling Trust has now closed but their website gives details of other organisations that provide counselling services.
Website: www.cancercounselling.org.uk

 

Organisations for carers

Carers UK
20 Great Dover Street
London SE1 4LX
Helpline: 0808 808 7777 (Wednesday and Thursday, 10am to 12 and 2pm to 4pm)
Website: www.carersuk.org
For advice: www.carersuk.org/contact-us

Gives information and support to carers on many issues. Has local groups all over the UK. The head office puts you in touch with your local group.


Carers Direct
Website: www.nhs.uk/carersdirect
Website for young carers: www.youngcarers.net
Email: Carers Direct

Part of the NHS Choices website. It provides a gateway to comprehensive sources of information for carers. The site has been developed in conjunction with the Princess Royal Trust for Carers, Carers UK, Crossroads, and Young Carers Net. It contains information about benefits, links to national and local support organisations, and a directory of services.Helpline: 0808 802 0202 (9am to 8pm, Monday to Friday (except bank holidays) (11am to 4pm at weekends) You can ask for a call back in one of more than 170 languages.


Carers Trust
32–36 Loman Street (Head Office)
London SE1 0EH
Phone: 0844 800 4361
Website: www.carers.org
Email: info@carers.org
Fax: 0844 800 4362

Crossroads Care and The Princess Royal Trust for Carers merged in April 2012 to form the Carers Trust. It works to improve support, services and recognition for anyone living with the challenges of caring, unpaid, for a family member or friend who is ill, frail, disabled or has mental health or addiction problems. And they provide access to desperately needed breaks, information and advice, education, training and employment opportunities. They have offices in Scotland and Wales that can be contacted through the website or the London office. 


VisMe.com
Website: www.visme.com

A free, online, visitor planner designed to help families and friends schedule visits to anyone who is seriously ill or who has a terminal illness. The site was set up by someone whose mother became ill and died and who realised that it would be very helpful to be able to schedule visits to the ill person and to share information. The site is secure and confidential.

 

Organisations that supply equipment

British Red Cross
44 Moorfields
London EC2Y 9AL
Telephone: 0844 871 11 11
Email: information@redcross.org.uk
Website: www.redcross.org.uk

Red Cross services vary in different parts of the country but they provide medical equipment, transport and hospital escort services, home emergency personal care, home respite care. There are branches throughout the UK.


Disabled Living Foundation
380–384 Harrow Road
London
W9 2HU
Helpline: 0845 130 9177
Email: helpline@dlf.org.uk
Website: www.dlf.org.uk

Gives information and advice on equipment and aids to help with daily living.


Care4Living
Contact form: www.care4living.co.uk/contacts
Website: www.care4living.co.uk

An independent online seller of living aids and equipment for use in and around the home. It includes equipment to help with moving around, staying independent, bathing, cooking, eating, drinking, safety and security.
 

Hearing Health and Mobility
Hearing Health and Mobility Ltd
61 Cowbridge Road East
Cardiff
CF11 9AE
Website:
Email: enquiries@hearingandmobility.com
Phone: 0800 652 0042 – Monday to Friday, 9am to 5pm. 

Has shops dotted around the UK and a website selling equipment, including mobility scooters and stair lifts. It also has equipment to help with bathing, cooking, eating, and drinking.

 

Financial help and advice organisations

Association of Charity Officers
Central House
14 Upper Woburn Place
London
WC1H 0NN
Tel: 020 7255 4480
Website: www.aco.uk.net

Helps people find specific charities that can offer them financial support.


Macmillan Cancer Support
89 Albert Embankment
London
SE1 7UQ
Helpline: 0808 808 0000
Website: www.macmillan.org.uk

Give information and financial grants to people with cancer and their families.

 

Organisations that give information

Age UK
Tavis House
1– 6 Tavistock Square
LondonWC1H 9NA
Tel: 0800 169 6565 (8am to 7pm)
Scotland office: 0845 125 9732 (10am to 4pm)
Welsh office: 029 2043 1555
Northern Ireland office: 028 9024 5729
Website: www.ageuk.org.uk
Scotland website: http://www.ageuk.org.uk/scotland/

Provides information and factsheets on many issues including insurance, making a will, what to do when someone dies, financial support and housing issues. 


Compassion in Dying
181 Oxford Street
London
W1D 2JT
Phone: 0800 999 2434
Email: info@compassionindying.org.uk
Website: http://www.compassionindying.org.uk/

Provides information around the rights and choices associated with having 'a good death' as well as free templates for compiling an advance decision. Also conducts research into rights and choices at end of life. 


Disability Rights UK
12 City Forum
250 City Road
London
EC1V 8AF
Phone: 020 7250 3222
Email: enquiries@disabilityrightsuk.org
Website: www.disabilityrightsuk.org


Hospice Information
Help the Hospices
Hospice House
34–44 Britannia Street
London
WC1X 9JG
Tel: 020 7520 8200
Email: info@helpthehospices.org.uk
Website: www.helpthehospices.org.uk

Answers enquiries about any aspect of hospice care. The website includes a directory of hospice services in the UK and Ireland.


National Association of Disablement Information and Advice Services (DIAL) at SCOPE
6 Market Road
London
N7 9PW
Phone and textphone: 0808 800 3333 99am to 5pm, Monday to Friday)
Email: informationenquiries@dialuk.org.uk
Website: www.scope.org.uk/dial

DIAL is a network of more than 100 disability information and advice groups. The groups are run by people with experience of disability who give free, independent advice to anyone affected by disability (including cancer). It is now part of SCOPE, the UK charity for people with cerebral palsy and disability.


The Natural Death Centre
In The Hill House
Watley Lane
Twyford
Winchester
SO21 1QX
Tel: 01962 712 690
Email: contact@naturaldeath.org.uk
Website: www.naturaldeath.org.uk

Gives support and information to help people die naturally at home. Advises on arranging inexpensive and environmentally friendly funerals. Also provides counselling.


'If I should die' website
www.ifishoulddie.co.uk

Gives practical information and support about dying.

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Updated: 14 March 2014