Find organisations, support groups, videos and books to help you cope with bladder cancer and treatment.
Cancer Research UK
Cancer Research UK is the largest cancer research organisation in the world outside of the USA. We fund research on all aspects of cancer from its causes to treatment and prevention.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We also have a range of health awareness leaflets.
Cancer Chat is a forum where you can share experiences.
Helpline freephone number: 0808 800 40 40
Administration phone number: 020 7242 0200
Bladder cancer support organisations
This charity is run by bladder cancer survivors and their families. You can join a support network and a confidential online forum. You can find information abou how treatments might affect you.
This is a self help organisation that runs a network of groups throughout the country. They can arrange for someone who has had a urostomy to visit you before and after your surgery.
They also provide booklets about what is a urostomy, guidance on diet and exercise, travel and sex life after a urostomy.
Tel: 01889 563191
The Bladder and Bowel Community supports and connects people living with bladder and bowel disorders. Their confidential telephone helpline gives help in 10 languages. They can also advise you on stoma products.
The community can give you a Just Can't Wait toilet card. This gives you quick access to toilets when you're out and about in shops, cafes, pubs and so on.
The community was previously called the Bladder and Bowel Foundation.
Helpline: 0845 345 0165
Tel: 01926 357 220
A patient led group that promotes understanding about pelvic radiation disease. Pelvic radiation disease is a late effect of radiotherapy treatment. They support patients and campaign for more research and better treatment for this condition.
Tel: 01372 744338
General support organisations
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments.
Phone: 0808 808 0000 (Monday to Friday, 9am to 8pm; information is available in other languages)
Textphone: 0808 808 0121
This national disability organisation has an information and advice service and campaigns for disabled people's rights. It used to be called RADAR.
They also provide a Just Can't Wait card and keys that give access to toilets throughout the UK for people who might need to use a toilet in a hurry.
Tel: 020 7250 8181
The Department for Work and Pensions have information on guidance on the Industrial Injuries Disablement Benefit for people that have been exposed to chemicals that could cause bladder cancer.
Offers private and confidential counselling, and psychosexual therapy to help with relationship problems.
Tel: 0300 100 1234
The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer.
Stoma appliances suppliers
Supply urine bags, catheters and other products.
Tel: 0114 225 9000
Has a delivery service for prescribed appliances.
Tel: 0800 036 0100 (freephone)
Supply a variety of stoma care products and appliances. They also provide booklets with hints and tips and how to change different urostomy bags.
Tel: 0800 581 117
Has a delivery service for prescribed appliances.
Tel: 0800 521377 (freephone)
They supply colostomy, ileostomy and urostomy products. You can request samples.
Tel: 0330 555 1250
They provide a range of products. You can request a sample.
Tel: 0800 592 786
They provide stoma and continence produts.
Tel: 0800 652 0424 (freephone)
Provide stoma products and information booklets.
Tel: 029 2074 7000
They supply a range of different products. You can sign up to receive their newsletter.
Tel: 0800 626 388
Books about bladder cancer
Ellsworth P and Carswell B. Jones and Bartlett, 2010
Answers the most common questions asked by people with bladder cancer, their friends and relatives. Gives information about the treatment options, life after treatment and support. It is an American book, but still useful to UK readers.
Schoenberg MP. Johns Hopkins Genitourinary Group, 2000
An American book containing a lot of useful information about bladder cancer and its treatment. Covers risk factors, symptoms, diagnosis and the major treatments, including bladder sparing surgery.
Booklets and factsheets
Booklets from Macmillan Cancer Support
Information is available as booklets, audiotapes and CDs.
- Understanding non-invasive bladder cancer
- Understanding invasive and advanced bladder cancer
- Coping with hair loss
- Healthy eating and cancer
- Coping with advanced cancer
- Controlling cancer pain
- Controlling the symptoms of cancer
- Lost for words - how to talk to someone with cancer
- Sexuality and cancer
- Understanding chemotherapy
- Understanding radiotherapy
- Talking to children and teenagers when an adult has cancer
- Talking about your cancer
Videos of people's stories
Hear what it's like to live with and beyond cancer, from people who've shared their personal stories on film.
Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more.
Find local cancer information and support
NHS Choices helps you to find local cancer information and support.